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    • 5 hours, 23 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 58 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 59 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 7 hours ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 7 hours, 1 minute ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 43 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 44 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 34 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 13 hours, 22 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 29 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 16 hours, 30 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 49 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 49 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 17 hours, 2 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 6 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 6 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 14 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)
    Previous

    Over the past 12 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, etc.?

    Next

    If you have a child with T1D (or at some point you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage the amount of candy they consume? Share what works best for you in the comments!

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Kim Murphy

      I do my own care. There are no endocrinologist in Alaska that insurance covers. My PCP just writes whatever prescriptions I ask her to for whatever insulin and pump and CGM that I have decided I want to use. The other issue I run into is I have to figure out how to use the device I choose on my own because the pump companies never have anyone who trains how to use the pump in Alaska.

      1
      4 years ago Log in to Reply
      1. Sherolyn Newell

        Wow. I am impressed. I am not sure I could handle it all on my own. When my endo, who was wonderful, retired, I asked my PCP if he wanted to take over. He said no way, he wasn’t qualified for that. It’s great that yours will do it.

        4 years ago Log in to Reply
    2. George Lovelace

      Tandem ICQ – Best Numbers since 1963 and 0 Hypos

      1
      4 years ago Log in to Reply
    3. TEH

      I picked 3. The Medtronic G3 is a big drawback (-1). Needing 3 or 4 calibrations a day is annoying. Medtronic is coming out with a G4 that should need less cals. We’ll see. The 770G pump is better than the 630G but cant handle my roller coster BGs (-1). I am holding out for the 780G which can add small bolis doses in addition to the basil doses. Come on FDA. I know you have had a lot on your plate but we need this too!

      1
      4 years ago Log in to Reply
      1. Dave Akers

        That system has always had its sensor as the Achilles heal in my opinion. You think they’d of figured it out by now. I tried 670g years ago and was done w/ it after 3 months…

        2
        4 years ago Log in to Reply
      2. Antsy

        I’m right there with you, TEH! Waiting for the 780G to see if it’s worth staying with Medtronic, or going with another manufacturer. My 670 pump’s rails, the part of the pump that holds the belt clips, have cracked and broken off so I’m wearing it in a holster, or waist belt, both of which are suboptimal. I’m hoping the approval to release the 780 comes very soon!

        4 years ago Log in to Reply
    4. Dave Akers

      Just enthralled with New Insulin tech! Dexcom w/ Degludec and technosphere insulin! Off my pump for almost 3 years with better control than ever.
      What really changed was my ability to tighten my glycemic variability. Avg glucose of around 135… and SD is 35mg/dl!
      Liquid RAA, I was only able to get to an SD around 50mg/dl.

      Ironic as I moved to a fixed dose with Inhaled vs. a variable .5u dosing options.

      People need to try this stuff to really understand it!

      1
      4 years ago Log in to Reply
      1. Wanacure

        Huh! Interesting!

        4 years ago Log in to Reply
    5. Joan McGinnis

      43 yrs with T1D and really doing well with diabetes for the length of time I have had it. I read everything and see an endo always. My primary encourages it. My endo tells me I am a great example of an educated person.

      4
      4 years ago Log in to Reply
      1. kristina blake

        Getting the compliment of …an educated person… is rare indeed! Sometimes I think the better we are at managing things, the more the Endo’s feel obligated to disrespect us.

        2
        4 years ago Log in to Reply
    6. Sahran Holiday

      Most of my care is me. Have good endocrinologist, ophthalmologist and primary care, very smart and know how to talk to me.

      1
      4 years ago Log in to Reply
    7. connie ker

      I have had 3 Moderna vaccines and the last one was 3 days ago. I have all of the side effects which seem to be gone today but blood sugars have been very high and hard to knock down. Has any other T1Ds experienced high blood sugars after the live covid vaccine? Moderna is the strongest and the 3rd shot was 1/2 dose but still filled with side effects. Please respond with your comments. Thanks

      4 years ago Log in to Reply
      1. Tracy Jean

        My blood sugar went up a little after my third Pfizer shot, but my worst side effects were a bad headache and nausea. If I have to get a fourth, I think I will try Moderna. Hope your blood sugars come down soon.

        4 years ago Log in to Reply
      2. Antsy

        Connie, I had the Moderna 50% booster ~10 days ago (had the J&J in April). I didn’t notice my sugars being wonky at all. The injection site was like a bug bite until yesterday, but my shoulder never hurt enough to wake me up when I rolled over at night. I have had a transient headache almost every day since, and developed a slight fever for a few days 48hrs after the injection. But I didn’t notice my sugars being affected by either vaccine (and I would have, since my sugars usually start acting up before I even know I’m sick).

        4 years ago Log in to Reply
      3. Wanacure

        Connie, I got Fizer (sp?) ASAP. Also got booster. To prevent side effects (like aches) of any vaccine, take an aspirin or Tylenol 30’ before shot. CDC recommends this.

        4 years ago Log in to Reply
    8. TomH

      I’m not sure what the question is asking.

      4 years ago Log in to Reply
    9. rick phillips

      The 770g is working very well, I look forward to the day when pumps are not needed.

      2
      4 years ago Log in to Reply
      1. Wanacure

        Rick, please let me know when that day arrives. I’m still looking for stem cell or genetics to overcome my self-destructive beta-cell destroying immune response. ( Same problem cancer.)

        4 years ago Log in to Reply
    10. Amanda Barras

      4, but wish I could use my preferred insulin in my preferred pump. Otherwise decent.

      1
      4 years ago Log in to Reply
    11. Kathy Morison

      If the insulin I injected actually absorbed properly I would be the happiest T1 D person on the planet. But that’s my major problem, my sugars keep going up into the 200 and 300 range before I can force the insulin to absorb into my body and cover the sugars. My routine and the amount of insulin I take is spot on, its my body not doing what its supposed to do causing all my issues

      4 years ago Log in to Reply
    12. Becky Hertz

      Not really sure what you’re asking here.

      4 years ago Log in to Reply
    13. Mick Martin

      It’s DEFINITELY better than having to boil a glass syringe and needle prior to each use … and sharpening needles with a stone, and testing urine sugar levels, rather than blood glucose levels, but there’s still a way to go. 😉

      5
      4 years ago Log in to Reply
      1. Steven Gill

        Every time something goes wrong I remember when insulin was first used (from a dog?), prior to that this was also called a wasting disease. They had to limit what a person ate to prevent the dramatic glucose rise, starving the patient. Than I read of boiling the syringes and sharpening the needles which were huge. And here I whimpered about the small needles to the insulin pen (when I was on MDI).

        I self adjusted the pump, stopped using the sensor after the first year due to the costs of supplies (and hit the floor a year ago, laying there 6 hours as my 16 year old Pomeranian and new cat panicked).

        Thankfully when MEDTRONIC offered the newest 770G a few months ago I explained the financial concerns and declined: they offered a program.

        After moving I now see an older physician who generally farms out the TYPE1 diabetics to the nearest hospital, while was terrified of the pump he finally have me back the literature and is now the one providing all my care.

        I’m happy to be diagnosed and living in 2021 was a diabetic. Imagine peeing on a strip to see how much sugar was passing through the kidneys, and the nightmares of injections. No idea how many improvements are coming but I feel so lucky for what have have now, and thankful for what everyone else went through make my life better.

        1
        4 years ago Log in to Reply
    14. Jana Wardian

      It could always be better. I always believe for a cure. Until then, I hope for technology that reduces the work of being a person with diabetes and spending less on diabetes. It’s taken so much over the years.

      1
      4 years ago Log in to Reply
    15. Chip Brookes

      Given the state of technology and knowledge I am very satisfied with my regimen. Could it be better you betcha

      4 years ago Log in to Reply
    16. Bea Anderson

      4- “Overall “care routine.” If it means my care routine as an ideal or sounds good on paper, then yes, satisfied it can produce healthy outcome. If it means satisfied with my flawed human ability to carry out a good plan and system with best tools available, then it drops to a 4. Or the desire for an easier, more perfect care routine…

      I am appreciative having a doable care routine. Here’s the ‘but’. Pump/Sensor costs and continual need to order supplies. Math and science gymnastics to keep insulin in its sweet spot. Insurance concerns. Finding Endo who advocates. Add illness, fatigue, daily schedules, continual interruptions to the best laid plan to have a daily care routine…

      3
      4 years ago Log in to Reply
    17. Ahh Life

      4. Technology and people are improving regularly. The American medical system? Not so much so. (^◡^ ) ( ◡́.◡̀)

      1
      4 years ago Log in to Reply
    18. Molly Jones

      I chose a 4. I am happy with my care routine.
      The things I would improve would be being able to understand the variables affecting my insulin delivery/ sensitivity possibly with the time spent with different classes/ doctors/ nutritionists… getting to know biochemistry better in general. I have never had a Endo have the time to look at my diet/activity/seizure diary.

      4 years ago Log in to Reply
    19. PamK

      I really don’t like using a pump, but so far the doctors I’ve seen since starting on one have refused to let me go back on MDI.

      4 years ago Log in to Reply
    20. Elle

      As soon as I recognized no rndo or primary care dr or staff care or ate even up to date on latest technology I joined T1 support groups. All went virtual now- so I can connect w T1s in Germany( hub of most T1s in world thus most research done) and others such as T1 Sisters and TCOYD and Canada IConnectT1s. I learned things drs NEVER told me. Got books T1 researchers wrote about THINK LIKE A PANCREAS. And T1 Athletes and AgingWithT1. Go to online lecture series with T1 researchers that discuss alpha cell transplants to reverse T1 and easy things like stop eating carbs 6 hours b4 bedtime- gives even and balanced sleep and wake up BG! I just use my drs to refill my Rxs now😀. But my retina specialist must be someone I trust and can work as a team. My Afrezza rep and Dexcom rep are both younger T1s and get great advice from their real T1 experiences too.

      1
      4 years ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied) Cancel reply

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