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    • 8 hours, 49 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 8 hours, 56 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 22 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 58 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 58 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 18 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 14 hours, 19 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 19 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 39 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    Have you recently experienced delays in receiving your T1D prescriptions or device supplies due to product shortages?

    Home > LC Polls > Have you recently experienced delays in receiving your T1D prescriptions or device supplies due to product shortages?
    Previous

    If you have a child with T1D (or at some point you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage the amount of candy they consume? Share what works best for you in the comments!

    Next

    Which of these best describes how often you typically change your lancet?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    28 Comments

    1. BARRY HUNSINGER

      My supply problem is due to MEDICARE’S REDICULOUS requirements of having the notes on my doctor visit.

      8
      2 years ago Log in to Reply
    2. Sahran Holiday

      Not product shortages, Severe delay Dexcom G6 from Express Scripts horrible incompetence and lying. And CIGNA Express Scripts owner. Horrible.

      2
      2 years ago Log in to Reply
    3. Lawrence Stearns

      I’ve had delays, but not because of supply shortages. My delays appear to be my supplier, Edgepark, and possibly Medicare.

      2 years ago Log in to Reply
    4. Mig Vascos

      None at all

      2 years ago Log in to Reply
    5. Alyne Branson

      I haven’t experienced delays because of product shortages, but the pharmacy I get things at is always behind. Even if I proactively call my refill in OR have it on auto-fill, I still have to make the phone call asking why it isn’t ready and they then move it to the front. If I didn’t call, who knows how long it would take.

      1
      2 years ago Log in to Reply
    6. TEH

      Yes I have. I switched from my previous employers health insurance to Meditcare with Gap (G) in August. My first Medtronic ordter has taken a month and they cut the number of boxs from 4 to 3 for 3 months. That is barley enough to to cover 90 days. It took over a month to get the Doctor visit, C peptide test and info to Medicare. But the good news is it is less than half the cost of what the health insurance was running me. The old story, less for less. 😞

      2 years ago Log in to Reply
      1. Miriam Gordon

        I had my endocrinologist write an RX for changing site every 2 days. So now i get enough sets.

        2 years ago Log in to Reply
    7. Janice B

      Not because of product shortages. But due to insurance rules I can only order my Dexcom supplies every 3 months. So I am out of sensors and the transmitter about 7 days while waiting for the new supplies.

      2
      2 years ago Log in to Reply
    8. Ahh Life

      Product shortages? No.

      Medicare and insurance issues? No.

      Postal service issues, lack of truck drivers for UPS and FEDEX? Yes.

      4
      2 years ago Log in to Reply
    9. cynthia jaworski

      I have had to change pharmacies because the distributor of my 1st pharmacy was having trouble supplying my FIASP. Similar problems have occurred with my blood pressuure medication.

      2 years ago Log in to Reply
    10. Louise Robinson

      No delays experienced but there have been substitutions of my preferred Tandem AutoSoft XC infusion sets with the Tandem AutoSoft 90’s which are very similar but more difficult to detach and reattach (e.g. for showering). We were advised several months back that this was being done because of product shortages.

      2 years ago Log in to Reply
      1. Henry Renn

        Ditto.

        2 years ago Log in to Reply
    11. Darlene Oller

      Three day delay on insulin because pharmacy was out of stock

      2 years ago Log in to Reply
    12. Henry Renn

      I have had a lot of problems with timely arrival from CCS. Idk if shortages were involved.

      2 years ago Log in to Reply
    13. Martin Fuhrer

      For some reason the Freestyle Libre 2 reader is not available for purchase from pharmacies in Canada (even from the Abbott Canada website). I had purchased Freestyle Libre 2 sensors in April, and the only way to scan them is by their smartphone app, but my iPhone 6 is not supported. After numerous phone calls to Abbott customer care over the course of several months, I finally was able to get them to send me a Libre 2 reader in October. Now I’m a happy camper. Not sure if this is a supply issue… but it does seem strange that the Libre 2 reader is not yet widely available in Canada.

      1
      2 years ago Log in to Reply
    14. Kathleen Juzenas

      Three day delay in getting CGMs due to 2 week power outage in New Orleans. Maybe a distribution problem rather than production shortage.

      1
      2 years ago Log in to Reply
    15. M Fedor

      No delays over product shortages, but I have experienced delays in getting pump supplies, Dexcom sensors and insulin due to confusion/miscommunication about Medicare requirements.

      2 years ago Log in to Reply
      1. Miriam Gordon

        I had lots of issues with Edgepark getting pump and Dexcom supplies since i went on Medicare. Long waits on the phone too. I switched to CCS medical and have had zero problems. Also they pick up the phone right away. .

        2 years ago Log in to Reply
    16. Donald Cragun

      I haven’t had supply chain issues, but I have had delays caused by Solara. After multiple cases of being without infusion sets, sensors, and/or a transmitter I finally switched to ADS and haven’t had any problem since (so far).

      1
      2 years ago Log in to Reply
      1. Kristine Warmecke

        I had issues with Byram, they never sent the correct infusion set’s. EdgePark has never gotten my supplies wrong, thank heavens. The Tandem rep. knew me by first name because she saved me when Byram refused to send the correct ones – every single time.

        2 years ago Log in to Reply
    17. Natalie Daley

      I take Tresiba and Humologue and Costco pharmacy has had delay issues in getting either or both.

      2 years ago Log in to Reply
    18. PamK

      I was unable to get the infusion sets that I normally use and had to settle for different ones that I do not like.

      2 years ago Log in to Reply
    19. Stacia Wohlford

      Dexcom through diabetes Supply Is taking longer than it used to. By backup supply is seriously dwindling.

      2 years ago Log in to Reply
    20. Kristine Warmecke

      No, not due to supply shortages. Just because of shipping delays, once they’ve been shipped.

      2 years ago Log in to Reply
    21. William Bennett

      MIO Advance infusions sets have been unavailable for months due to supply chain problems. I vastly prefer the over the previous model but I’m told they won’t be available until after the turn of the year.

      2 years ago Log in to Reply
    22. Bea Anderson

      Novolog 100 vial. 3 weeks late from Walmart. With recent availability of generic and according to Medicare guidelines to substitute without patient’s consent or knowledge to generic I was really waiting for generic. I was told back ordered. Insurance delays. Dr delays. Finally pharmacist said it was generic delayed. I asked what my prescription was actually written for and they said Novolog, but they were bound by law to sub generic. I was desperate to get my insulin and asked for Novolog I had always previously received because I was filling reservoirs with last vial and had been waiting 3 weeks and needed some insulin. Finally a fill in part time pharmacist said my Dr did not check the box for “no substitutions” on that prescription. Call Dr who wrote new prescription and finally got Novolog 3 of 4 vials that day. Horrible experience and treatment from pharmacy I’d gone to for 16 years. I checked websites that list drug delays and never found Novolog or it’s generic on a shortage list. I asked for any explanation how this could happen. Real shortage? Medicare coverage? A guideline does exist that says pharmacist are to sub generic for medicare customers. Running up to last reservoir fill was frightening. I made appointment to talk to walgreen pharm manager to better understand what really happened. I wanted them to see how desperate my situation was and know I was a real person who needed better help. I called/emailed every 5 days. Showed printouts of their Response emails said back order, then shortage, then insurance, then dr delay. I verified insurance and dr were not problem. Furthermore my dr office said they knew if no shortage. Walgreens didn’t know if others were having delays with insulin. My husband suspected since Medicare pays so poorly that Walgreens didn’t see me as a customer they wanted any longer. Wherever this perfect storm came from, I had never been so frightened. The Walgreens meeting ended with them admitting their explanations seemed like excuses and getting me at least one vial was always possible. Just not provided. Long, odd story.

      3
      2 years ago Log in to Reply
    23. Henry Renn

      My father bought all the candy from me. I kept non-candy food items to eat as appropriate.

      2 years ago Log in to Reply
    24. Kim Murphy

      When omnipod and dexcom stopped letting customers order directly from them and I had to start getting my supplies from a pharmacy it was a nightmare. The pharmacy got my omnipods a couple of times then told me they couldn’t get them anymore. I finally found a mail order pharmacy that would send me my omnipods but you have to pay for 3 months at a time and that is a couple thousand dollars because marketplace health insurance doesn’t cover diabetic supplies until you spend $6,000.00.

      1
      2 years ago Log in to Reply

    Have you recently experienced delays in receiving your T1D prescriptions or device supplies due to product shortages? Cancel reply

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