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    • 3 hours ago
      eherban1 likes your comment at
      If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
      No. I doubt that there is an interest. I appear to be the anomaly in my family.
    • 1 day, 1 hour ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 3 hours ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 4 hours ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 1 day, 15 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 1 day, 19 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 1 day, 19 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 1 day, 22 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 1 day, 22 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 2 days, 1 hour ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 2 days, 2 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 3 days, 1 hour ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 1 hour ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 2 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 3 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 3 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 3 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 3 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 3 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 4 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 3 days, 19 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 19 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
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    Do you find that staying on top of your T1D routine becomes more difficult when there are fewer hours of daylight? Select all of the statements that apply to you.

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Russell Buckbee

      I can’t know because the glycoslated hemoglobin A1c was not developed yet. N=My BS was high and I had other symptoms, so they put me on insulin.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      When you are diagnosed at the time of the Roman legions, the Visigoths, and the Huns, it’s a bit dicey not having A1c’s invented yet, much less carb to insulin correlations.

      The world has spun a few times and progressed a tad since then.

      8
      2 years ago Log in to Reply
      1. Donna Williams

        Thank you for making me laugh with your comments!!

        2 years ago Log in to Reply
      2. ConnieT1D62

        It’s amazing that some of us T1D dinosaurs have survived for so many years since the ancient days before A1Cs, BG meters, insulin pumps, CGMs, or even disposable injection devices were even thought of. Congratulations to us all for beating the odds! The best is yet to come!!!

        1
        2 years ago Log in to Reply
    3. Lozzy E

      Misdiagnosed as type 2 for 2 years, so by the time they realised I was type 1 my a1c was well under control. Was between 7 and 8 when misdiagnosed though

      1
      2 years ago Log in to Reply
    4. Katherine Kiger

      They didn’t do an A1C, just a simple glucose test (which had to be done in a lab, because this was 1980). The result was over 650. (The nurse dropped the clipboard when they handed her the result.)

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      LADA diagnosed early as type 2. Took two years for correct diagnosis. A1c never above 7. When properly diagnosed A1c always below 6

      2 years ago Log in to Reply
    6. Conniekaycox

      I was in the icu with dka for 4 days. When released from hospital with pump blood sugar still at 500.

      2 years ago Log in to Reply
    7. Richard Vaughn

      I was diagnosed in 1945. My first A1C was 11 in 1980.

      2 years ago Log in to Reply
    8. Patrick Burner

      Forty years ago today I was diagnosed at UVa with a blood sugar of 1173.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Happy Diaversary to you, Patrick!

        2 years ago Log in to Reply
    9. Jennifer Bounds

      My bg was 383 at the clinic before going to the hospital. My first A1c after being diagnosed was 7.3% and I remember my doctor telling me I was doing well.

      2 years ago Log in to Reply
    10. Marthaeg

      16.1 A1C with bg over 500 Oct. ‘20
      Dr asked me how I was feeling. I said ok. Never had the excessive thirst or urination symptoms. She said she would have sent me to the hospital if I had answered anything else. Got sent home with insulin. 😊 Amazing stuff!

      1
      2 years ago Log in to Reply
    11. fletchina

      A1C was not used when I was diagnosed in 1976

      1
      2 years ago Log in to Reply
    12. Amanda Barras

      I was barely 4, I don’t know.

      2 years ago Log in to Reply
    13. Dennis Dacey

      In 1974, almost two decades after my diagnosis, I participated in the study of glycosylated hemoglobin which has become known as HgA1c and currently HbA1c.
      So, at my diagnosis A1c reading was not available.

      2 years ago Log in to Reply
    14. Brenda Lipscomb

      Jan ’68 A1c was not known about. But I do know that my bg was 1040. I was 11 months old.
      I was 16 when I got my first A1c and it was in the “6” range. My Endo said that was excellent, considering it was my first.

      1
      2 years ago Log in to Reply
    15. Kate Kuhn

      A1c was not invented available in 1964, but I was in full fledged acidosis, near coma.

      1
      2 years ago Log in to Reply
    16. Joan Johnson

      It was 1972, and I was not given that information. I wish now that I had it.

      2 years ago Log in to Reply
    17. Pauline M Reynolds

      I don’t remember, but my glucose was 229.

      2 years ago Log in to Reply
    18. Mark Schweim

      They never checked my A1c until a month or two after my T1D diagnosis, but the first time my A1c was tested, it was 3.1, which the doctor said was almost too low even for a non-diabetic.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      In 1955, when I was dx. the A1c lab was still a dream. I didn’t receive an A1c result until the early 1980’s.

      2 years ago Log in to Reply
    20. Bob Durstenfeld

      I was diagnosed in 1956.
      Management of T1D was crude at best. Pork insulin with 20 guage needle
      S, glass syringes and boiling Benedictine solution to check urine for sugar.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I remember my mom having to boil the needle tip and syringe every morning and before each use to sterilize it. Then I got a plastic travel kit that had stainless steel tubes that kept the various parts sterile in isopropyl alcohol.

        1
        2 years ago Log in to Reply
    21. ConnieT1D62

      On December 26 1962 is the day I was officially diagnosed with “Juvenile Diabetes” when i was 8 years old. The A1C measurement wasn’t available but it was probably off the charts. Happy Diavesary to me!

      1
      2 years ago Log in to Reply
    22. Steven Gill

      I’m guessing…my single test I know was a week previous at 399. Started on shots because of ketones, otherwise was naive

      2 years ago Log in to Reply
    23. Joan Benedetto

      My son’s was 10.4. He was diagnosed at 18 months

      2 years ago Log in to Reply
    24. Jennifer Farley

      It was 42 years ago. I have no memory of anything except the instructions given by my family doctor- go home, pack a bag, you will be in the hospital for sometime, WHATEVER YOU DO, EAT NOTHING, that is most important.- I was so confused. I was 13 and weighed about 70 pounds. Skin and bone. So if an A1C was done no one told me.

      2 years ago Log in to Reply
    25. Misi Ballard

      I don’t know my A1c at time of diagnosis (5/04/2014), but my Bg at the time was 585.

      2 years ago Log in to Reply
    26. Jeff Balbirnie

      To my knowledge the test had not been invented/in common usage, quite yet. Soon after, but not then

      2 years ago Log in to Reply
    27. Anita Stokar

      Oops, I put I don’t know, but I believe the test wasn’t available when I was diagnosed.

      2 years ago Log in to Reply

    What was your A1c at the time of your T1D diagnosis? Cancel reply

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