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    • 4 hours, 15 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 4 hours, 17 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 4 hours, 18 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 4 hours, 19 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 4 hours, 27 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 6 hours, 19 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 6 hours, 20 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 6 hours, 22 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 10 hours, 23 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 12 hours, 25 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 13 hours, 7 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 10 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 13 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 13 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 43 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 44 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 57 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 14 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 14 hours, 26 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency?

    Home > LC Polls > On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency?
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    Has your healthcare team ever talked to you about using a connected insulin pen? Also known as a “smart pen”, connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries. Tell us more in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    33 Comments

    1. Ahh Life

      If the sizable nuclear arsenals are ever unleashed and launched, civilizations’ only currency – law and order –collapses. So do the insulin supply chains. Is the possibility worth a 5?

      Seeing the lackeys and foam-at-the-mouth madmen constituting some of today’s world leaders, I’d say: “Yeah, maybe.” 🤔

      5
      2 years ago Log in to Reply
    2. Lawrence S.

      I guess it depends upon what is the national emergency. I gave it a “3”, even though I really believe that it is a “5”. The question is how “concerned” am I. I gave it a “3” because I don’t dwell on it. But, I know in my mind, that when (not if) it happens, I can survive a short term emergency.
      If it goes nuclear. I don’t expect to survive. And, if I do, it will definitely be a “5”. Given what I’ve seen from our leaders in politics, and other leaders around the world, I don’t have much hope.

      3
      2 years ago Log in to Reply
    3. Gary Taylor

      Your email and your actual survey questions are opposites. The email says 1 is the most concerned and 5 is the least concern while the actual question says 1 is the least concerned and 6 is the most concerned. Proof-reading anyone?

      2
      2 years ago Log in to Reply
    4. TEH

      With the tight control Medicare keeps on supplies, few of us have any backup supplies on hand. Medicae allows million dollar fraud but keeps sensors and infusion setups clampwd down. What could go wrong?

      9
      2 years ago Log in to Reply
    5. Jane Cerullo

      I really only worry about insulin as a T1D. Other supplies I could learn to live without. Probably why I tend to hoard supplies when I can

      2
      2 years ago Log in to Reply
    6. Ernie Richmann

      I suppose if there is a supply chain disruption for more than a few months then many people will be screwed- diabetic and not diabetic. I usually have enough supplies for about 3 months.

      2
      2 years ago Log in to Reply
    7. Tina Roberts

      I hoard syringes just in case.

      2 years ago Log in to Reply
    8. jo

      I said yes because if there are no supplies coming in, and my emergency stash runs out, well then that’s it.

      2
      2 years ago Log in to Reply
      1. Bill Kast

        I agree. I was especially worried during COVID, My endo agrees with your comment but he put a number to it. ” You would not last 24 hours
        without insulin…”

        2 years ago Log in to Reply
    9. Bob Durstenfeld

      I am concerned that my DME supplier is based in Florida during hurricane season. So far it has not been an issue. I try and keep at least a two week buffer.

      2 years ago Log in to Reply
    10. jamesmpii

      I hoard insulin pens. I am good for about 6 months, just in case I lost insurance. I have not really thought about a national emergency.

      2 years ago Log in to Reply
    11. Marty

      I try hard not to borrow trouble from the future. Bad things have happened and more bad things will happen that are beyond my control. I can’t avoid fully experiencing awful things fully when they happen, of course. Why suffer in anticipation too? I do try to be reasonably prepared by stockpiling supplies to the extent that I can.

      2
      2 years ago Log in to Reply
    12. Dawn Adams

      I have responded with a 5 as this would be a worst case scenario of more than 10 weeks for insulin and 6 weeks for glucose testing technology including test strips.

      2 years ago Log in to Reply
    13. Amanda Barras

      I stock pile supplies to make this less stressful. But in dire situations limitation on supplies would become stressful.

      2 years ago Log in to Reply
    14. mlettinga

      Thanks Gary, I missed the 1 most and 5 least. I checked 5 by mistake and looking at responses it was a poorly written question as most of Their questions have 5 as most or highest. Good catch.

      1
      2 years ago Log in to Reply
    15. T1diabetic

      I have a good supply of insulin and syringes—I have lived with T1D for over 51 years now, so before all the technology available today.

      2 years ago Log in to Reply
    16. Molly Jones

      it depends on what the cause of the emergency is, how many nearby countries are affected, and how long it lasts.
      This is not something that bothers my thoughts, but I don’t mind having back up supplies.

      2
      2 years ago Log in to Reply
    17. Becky Hertz

      Well, I wasn’t concerned before I read this question! Thankfully, I’m a D supply hoarder.

      2 years ago Log in to Reply
      1. Becky Hertz

        Oops, I said 4 but I guess I meant 2.

        2 years ago Log in to Reply
    18. Mick Martin

      I don’t know … at least, until such a national emergency occurring with regards to disruption of diabetic supplies.

      2 years ago Log in to Reply
    19. TomH

      I’m sure others will mention this, but in the text you say “1 being the most concerned” and in the answer list you say “5 (extremely concerned)”. Any responses you get are suspect and this question should be thrown out! It’s simple things like this that cause me pause and wonder who your editors are.

      1
      2 years ago Log in to Reply
    20. Lynn Smith

      I selected 4 because I want to believe somehow things would work out to get my supplies. Although I know it would probably mean changing how I manage my diabetes—not using CGM and pump and going back to MDI. But I have never thought about this potential situation until now.

      2 years ago Log in to Reply
    21. KIMBERELY SMITH

      Extremely

      2 years ago Log in to Reply
    22. KSannie

      I used to use a syringe for about 2 months before it would get dull. So, although I now use and prefer a pump, in case of a potential national emergency, the thing I would worry about most is getting insulin. I can use syringes instead of a pump. I can use any testing form available, even urine test strips if they are still made, or drinking my own urine to see whether it tastes sweet. But insulin is the one thing I cannot live without.

      1
      2 years ago Log in to Reply
    23. Dennis Dacey

      This is something about which I’m not overly concerned, so I selected “3” to be neutral; then of course, I’m not young and looking forward to a long life. Younger folks should prepare and learn effective diabetes management without some of the awesome tools we now have.

      I could get along with a reusable [glass] syringe, a couple of needles, and a vial of insulin – any formulation. I lived with diabetes for decades before there was any such thing as a digital blood glucose meter. Right now, I enjoy having every gadget available and just hope that my body awareness hasn’t dulled too much.

      1
      2 years ago Log in to Reply
    24. David Hedeen

      Scored 3, since try keeping 3 month supply back up even though not all back ups have current dates

      2 years ago Log in to Reply
    25. Janis Senungetuk

      This question needs to be rewritten so it corresponds with the assigned numbers.

      2
      2 years ago Log in to Reply
    26. ConnieT1D62

      Three. The only thing that would concern me about a supply chain disruption is having access to bottled insulin formulations. After living with T1D for 62+ years I can adapt and if forced into a devastating national emergency, I can figure out how use whatever insulin and supplies are available. Right now I have about a 12 to 14 month stash of supplies. Without some form of usable insulin I wouldn’t survive for very long.

      2 years ago Log in to Reply
    27. Bill Williams

      What do you possibly expect to learn from this question? Quintessentially dumb.

      2 years ago Log in to Reply
    28. Lenora Ventura

      I chose 4 because I tend to be “overstocked” 6 mo. to 1yr on supplies and medications. I’ve accomplished this over time and planned for it due to the times we are living in

      2 years ago Log in to Reply
    29. Steven Gill

      I think anyone who doesn’t consider lack of supplies is foolish: if a zombie apocalypse happens I know I’ll be a “first line” casualty. Always had insurance, sacrificed hours (overtime), drove older vehicles, took active steps to ensure my insulin was here. Not necessarily paranoid, did my research (after retiring purchased inexpensive stuff through GoodRX: Wal-Mart, and Amazon, now just got my VA card and first 2 vials of insulin from the VA). I’m taking active steps for my health, not “ptsd” paranoid, but as an adult planning.

      Until the zombies take over, than I’ll just grab a huge piece of cake and case of Coors, go out with a bang?

      2 years ago Log in to Reply
    30. Michael Fishman

      Extremely concerned!

      2 years ago Log in to Reply
    31. PamK

      I gave this a 3 only because I feel like I should be concerned. I am not really though, because I always have extra supplies on hand.

      2 years ago Log in to Reply

    On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency? Cancel reply

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