Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency?

    Home > LC Polls > On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency?
    Previous

    For caregivers of children with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Next

    Has your healthcare team ever talked to you about using a connected insulin pen? Also known as a “smart pen”, connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries. Tell us more in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 day ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    33 Comments

    1. Ahh Life

      If the sizable nuclear arsenals are ever unleashed and launched, civilizations’ only currency – law and order –collapses. So do the insulin supply chains. Is the possibility worth a 5?

      Seeing the lackeys and foam-at-the-mouth madmen constituting some of today’s world leaders, I’d say: “Yeah, maybe.” 🤔

      5
      2 years ago Log in to Reply
    2. Lawrence S.

      I guess it depends upon what is the national emergency. I gave it a “3”, even though I really believe that it is a “5”. The question is how “concerned” am I. I gave it a “3” because I don’t dwell on it. But, I know in my mind, that when (not if) it happens, I can survive a short term emergency.
      If it goes nuclear. I don’t expect to survive. And, if I do, it will definitely be a “5”. Given what I’ve seen from our leaders in politics, and other leaders around the world, I don’t have much hope.

      3
      2 years ago Log in to Reply
    3. Gary Taylor

      Your email and your actual survey questions are opposites. The email says 1 is the most concerned and 5 is the least concern while the actual question says 1 is the least concerned and 6 is the most concerned. Proof-reading anyone?

      2
      2 years ago Log in to Reply
    4. TEH

      With the tight control Medicare keeps on supplies, few of us have any backup supplies on hand. Medicae allows million dollar fraud but keeps sensors and infusion setups clampwd down. What could go wrong?

      9
      2 years ago Log in to Reply
    5. Jane Cerullo

      I really only worry about insulin as a T1D. Other supplies I could learn to live without. Probably why I tend to hoard supplies when I can

      2
      2 years ago Log in to Reply
    6. Ernie Richmann

      I suppose if there is a supply chain disruption for more than a few months then many people will be screwed- diabetic and not diabetic. I usually have enough supplies for about 3 months.

      2
      2 years ago Log in to Reply
    7. Tina Roberts

      I hoard syringes just in case.

      2 years ago Log in to Reply
    8. jo

      I said yes because if there are no supplies coming in, and my emergency stash runs out, well then that’s it.

      2
      2 years ago Log in to Reply
      1. Bill Kast

        I agree. I was especially worried during COVID, My endo agrees with your comment but he put a number to it. ” You would not last 24 hours
        without insulin…”

        2 years ago Log in to Reply
    9. Bob Durstenfeld

      I am concerned that my DME supplier is based in Florida during hurricane season. So far it has not been an issue. I try and keep at least a two week buffer.

      2 years ago Log in to Reply
    10. jamesmpii

      I hoard insulin pens. I am good for about 6 months, just in case I lost insurance. I have not really thought about a national emergency.

      2 years ago Log in to Reply
    11. Marty

      I try hard not to borrow trouble from the future. Bad things have happened and more bad things will happen that are beyond my control. I can’t avoid fully experiencing awful things fully when they happen, of course. Why suffer in anticipation too? I do try to be reasonably prepared by stockpiling supplies to the extent that I can.

      2
      2 years ago Log in to Reply
    12. Dawn Adams

      I have responded with a 5 as this would be a worst case scenario of more than 10 weeks for insulin and 6 weeks for glucose testing technology including test strips.

      2 years ago Log in to Reply
    13. Amanda Barras

      I stock pile supplies to make this less stressful. But in dire situations limitation on supplies would become stressful.

      2 years ago Log in to Reply
    14. mlettinga

      Thanks Gary, I missed the 1 most and 5 least. I checked 5 by mistake and looking at responses it was a poorly written question as most of Their questions have 5 as most or highest. Good catch.

      1
      2 years ago Log in to Reply
    15. T1diabetic

      I have a good supply of insulin and syringes—I have lived with T1D for over 51 years now, so before all the technology available today.

      2 years ago Log in to Reply
    16. Molly Jones

      it depends on what the cause of the emergency is, how many nearby countries are affected, and how long it lasts.
      This is not something that bothers my thoughts, but I don’t mind having back up supplies.

      2
      2 years ago Log in to Reply
    17. Becky Hertz

      Well, I wasn’t concerned before I read this question! Thankfully, I’m a D supply hoarder.

      2 years ago Log in to Reply
      1. Becky Hertz

        Oops, I said 4 but I guess I meant 2.

        2 years ago Log in to Reply
    18. Mick Martin

      I don’t know … at least, until such a national emergency occurring with regards to disruption of diabetic supplies.

      2 years ago Log in to Reply
    19. TomH

      I’m sure others will mention this, but in the text you say “1 being the most concerned” and in the answer list you say “5 (extremely concerned)”. Any responses you get are suspect and this question should be thrown out! It’s simple things like this that cause me pause and wonder who your editors are.

      1
      2 years ago Log in to Reply
    20. Lynn Smith

      I selected 4 because I want to believe somehow things would work out to get my supplies. Although I know it would probably mean changing how I manage my diabetes—not using CGM and pump and going back to MDI. But I have never thought about this potential situation until now.

      2 years ago Log in to Reply
    21. KIMBERELY SMITH

      Extremely

      2 years ago Log in to Reply
    22. KSannie

      I used to use a syringe for about 2 months before it would get dull. So, although I now use and prefer a pump, in case of a potential national emergency, the thing I would worry about most is getting insulin. I can use syringes instead of a pump. I can use any testing form available, even urine test strips if they are still made, or drinking my own urine to see whether it tastes sweet. But insulin is the one thing I cannot live without.

      1
      2 years ago Log in to Reply
    23. Dennis Dacey

      This is something about which I’m not overly concerned, so I selected “3” to be neutral; then of course, I’m not young and looking forward to a long life. Younger folks should prepare and learn effective diabetes management without some of the awesome tools we now have.

      I could get along with a reusable [glass] syringe, a couple of needles, and a vial of insulin – any formulation. I lived with diabetes for decades before there was any such thing as a digital blood glucose meter. Right now, I enjoy having every gadget available and just hope that my body awareness hasn’t dulled too much.

      1
      2 years ago Log in to Reply
    24. David Hedeen

      Scored 3, since try keeping 3 month supply back up even though not all back ups have current dates

      2 years ago Log in to Reply
    25. Janis Senungetuk

      This question needs to be rewritten so it corresponds with the assigned numbers.

      2
      2 years ago Log in to Reply
    26. ConnieT1D62

      Three. The only thing that would concern me about a supply chain disruption is having access to bottled insulin formulations. After living with T1D for 62+ years I can adapt and if forced into a devastating national emergency, I can figure out how use whatever insulin and supplies are available. Right now I have about a 12 to 14 month stash of supplies. Without some form of usable insulin I wouldn’t survive for very long.

      2 years ago Log in to Reply
    27. Bill Williams

      What do you possibly expect to learn from this question? Quintessentially dumb.

      2 years ago Log in to Reply
    28. Lenora Ventura

      I chose 4 because I tend to be “overstocked” 6 mo. to 1yr on supplies and medications. I’ve accomplished this over time and planned for it due to the times we are living in

      2 years ago Log in to Reply
    29. Steven Gill

      I think anyone who doesn’t consider lack of supplies is foolish: if a zombie apocalypse happens I know I’ll be a “first line” casualty. Always had insurance, sacrificed hours (overtime), drove older vehicles, took active steps to ensure my insulin was here. Not necessarily paranoid, did my research (after retiring purchased inexpensive stuff through GoodRX: Wal-Mart, and Amazon, now just got my VA card and first 2 vials of insulin from the VA). I’m taking active steps for my health, not “ptsd” paranoid, but as an adult planning.

      Until the zombies take over, than I’ll just grab a huge piece of cake and case of Coors, go out with a bang?

      2 years ago Log in to Reply
    30. Michael Fishman

      Extremely concerned!

      2 years ago Log in to Reply
    31. PamK

      I gave this a 3 only because I feel like I should be concerned. I am not really though, because I always have extra supplies on hand.

      2 years ago Log in to Reply

    On a scale of 1-5 (1 being the most concerned, and 5 being the least concerned), how concerned are you about supply chain disruptions of diabetes supplies during a potential national emergency? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]