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    • 14 hours, 41 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 42 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 33 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 16 hours ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 13 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 12 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 34 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 36 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 43 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 8 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

    Home > LC Polls > With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. Molly Jones

      I chose other as I do not need to eat at scheduled times, but I cannot go for extended times without eating, say more than five hours unless I want hypoglycemia. The longer I have T1D, I am becoming more and more sensitive to insulin. I need to change my basals, ratios and sensitivites often.

      2 years ago Log in to Reply
    2. Carol Meares

      I never eat on a prescribed schedule. My BS may certainly be affected by that as it does make things more difficult to manage probably. But I do have my own general rhythm and foods that I eat that keep me on track. I have a pretty good TIR and A1c. I would like less ups and downs within that range.

      2 years ago Log in to Reply
    3. Ahh Life

      No. A 24-houe fast I would recommend for the tSlim control IQ in order to see how good / accurate the basal rate is. I can literally and actually eat any time of the day or night. Control IQ seems to sense small amounts of carb intake. Big amounts, of course, must be bolused for. ⚡ 🤳

      2
      2 years ago Log in to Reply
    4. Kathleen Amper

      My basals are dialed in perfectly and control IQ on my tslim seems to correct any extra I might have. Can eat or not if I want to without a problem.

      3
      2 years ago Log in to Reply
    5. ConnieT1D62

      No. With Control IQ I generally eat three time a day when I my body signals I am hungry and it needs replenishment. While engaged in work, household, or creative projects I often do not need to eat for several hours until I do feel hungry. When I do eat, I chose healthy food sources that provide balanced nutrition for energy and well-being.

      1
      2 years ago Log in to Reply
      1. ConnieT1D62

        And some days I do not eat at all – just drink water – and I do fine with that.

        1
        2 years ago Log in to Reply
    6. connie ker

      I think a lot of this scheduled eating depends on if you’re on a pump or doing MDI. I do MDI which requires a more scheduled lifestyle.

      2 years ago Log in to Reply
    7. Anthony Harder

      Insulin’s have gotten much better overtime and I am not as tightly bound to a clock as I once was. However, eating is more than just an action controlled by T1D. It’s also patterns and habits. If one usually eats lunch at noon, one can deviate, but doing so significantly or continually, is difficult with or without T1D.

      2 years ago Log in to Reply
    8. Daniel Bestvater

      I use the Tandem control IQ which does a good job of keeping your TIR and A1c okay.
      But if you are looking for tighter control you still need to prebolus watch carbs …….

      2 years ago Log in to Reply
    9. Patricia Dalrymple

      I definitely notice on weekend if I eat breakfast later my BG is higher, which is odd because when I went on the pump, one of the things they sell you on us you no longer have to eat on a prescribed time period. I haven’t noticed lunch because I am pretty consistent there. The longer I wait to eat dinner, the more risk of a hypo. That makes sense because I don’t often think to adjust the basal rate. I don’t have a CGM but have tried them twice and both times couldn’t get them calibrated, but there have been improvements so time to try again.

      2 years ago Log in to Reply
    10. Keira Thurheimer

      If I dont eat breakfast and bolus at my usual time in the morning, my bg starts to rise quickly. It has always done this, despite efforts to fine-tune my basal rate for that time.

      1
      2 years ago Log in to Reply
    11. Mark Schweim

      I have never followed any set meal schedule and instead always let my blood glucose levels determine when or if I eat so I had to say “OTHER” since I have never had any set meal schedule.

      2 years ago Log in to Reply
    12. Nevin Bowman

      Only if I eat a large meal very late in the evening.

      1
      2 years ago Log in to Reply
    13. William Bennett

      The question is basically about basal insulin management, which has undergone a sea change during the 38 yrs I’ve had T1. The single most fundamental and life-altering change I’ve experienced in that time was the introduction of a true (or close enough) basal insulin, Lantus, and the advent of basal-bolus MDI using Lantus and Novolog. Previously we’d used the R/NPH regimen, which was maybe a step in the right direction from the old one-shot-per-day Lente, but NPH was not a basal insulin as such and doing MDI that way was, well, kind of nuts. A dx of T1 was a sentence to being shackled to a medication and the routine IT imposed on you. You could find yourself in danger if for some reason you couldn’t eat at the right time, and it’s hard to communicate what that was like, 24/7, if you didn’t live through it. I called it the Eat Now Or DIE regimen. Those of us who use a CGM to do pre-bolusing can think of R/NPH as the blind-folded Russian roulette version of pre-bolusing. You knew when the effect was SUPPOSED to come on, and you hoped like heck it more or less did what it was supposed to and you were sitting down with your plateful in front of you when it did. The first real flat-effect (close enough anyway) basal insulin was like being let out of prison after 20 years of that. I could eat a late lunch and not die! WOW! Pumps were a step up from that, allowing you to set different basal rates during the day rather than just a single shot, and closed-loop systems (when they work right, which is not a given) are an advance over standard pumps, but it was really Lantus that was the threshold moment. Before then, “Eat what you want and bolus for it” would have been incomprehensible advice. Everything since then–pumps, CGM, looping–has just been a refinement, allowing us to modify our medication to fit our lives and not the other way around.

      I realize this is a little long, but “eating to your insulin schedule” is a bit of a trigger for me!

      3
      2 years ago Log in to Reply
      1. Lucia Maya

        I totally relate, having lived with type 1 for 45 years! Thanks for saying it so well. I now use the tslim with CIQ and it gives me a lot of freedom!

        2 years ago Log in to Reply
    14. Sue Martin

      Yes, and I like to have the tools to track it better, like a CGM. I like the new tools and insulin that allows me to adjust my eating pattern as needed. I really dislike being on insulin that required me to eat on a specific schedule to meet its peaks. Like if I didn’t eat a snack before bed I would experience a low during the night and have to get up to correct it. Now I can eat, or not, as know where I stand.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I hear you and agree with everything you said. In the days before the use of T1D tech tools & new insulins we always had to “feed the insulin” whether we were hungry or wanted to eat or not.

        2 years ago Log in to Reply
    15. Tod Herman

      Once upon a time I worked in an office with an 8 to 5 daily routine. On my pump it was easy to set the basal rates to fit that routine. Since I retired, my daily schedule changes with the wind (I now cook in a small restaurant for fun) and my meals are often different and sometimes unique, which makes estimating carbs challenging. As such it’s difficult to set a basal rate that works with my flexible schedule. My pump needs a wind sock to try and keep up!

      1
      2 years ago Log in to Reply
    16. Ernie Richmann

      I have experienced increasing blood sugar readings if I skip breakfast. Overall it is my activity schedule that influences my blood sugar more than diet. I usually am very active during most of the day. If I have an unusually low activity morning or day- even with less carb intake- I run in more difficult management staying non a desired range of blood sugar levels.

      2 years ago Log in to Reply
    17. M C

      When I was on daily injections, the answer would have been ‘yes’, but since going on the pump, I no longer have an issue – Thus the current answer of ‘No’.

      1
      2 years ago Log in to Reply
    18. John McHenery

      Not sure. Changed schedule is usually associated with dietary change so whilst levels are usually impacted not sure if it is the diet or schedule change which is the cause.

      2 years ago Log in to Reply
    19. Brandon Denson

      When I go long extended periods of time without eating is when I can tell a big difference in my blood glucose levels. The tools come in handy so I have something to go back and reference my days against.

      2 years ago Log in to Reply
    20. Janice B

      Since I have been on a pump and have my basal rates set right I am no longer a slave to the clock for eating.

      3
      2 years ago Log in to Reply
    21. Beth Franz

      With summer here I seemingly tend to eat less cooked/heavy food, more cool fresh salads, and much less at dinner time which has certainly impacted my basal need at night. Had a few mild lows and corrected with a bit less basal insulin in my evening MDI shot.

      2 years ago Log in to Reply
    22. Cheryl Seibert

      If I do not eat at all, I can achieve 95-100% in range. Sporadic eating does not seem to cause any difficulties, it is just eating in general. Carb Ratios, Insulin Sensitivity, etc are correct. Major causes are site absorption (most due to 54 yrs of scar tissue) and stress.

      2 years ago Log in to Reply

    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day? Cancel reply

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