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    • 1 hour, 31 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 31 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 46 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 47 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 17 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 17 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 14 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

    Home > LC Polls > With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?
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    25 Comments

    1. Molly Jones

      I chose other as I do not need to eat at scheduled times, but I cannot go for extended times without eating, say more than five hours unless I want hypoglycemia. The longer I have T1D, I am becoming more and more sensitive to insulin. I need to change my basals, ratios and sensitivites often.

      2 years ago Log in to Reply
    2. Carol Meares

      I never eat on a prescribed schedule. My BS may certainly be affected by that as it does make things more difficult to manage probably. But I do have my own general rhythm and foods that I eat that keep me on track. I have a pretty good TIR and A1c. I would like less ups and downs within that range.

      2 years ago Log in to Reply
    3. Ahh Life

      No. A 24-houe fast I would recommend for the tSlim control IQ in order to see how good / accurate the basal rate is. I can literally and actually eat any time of the day or night. Control IQ seems to sense small amounts of carb intake. Big amounts, of course, must be bolused for. ⚔ 🤳

      2
      2 years ago Log in to Reply
    4. Kathleen Amper

      My basals are dialed in perfectly and control IQ on my tslim seems to correct any extra I might have. Can eat or not if I want to without a problem.

      3
      2 years ago Log in to Reply
    5. ConnieT1D62

      No. With Control IQ I generally eat three time a day when I my body signals I am hungry and it needs replenishment. While engaged in work, household, or creative projects I often do not need to eat for several hours until I do feel hungry. When I do eat, I chose healthy food sources that provide balanced nutrition for energy and well-being.

      1
      2 years ago Log in to Reply
      1. ConnieT1D62

        And some days I do not eat at all – just drink water – and I do fine with that.

        1
        2 years ago Log in to Reply
    6. connie ker

      I think a lot of this scheduled eating depends on if you’re on a pump or doing MDI. I do MDI which requires a more scheduled lifestyle.

      2 years ago Log in to Reply
    7. Anthony Harder

      Insulin’s have gotten much better overtime and I am not as tightly bound to a clock as I once was. However, eating is more than just an action controlled by T1D. It’s also patterns and habits. If one usually eats lunch at noon, one can deviate, but doing so significantly or continually, is difficult with or without T1D.

      2 years ago Log in to Reply
    8. Daniel Bestvater

      I use the Tandem control IQ which does a good job of keeping your TIR and A1c okay.
      But if you are looking for tighter control you still need to prebolus watch carbs …….

      2 years ago Log in to Reply
    9. Patricia Dalrymple

      I definitely notice on weekend if I eat breakfast later my BG is higher, which is odd because when I went on the pump, one of the things they sell you on us you no longer have to eat on a prescribed time period. I haven’t noticed lunch because I am pretty consistent there. The longer I wait to eat dinner, the more risk of a hypo. That makes sense because I don’t often think to adjust the basal rate. I don’t have a CGM but have tried them twice and both times couldn’t get them calibrated, but there have been improvements so time to try again.

      2 years ago Log in to Reply
    10. Keira Thurheimer

      If I dont eat breakfast and bolus at my usual time in the morning, my bg starts to rise quickly. It has always done this, despite efforts to fine-tune my basal rate for that time.

      1
      2 years ago Log in to Reply
    11. Mark Schweim

      I have never followed any set meal schedule and instead always let my blood glucose levels determine when or if I eat so I had to say “OTHER” since I have never had any set meal schedule.

      2 years ago Log in to Reply
    12. Nevin Bowman

      Only if I eat a large meal very late in the evening.

      1
      2 years ago Log in to Reply
    13. William Bennett

      The question is basically about basal insulin management, which has undergone a sea change during the 38 yrs I’ve had T1. The single most fundamental and life-altering change I’ve experienced in that time was the introduction of a true (or close enough) basal insulin, Lantus, and the advent of basal-bolus MDI using Lantus and Novolog. Previously we’d used the R/NPH regimen, which was maybe a step in the right direction from the old one-shot-per-day Lente, but NPH was not a basal insulin as such and doing MDI that way was, well, kind of nuts. A dx of T1 was a sentence to being shackled to a medication and the routine IT imposed on you. You could find yourself in danger if for some reason you couldn’t eat at the right time, and it’s hard to communicate what that was like, 24/7, if you didn’t live through it. I called it the Eat Now Or DIE regimen. Those of us who use a CGM to do pre-bolusing can think of R/NPH as the blind-folded Russian roulette version of pre-bolusing. You knew when the effect was SUPPOSED to come on, and you hoped like heck it more or less did what it was supposed to and you were sitting down with your plateful in front of you when it did. The first real flat-effect (close enough anyway) basal insulin was like being let out of prison after 20 years of that. I could eat a late lunch and not die! WOW! Pumps were a step up from that, allowing you to set different basal rates during the day rather than just a single shot, and closed-loop systems (when they work right, which is not a given) are an advance over standard pumps, but it was really Lantus that was the threshold moment. Before then, “Eat what you want and bolus for it” would have been incomprehensible advice. Everything since then–pumps, CGM, looping–has just been a refinement, allowing us to modify our medication to fit our lives and not the other way around.

      I realize this is a little long, but “eating to your insulin schedule” is a bit of a trigger for me!

      3
      2 years ago Log in to Reply
      1. Lucia Maya

        I totally relate, having lived with type 1 for 45 years! Thanks for saying it so well. I now use the tslim with CIQ and it gives me a lot of freedom!

        2 years ago Log in to Reply
    14. Sue Martin

      Yes, and I like to have the tools to track it better, like a CGM. I like the new tools and insulin that allows me to adjust my eating pattern as needed. I really dislike being on insulin that required me to eat on a specific schedule to meet its peaks. Like if I didn’t eat a snack before bed I would experience a low during the night and have to get up to correct it. Now I can eat, or not, as know where I stand.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I hear you and agree with everything you said. In the days before the use of T1D tech tools & new insulins we always had to “feed the insulin” whether we were hungry or wanted to eat or not.

        2 years ago Log in to Reply
    15. Tod Herman

      Once upon a time I worked in an office with an 8 to 5 daily routine. On my pump it was easy to set the basal rates to fit that routine. Since I retired, my daily schedule changes with the wind (I now cook in a small restaurant for fun) and my meals are often different and sometimes unique, which makes estimating carbs challenging. As such it’s difficult to set a basal rate that works with my flexible schedule. My pump needs a wind sock to try and keep up!

      1
      2 years ago Log in to Reply
    16. Ernie Richmann

      I have experienced increasing blood sugar readings if I skip breakfast. Overall it is my activity schedule that influences my blood sugar more than diet. I usually am very active during most of the day. If I have an unusually low activity morning or day- even with less carb intake- I run in more difficult management staying non a desired range of blood sugar levels.

      2 years ago Log in to Reply
    17. M C

      When I was on daily injections, the answer would have been ‘yes’, but since going on the pump, I no longer have an issue – Thus the current answer of ‘No’.

      1
      2 years ago Log in to Reply
    18. John McHenery

      Not sure. Changed schedule is usually associated with dietary change so whilst levels are usually impacted not sure if it is the diet or schedule change which is the cause.

      2 years ago Log in to Reply
    19. Brandon Denson

      When I go long extended periods of time without eating is when I can tell a big difference in my blood glucose levels. The tools come in handy so I have something to go back and reference my days against.

      2 years ago Log in to Reply
    20. Janice B

      Since I have been on a pump and have my basal rates set right I am no longer a slave to the clock for eating.

      3
      2 years ago Log in to Reply
    21. Beth Franz

      With summer here I seemingly tend to eat less cooked/heavy food, more cool fresh salads, and much less at dinner time which has certainly impacted my basal need at night. Had a few mild lows and corrected with a bit less basal insulin in my evening MDI shot.

      2 years ago Log in to Reply
    22. Cheryl Seibert

      If I do not eat at all, I can achieve 95-100% in range. Sporadic eating does not seem to cause any difficulties, it is just eating in general. Carb Ratios, Insulin Sensitivity, etc are correct. Major causes are site absorption (most due to 54 yrs of scar tissue) and stress.

      2 years ago Log in to Reply

    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day? Cancel reply

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