Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 5 hours, 53 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 7 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 7 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 9 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 10 hours, 16 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 39 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 37 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 7 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 7 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 13 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?

    Home > LC Polls > While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?
    Previous

    Which of the following best describes your connection to the diabetes community? Select all that apply!

    Next

    Have you ever accidentally given yourself an injection of rapid-acting insulin instead of a long-acting (or vice versa)? Share in the comments how you handled this situation.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    35 Comments

    1. D-connect

      MS

      3 years ago Log in to Reply
    2. Ahh Life

      Zero.

      17 blood related aunts/uncles. 4 grandparents. (I knew 3 of them).

      Just my luck as the only winner of the heterozygote draw. Sigh!

      3
      3 years ago Log in to Reply
      1. Kris Sykes-David

        Weird, huh ?

        3 years ago Log in to Reply
    3. Jen Farley

      My mother was adopted and my father was raised by his grandmother. We know who my fathers mother was but unsure who the father was. Holes all over that tree. So, I am unable to rely on any family history.

      3 years ago Log in to Reply
    4. Janice Bohn

      My grandfather’s sister was T1D her diagnosis came not long after insulin was first discovered.

      3 years ago Log in to Reply
    5. Daniel Bestvater

      Father; T1D, + rheumatoid arthritis
      Brother 1; hypothyroidism, celiac disease
      Brother 2; Crohn’s disease
      Sister; rheumatoid arthritis

      3 years ago Log in to Reply
    6. Eva

      None!
      Although my dad’s half sister has hypothyroidism but she is a dentist. Soo… maybe too much fluoride caused damage to her thyroid gland. IDK.

      3 years ago Log in to Reply
      1. Kris Sykes-David

        I didn’t realize that was a thing. I grew up in So CA, have excellent teeth, poor gums and Hypothyroidism! Oh, and LADA.

        3 years ago Log in to Reply
    7. Sherolyn Newell

      Two sisters with celiac disease.

      3 years ago Log in to Reply
    8. Amy Jo

      All of the women in my mothers immediate family have autoimmune thyroid disorder. I’ve tested positive for those antibodies but it hasn’t manifested clinically (yet)

      3 years ago Log in to Reply
    9. cynthia jaworski

      If arthritis counts, everybody had it, except me.

      1
      3 years ago Log in to Reply
    10. AnitaS

      I am not sure of more distant relatives except one cousin who had type-1 diabetes, but my father has rheumatoid arthritis and my brother has Croehn’s disease

      3 years ago Log in to Reply
    11. Liz Avery

      I said I am not sure. One of my sisters has hypothyroid, and we all have arthritis.

      3 years ago Log in to Reply
    12. Carol Meares

      My sister has T1D and takes Thyroid meds.
      My Mom and Dad took thyroid medicine.
      Mom had Sjogrens.

      3 years ago Log in to Reply
      1. Carol Meares

        I also have two cousins once removed who have T1D

        3 years ago Log in to Reply
    13. Kris Sykes-David

      I answered not sure. My mom and sister and I all have hypothyroidism, but I don’t know if it is autoimmune. No one else in my family has any type of diabetes. Neither grandparents, parents or siblings. Weird.

      3 years ago Log in to Reply
    14. Yaffa Steubinger

      My two kids got my Hashimoto’s Thyroiditis and two of my grandkids got my T1. 🙁

      3 years ago Log in to Reply
    15. Janis Senungetuk

      Answering re. autoimmune conditions, my daughter has lupus erythematosus as did my paternal grandfather and aunt.

      1
      3 years ago Log in to Reply
      1. Twinniepoo74

        I also have Lupus and MS autoimmune disease is the worst but praying for you daughter.

        3 years ago Log in to Reply
    16. Twinniepoo74

      My mom has celiac. My dad has type 2 diabetes. My cousin has MS and my other cousin has fibermoylogia

      3 years ago Log in to Reply
    17. Patricia Kilwein

      I’m not sure about what reachers say is true or not….my father had T1D, mother T2D…sister, 2 brothers, niece all battling diabetes. Typing is what is crucial to how to combat this disease! But unfortunately it isn’t the first step in treatment. Myself, I was first diagnosed as T2D even with my history. Years later was tested for T1D markers. Was positive for them. Things would have gone much differently if I was tested sooner! Thankfully I have a really great Endo and care team now.

      3 years ago Log in to Reply
    18. Mig Vascos

      There are several relatives with hypothyroidism.

      3 years ago Log in to Reply
    19. Emily Thompson

      I (mom to T1D) has Raynaurds, grandmother had Hemochromotosis

      3 years ago Log in to Reply
      1. Eva

        I think Hemochromatosis is genetic. You’re family is part of the iron tribe ; – )

        3 years ago Log in to Reply
    20. Steven Gill

      A younger brother with T1, an older sister with thyroid problems, younger sister with chrones and rheumatoid arthritis. Both sisters died of cancer (older breast cancer, younger leukemia). A maternal grandmother took insulin, assuming Type 1 but no-one has any knowledge: she passed when I was like 5-6, but I remember her real thin, practically blind. Several Type 2’s, while more socio/environmental but could be a gene tendency towards that (insulin dependent paternal grandmother and a well controlled diet controlled brother). Both grandmothers passed away happy and old but had other health concerns.

      3 years ago Log in to Reply
    21. Becky Cain

      My sister had lupus.

      3 years ago Log in to Reply
    22. jo

      I currently have 4 including type 1, my two sisters both have Celiac disease and Graves disease. My brother had Type 1 my nephew has type 1. I have cousins with MS and Graves disease also.

      3 years ago Log in to Reply
    23. kilupx

      Yes, my father and his sister had really serious psoriasis and my sibling had T1D.

      3 years ago Log in to Reply
    24. Jneticdiabetic

      Yes. I have T1D and hashimoto’s (autoimmune hypothyroid).
      In my immediate family, my mother also has T1D and hashimoto’s and my oldest son has celiac.
      Lots of autoimmune conditions on my maternal grandmother’s side including my maternal aunt who has hashimoto’s, celiac, an autoimmune hepatitis, and autoimmune platelet disorders. My maternal had graves (autoimmune hyperthyroid). Her sister had multiple sclerosis. We’re a fun bunch!. 😄

      3 years ago Log in to Reply
    25. KarenM6

      Arthritis for my Mom and sister.
      My Mom has a thyroid disorder, but I have no idea if it’s the autoimmune kind. (In fact, I had no idea there was an autoimmune kind until I read some of the responses!!)

      3 years ago Log in to Reply
    26. Mary Ann Sayers

      Yes, my GRANDDAUGHTER has celiac disease and possibly her 2 year old son, my great-grandson.
      I recently learned that my own brother was diagnosed with type 2 about 7 years ago. He never told me until shortly before he died–not because of diabetes.

      3 years ago Log in to Reply
    27. Modee

      Parents and all 4 grandparents had arthritis.
      My granddaughter (21) was diagnosed with juvenile rheumatoid arthritis at age 12. Daughter married a T1d so have always stayed on watch for both grandchildren but no other diabetics past or present.

      3 years ago Log in to Reply
    28. Henry Renn

      What in the world? I was 1st with T1, age 4yr 7 mos. Now age 71. I have younger sister T1. I have a 1st cousin & 3 first cousins once removed.

      3 years ago Log in to Reply
    29. Donna Condi

      My mother also had Hashimoto Thyroiditis.

      3 years ago Log in to Reply
    30. Donna Condi

      My brother was diagnosed Type 2 but he is on insulin shots now.

      3 years ago Log in to Reply

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]