If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?

If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it? - T1D Exchange

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- 12 hours, 39 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None.
- 12 hours, 39 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  Other for the lacking answer of none of these. It took a while to get used to wearing my pump and CGM. I HATE the feeling of attachments to my skin and can't wear jewelry or watches.
- 12 hours, 40 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
- 12 hours, 40 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  Pump and CGM 99.9% of the time.
- 12 hours, 40 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  How about “None of the above”?
- 12 hours, 40 minutes ago
  
  Lawrence S. likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None of these
- 17 hours, 5 minutes ago
  
  Steve Rumble likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  Pump and CGM 99.9% of the time.
- 17 hours, 34 minutes ago
  
  lis be likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  No one wants me. I am eighty four years old.
- 17 hours, 34 minutes ago
  
  lis be likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  I can find research studies that pertain to my medical problems but I do not always have the prerequisites needed for the study.
- 17 hours, 34 minutes ago
  
  lis be likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  Aged out
- 17 hours, 34 minutes ago
  
  lis be likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  My age limits me
- 17 hours, 34 minutes ago
  
  lis be likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  Agreed, and there are plenty of issues aging with T1D.
- 17 hours, 36 minutes ago
  
  lis be likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
- 17 hours, 36 minutes ago
  
  lis be likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Depends on the therapy. For example if it requires anti-rejection medications I would not be interested.
- 17 hours, 36 minutes ago
  
  lis be likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
- 17 hours, 37 minutes ago
  
  lis be likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Very likely to consider it. But many questions before accepting it, even if it were to be offered to someone my age (68).
- 18 hours, 13 minutes ago
  
  John Barbuto likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  How about “None of the above”?
- 18 hours, 13 minutes ago
  
  John Barbuto likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None of these
- 1 day, 1 hour ago
  
  Sandra Norman likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
- 1 day, 14 hours ago
  
  Gerald Oefelein likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  I would want all the details including risks and maintenance. I would not want to take rejection medicine as part of the cure .
- 1 day, 14 hours ago
  
  Gerald Oefelein likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
- 1 day, 15 hours ago
  
  kristina blake likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
- 1 day, 15 hours ago
  
  kristina blake likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Very likely to consider it. But many questions before accepting it, even if it were to be offered to someone my age (68).
- 1 day, 15 hours ago
  
  Bob Durstenfeld likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
- 1 day, 15 hours ago
  
  cynthia jaworski likes your comment at
  If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
  I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
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Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:

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Home > All Questions > If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?

Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:

How easy is it for you to find research opportunities that feel relevant to you?

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Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:

How easy is it for you to find research opportunities that feel relevant to you?

Privacy Policy

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