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    • 14 hours, 37 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 38 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 29 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 57 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 9 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 9 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 31 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 33 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 40 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 4 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Which of the following best describes your connection to the diabetes community? Select all that apply!

    Home > LC Polls > Which of the following best describes your connection to the diabetes community? Select all that apply!
    Previous

    If you are an adult with T1D, does someone you live with know how to give you emergency glucagon? (This might include any type of glucagon that you’re prescribed).

    Next

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    17 Comments

    1. sweetcharlie

      I got full blown T1D at about age 20 years.. I am now almost 91 OLD. There was NO pussy footen around.. I had the full blown simtums!! The Doctor sent me home with a list [no prescription required those days] for insulin and syring and needle and a pamphlet and said “practice on an orange the first time….but I stuck my leg the first morninganyway.. Wow in an hour I felt SO Good!!! No more thirst and peeing!!! I had been down to 118 lbs and got back up to 138 lbs in short time.

      15
      2 weeks ago Log in to Reply
      1. Ahh Life

        Sweetcharlie–well written!

        But I kinda wish you hadden’t of capitalized the word old.

        6
        2 weeks ago Log in to Reply
      2. KarenM6

        Hi sweetcharlie!
        I’m with Ahh Life! From your posts, you don’t seem “OLD” at all! I see an always young-at-heart man who is SO tenacious!! Seems like you’re cookin’ with gas!
        😀

        2 weeks ago Log in to Reply
    2. jamesmpii

      LADA is type 1.

      6
      2 weeks ago Log in to Reply
    3. LizB

      One of my sisters & I both have Type 1.

      2 weeks ago Log in to Reply
    4. Jane Cerullo

      I graduated from nursing school at age 54. When I started working got a new primary care doctor. My fasting BSs were 130 and 139. He diagnosed type 2 diabetes. I didn’t buy it. No metabolic syndrome. Weight was low at 110lbs at 5’7”. An Endo said same thing and started me on avandia. Went to California as a travel nurse and my sugar was high even exercising and working and watching diet. Eno ordered .75 u it’s lantus. Joke. I read everything I could and bought insulin in Mexico and treated myself. When I got home had a different Endo and she was incredulous that I didn’t know I had type 1. One test a C-peptide showed I was not making any insulin. Still working as nurse and I do question doctors opinions a lot. Probably drive them crazy

      7
      2 weeks ago Log in to Reply
      1. Janis Senungetuk

        Jane, keep on asking those questions! Hope you find MD’s who will listen/hear you. You need a partner to assist with your healthcare decisions, not a dictator.

        2
        2 weeks ago Log in to Reply
    5. Mary Dexter

      I ticked both T1 and LADA because LADA is a form of T1 (definitely not T2)

      3
      2 weeks ago Log in to Reply
      1. PamK

        Very true!

        2 weeks ago Log in to Reply
    6. Bill Kast

      I consider myself T1 and that is a fair description of my condition. My condition is caused by total removal of my pancreas 8 years ago. I had a precursor to adenocarcinoma and the trade-off was die soon, or live with diabetes. This was an easy choice for me.

      1
      2 weeks ago Log in to Reply
    7. Bob Durstenfeld

      Our family has autogenic T1D. My dad was the first, then two of my brothers and myself, then my oldest son, then his oldest daughter. We thought it might be male specific until our granddaughter developed it. My son was diagnosed the youngest, at 8 months old.

      2 weeks ago Log in to Reply
    8. Natalie Daley

      I became diabetic a a 40th birthday present, 36 years ago. The Mayo Clinic’s description of LADA was what happened. At 45 I was on insulin. I had effortlessly lost weight and was 120 lbs. The Draconian diet had stopped controlling my illness.

      2 weeks ago Log in to Reply
    9. Carole Ludwig

      I became a T1D diabetic when I had my pancreas removed 5.5 years ago at age 78. I use a CGM and Tandem pump. My main issue is low weight. Haven’t been able to gain since my surgery. K=I have a good healthy diet. Anyone out there with the same problem?

      2 weeks ago Log in to Reply
    10. Louise Robinson

      I was dx’d Type 1 in 1976 while in my late 20’s. My father was dx’d with diabetes in 1953 while in his early 60’s. He lived until his mid-80’s. At that time no differentiation was made between “types” of diabetes and the only treatment for him was insulin injections (U40 Protomine-Zinc). Growing up, watching him deal with his diabetes made it easier for me to accept my diagnosis several years after his death. I’ve done extensive genealogy research and have found a number of relatives on my father’s side where cause of death (in the 20th century) was listed as “diabetes”. I am unaware of any relatives on my maternal side with Type 1 diabetes.

      2 weeks ago Log in to Reply
    11. Jen Farley

      Had it diagnosed at 13, but had suffered with the symptoms for a year prior. Worst year ever! Sports and not knowing, with parents keeping me active is what stoped any serious problems.

      1
      2 weeks ago Log in to Reply
    12. PamK

      I was diagnosed at the age of 2 1/2 years. My mother was diagnosed first with Type 2 and later with LADA when I was in my 30’s!

      2 weeks ago Log in to Reply
    13. mrthnmn

      I was diagnosed as T1D 30 years ago at age 31. I never heard of LADA before now but that may be a better description of my case. My glucose level was much easier to control in the beginning, though that may also have been because of my level of physical activity then.

      2 weeks ago Log in to Reply

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