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    • 1 hour, 26 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 30 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 3 hours, 18 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 3 hours, 18 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 4 hours, 29 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 4 hours, 29 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 5 hours, 48 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 2 days ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 4 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 22 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 2 days, 23 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 2 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 2 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 4 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 22 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 22 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
    • 5 days, 4 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
    • 5 days, 4 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?

    Home > LC Polls > While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?
    Previous

    Which of the following best describes your connection to the diabetes community? Select all that apply!

    Next

    Have you ever accidentally given yourself an injection of rapid-acting insulin instead of a long-acting (or vice versa)? Share in the comments how you handled this situation.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. D-connect

      MS

      3 years ago Log in to Reply
    2. Ahh Life

      Zero.

      17 blood related aunts/uncles. 4 grandparents. (I knew 3 of them).

      Just my luck as the only winner of the heterozygote draw. Sigh!

      3
      3 years ago Log in to Reply
      1. Kris Sykes-David

        Weird, huh ?

        3 years ago Log in to Reply
    3. Jen Farley

      My mother was adopted and my father was raised by his grandmother. We know who my fathers mother was but unsure who the father was. Holes all over that tree. So, I am unable to rely on any family history.

      3 years ago Log in to Reply
    4. Janice Bohn

      My grandfather’s sister was T1D her diagnosis came not long after insulin was first discovered.

      3 years ago Log in to Reply
    5. Daniel Bestvater

      Father; T1D, + rheumatoid arthritis
      Brother 1; hypothyroidism, celiac disease
      Brother 2; Crohn’s disease
      Sister; rheumatoid arthritis

      3 years ago Log in to Reply
    6. Eva

      None!
      Although my dad’s half sister has hypothyroidism but she is a dentist. Soo… maybe too much fluoride caused damage to her thyroid gland. IDK.

      3 years ago Log in to Reply
      1. Kris Sykes-David

        I didn’t realize that was a thing. I grew up in So CA, have excellent teeth, poor gums and Hypothyroidism! Oh, and LADA.

        3 years ago Log in to Reply
    7. Sherolyn Newell

      Two sisters with celiac disease.

      3 years ago Log in to Reply
    8. Amy Jo

      All of the women in my mothers immediate family have autoimmune thyroid disorder. I’ve tested positive for those antibodies but it hasn’t manifested clinically (yet)

      3 years ago Log in to Reply
    9. cynthia jaworski

      If arthritis counts, everybody had it, except me.

      1
      3 years ago Log in to Reply
    10. AnitaS

      I am not sure of more distant relatives except one cousin who had type-1 diabetes, but my father has rheumatoid arthritis and my brother has Croehn’s disease

      3 years ago Log in to Reply
    11. Liz Avery

      I said I am not sure. One of my sisters has hypothyroid, and we all have arthritis.

      3 years ago Log in to Reply
    12. Carol Meares

      My sister has T1D and takes Thyroid meds.
      My Mom and Dad took thyroid medicine.
      Mom had Sjogrens.

      3 years ago Log in to Reply
      1. Carol Meares

        I also have two cousins once removed who have T1D

        3 years ago Log in to Reply
    13. Kris Sykes-David

      I answered not sure. My mom and sister and I all have hypothyroidism, but I don’t know if it is autoimmune. No one else in my family has any type of diabetes. Neither grandparents, parents or siblings. Weird.

      3 years ago Log in to Reply
    14. Yaffa Steubinger

      My two kids got my Hashimoto’s Thyroiditis and two of my grandkids got my T1. 🙁

      3 years ago Log in to Reply
    15. Janis Senungetuk

      Answering re. autoimmune conditions, my daughter has lupus erythematosus as did my paternal grandfather and aunt.

      1
      3 years ago Log in to Reply
      1. Twinniepoo74

        I also have Lupus and MS autoimmune disease is the worst but praying for you daughter.

        3 years ago Log in to Reply
    16. Twinniepoo74

      My mom has celiac. My dad has type 2 diabetes. My cousin has MS and my other cousin has fibermoylogia

      3 years ago Log in to Reply
    17. Patricia Kilwein

      I’m not sure about what reachers say is true or not….my father had T1D, mother T2D…sister, 2 brothers, niece all battling diabetes. Typing is what is crucial to how to combat this disease! But unfortunately it isn’t the first step in treatment. Myself, I was first diagnosed as T2D even with my history. Years later was tested for T1D markers. Was positive for them. Things would have gone much differently if I was tested sooner! Thankfully I have a really great Endo and care team now.

      3 years ago Log in to Reply
    18. Mig Vascos

      There are several relatives with hypothyroidism.

      3 years ago Log in to Reply
    19. Emily Thompson

      I (mom to T1D) has Raynaurds, grandmother had Hemochromotosis

      3 years ago Log in to Reply
      1. Eva

        I think Hemochromatosis is genetic. You’re family is part of the iron tribe ; – )

        3 years ago Log in to Reply
    20. Steven Gill

      A younger brother with T1, an older sister with thyroid problems, younger sister with chrones and rheumatoid arthritis. Both sisters died of cancer (older breast cancer, younger leukemia). A maternal grandmother took insulin, assuming Type 1 but no-one has any knowledge: she passed when I was like 5-6, but I remember her real thin, practically blind. Several Type 2’s, while more socio/environmental but could be a gene tendency towards that (insulin dependent paternal grandmother and a well controlled diet controlled brother). Both grandmothers passed away happy and old but had other health concerns.

      3 years ago Log in to Reply
    21. Becky Cain

      My sister had lupus.

      3 years ago Log in to Reply
    22. jo

      I currently have 4 including type 1, my two sisters both have Celiac disease and Graves disease. My brother had Type 1 my nephew has type 1. I have cousins with MS and Graves disease also.

      3 years ago Log in to Reply
    23. kilupx

      Yes, my father and his sister had really serious psoriasis and my sibling had T1D.

      3 years ago Log in to Reply
    24. Jneticdiabetic

      Yes. I have T1D and hashimoto’s (autoimmune hypothyroid).
      In my immediate family, my mother also has T1D and hashimoto’s and my oldest son has celiac.
      Lots of autoimmune conditions on my maternal grandmother’s side including my maternal aunt who has hashimoto’s, celiac, an autoimmune hepatitis, and autoimmune platelet disorders. My maternal had graves (autoimmune hyperthyroid). Her sister had multiple sclerosis. We’re a fun bunch!. 😄

      3 years ago Log in to Reply
    25. KarenM6

      Arthritis for my Mom and sister.
      My Mom has a thyroid disorder, but I have no idea if it’s the autoimmune kind. (In fact, I had no idea there was an autoimmune kind until I read some of the responses!!)

      3 years ago Log in to Reply
    26. Mary Ann Sayers

      Yes, my GRANDDAUGHTER has celiac disease and possibly her 2 year old son, my great-grandson.
      I recently learned that my own brother was diagnosed with type 2 about 7 years ago. He never told me until shortly before he died–not because of diabetes.

      3 years ago Log in to Reply
    27. Modee

      Parents and all 4 grandparents had arthritis.
      My granddaughter (21) was diagnosed with juvenile rheumatoid arthritis at age 12. Daughter married a T1d so have always stayed on watch for both grandchildren but no other diabetics past or present.

      3 years ago Log in to Reply
    28. Henry Renn

      What in the world? I was 1st with T1, age 4yr 7 mos. Now age 71. I have younger sister T1. I have a 1st cousin & 3 first cousins once removed.

      3 years ago Log in to Reply
    29. Donna Condi

      My mother also had Hashimoto Thyroiditis.

      3 years ago Log in to Reply
    30. Donna Condi

      My brother was diagnosed Type 2 but he is on insulin shots now.

      3 years ago Log in to Reply

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases? Cancel reply

    You must be logged in to post a comment.




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