Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?

    Home > LC Polls > While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases?
    Previous

    Which of the following best describes your connection to the diabetes community? Select all that apply!

    Next

    Have you ever accidentally given yourself an injection of rapid-acting insulin instead of a long-acting (or vice versa)? Share in the comments how you handled this situation.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 day ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    35 Comments

    1. D-connect

      MS

      3 years ago Log in to Reply
    2. Ahh Life

      Zero.

      17 blood related aunts/uncles. 4 grandparents. (I knew 3 of them).

      Just my luck as the only winner of the heterozygote draw. Sigh!

      3
      3 years ago Log in to Reply
      1. Kris Sykes-David

        Weird, huh ?

        3 years ago Log in to Reply
    3. Jen Farley

      My mother was adopted and my father was raised by his grandmother. We know who my fathers mother was but unsure who the father was. Holes all over that tree. So, I am unable to rely on any family history.

      3 years ago Log in to Reply
    4. Janice Bohn

      My grandfather’s sister was T1D her diagnosis came not long after insulin was first discovered.

      3 years ago Log in to Reply
    5. Daniel Bestvater

      Father; T1D, + rheumatoid arthritis
      Brother 1; hypothyroidism, celiac disease
      Brother 2; Crohn’s disease
      Sister; rheumatoid arthritis

      3 years ago Log in to Reply
    6. Eva

      None!
      Although my dad’s half sister has hypothyroidism but she is a dentist. Soo… maybe too much fluoride caused damage to her thyroid gland. IDK.

      3 years ago Log in to Reply
      1. Kris Sykes-David

        I didn’t realize that was a thing. I grew up in So CA, have excellent teeth, poor gums and Hypothyroidism! Oh, and LADA.

        3 years ago Log in to Reply
    7. Sherolyn Newell

      Two sisters with celiac disease.

      3 years ago Log in to Reply
    8. Amy Jo

      All of the women in my mothers immediate family have autoimmune thyroid disorder. I’ve tested positive for those antibodies but it hasn’t manifested clinically (yet)

      3 years ago Log in to Reply
    9. cynthia jaworski

      If arthritis counts, everybody had it, except me.

      1
      3 years ago Log in to Reply
    10. AnitaS

      I am not sure of more distant relatives except one cousin who had type-1 diabetes, but my father has rheumatoid arthritis and my brother has Croehn’s disease

      3 years ago Log in to Reply
    11. Liz Avery

      I said I am not sure. One of my sisters has hypothyroid, and we all have arthritis.

      3 years ago Log in to Reply
    12. Carol Meares

      My sister has T1D and takes Thyroid meds.
      My Mom and Dad took thyroid medicine.
      Mom had Sjogrens.

      3 years ago Log in to Reply
      1. Carol Meares

        I also have two cousins once removed who have T1D

        3 years ago Log in to Reply
    13. Kris Sykes-David

      I answered not sure. My mom and sister and I all have hypothyroidism, but I don’t know if it is autoimmune. No one else in my family has any type of diabetes. Neither grandparents, parents or siblings. Weird.

      3 years ago Log in to Reply
    14. Yaffa Steubinger

      My two kids got my Hashimoto’s Thyroiditis and two of my grandkids got my T1. 🙁

      3 years ago Log in to Reply
    15. Janis Senungetuk

      Answering re. autoimmune conditions, my daughter has lupus erythematosus as did my paternal grandfather and aunt.

      1
      3 years ago Log in to Reply
      1. Twinniepoo74

        I also have Lupus and MS autoimmune disease is the worst but praying for you daughter.

        3 years ago Log in to Reply
    16. Twinniepoo74

      My mom has celiac. My dad has type 2 diabetes. My cousin has MS and my other cousin has fibermoylogia

      3 years ago Log in to Reply
    17. Patricia Kilwein

      I’m not sure about what reachers say is true or not….my father had T1D, mother T2D…sister, 2 brothers, niece all battling diabetes. Typing is what is crucial to how to combat this disease! But unfortunately it isn’t the first step in treatment. Myself, I was first diagnosed as T2D even with my history. Years later was tested for T1D markers. Was positive for them. Things would have gone much differently if I was tested sooner! Thankfully I have a really great Endo and care team now.

      3 years ago Log in to Reply
    18. Mig Vascos

      There are several relatives with hypothyroidism.

      3 years ago Log in to Reply
    19. Emily Thompson

      I (mom to T1D) has Raynaurds, grandmother had Hemochromotosis

      3 years ago Log in to Reply
      1. Eva

        I think Hemochromatosis is genetic. You’re family is part of the iron tribe ; – )

        3 years ago Log in to Reply
    20. Steven Gill

      A younger brother with T1, an older sister with thyroid problems, younger sister with chrones and rheumatoid arthritis. Both sisters died of cancer (older breast cancer, younger leukemia). A maternal grandmother took insulin, assuming Type 1 but no-one has any knowledge: she passed when I was like 5-6, but I remember her real thin, practically blind. Several Type 2’s, while more socio/environmental but could be a gene tendency towards that (insulin dependent paternal grandmother and a well controlled diet controlled brother). Both grandmothers passed away happy and old but had other health concerns.

      3 years ago Log in to Reply
    21. Becky Cain

      My sister had lupus.

      3 years ago Log in to Reply
    22. jo

      I currently have 4 including type 1, my two sisters both have Celiac disease and Graves disease. My brother had Type 1 my nephew has type 1. I have cousins with MS and Graves disease also.

      3 years ago Log in to Reply
    23. kilupx

      Yes, my father and his sister had really serious psoriasis and my sibling had T1D.

      3 years ago Log in to Reply
    24. Jneticdiabetic

      Yes. I have T1D and hashimoto’s (autoimmune hypothyroid).
      In my immediate family, my mother also has T1D and hashimoto’s and my oldest son has celiac.
      Lots of autoimmune conditions on my maternal grandmother’s side including my maternal aunt who has hashimoto’s, celiac, an autoimmune hepatitis, and autoimmune platelet disorders. My maternal had graves (autoimmune hyperthyroid). Her sister had multiple sclerosis. We’re a fun bunch!. 😄

      3 years ago Log in to Reply
    25. KarenM6

      Arthritis for my Mom and sister.
      My Mom has a thyroid disorder, but I have no idea if it’s the autoimmune kind. (In fact, I had no idea there was an autoimmune kind until I read some of the responses!!)

      3 years ago Log in to Reply
    26. Mary Ann Sayers

      Yes, my GRANDDAUGHTER has celiac disease and possibly her 2 year old son, my great-grandson.
      I recently learned that my own brother was diagnosed with type 2 about 7 years ago. He never told me until shortly before he died–not because of diabetes.

      3 years ago Log in to Reply
    27. Modee

      Parents and all 4 grandparents had arthritis.
      My granddaughter (21) was diagnosed with juvenile rheumatoid arthritis at age 12. Daughter married a T1d so have always stayed on watch for both grandchildren but no other diabetics past or present.

      3 years ago Log in to Reply
    28. Henry Renn

      What in the world? I was 1st with T1, age 4yr 7 mos. Now age 71. I have younger sister T1. I have a 1st cousin & 3 first cousins once removed.

      3 years ago Log in to Reply
    29. Donna Condi

      My mother also had Hashimoto Thyroiditis.

      3 years ago Log in to Reply
    30. Donna Condi

      My brother was diagnosed Type 2 but he is on insulin shots now.

      3 years ago Log in to Reply

    While research finds that nearly 90% of people diagnosed with T1D have no relatives with the disease, you might have other autoimmune conditions in your family. Do any of your biological relatives (people who share the same genes or blood as you) have other autoimmune diseases? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]