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    • 15 hours, 7 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 15 hours, 13 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 15 hours, 19 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Which of the following celebrities/professional athletes were you aware had a personal connection to T1D? Select all that apply! If you know of others, please share in the comments.

    Home > LC Polls > Which of the following celebrities/professional athletes were you aware had a personal connection to T1D? Select all that apply! If you know of others, please share in the comments.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    26 Comments

    1. GiGi

      Halle Berry isn’t a type 1.
      https://abcnews.go.com/Health/DiabetesResource/story?id=3822870&page=1

      4
      2 years ago Log in to Reply
      1. William Bennett

        Hadn’t seen your post—or heard about the controversy—before posting my response. So thanks for the info. And yeah, looks to me like she shouldn’t be on this list. Seems like it would be easy enough to settle if she had antibody and c-peptide tests. But I guess a negative result wouldn’t be great for the claim that she “cured” her T1 with diet and exercise. So unhelpful….
        https://www.healthline.com/diabetesmine/revisiting-the-great-halle-berry-diabetes-ruckus#Halle-Berry-as-a-Diabetes-Spokesperson?

        4
        2 years ago Log in to Reply
      2. Robert Holman

        Agreed, disappointing that T1Dexchange is listing her here, it’s a pretty visible issue.

        2
        2 years ago Log in to Reply
    2. Amanda Barras

      This list totally missed Bret Michaels!

      7
      2 years ago Log in to Reply
      1. Lyn McQuaid

        I thought that too! Every time I see a Poison video on MTV Classic, I say to my husband, “I wonder what his blood sugar was as they filmed this?” Or “it amazes me that he survived the 80’s rock scene.”

        1
        2 years ago Log in to Reply
      2. George Rich

        Also missed Sam Fuld-centerfielder for the Tampa Bay Rays and now General Manager of the Philadelphia Phillies.

        1
        2 years ago Log in to Reply
      3. Ahh Life

        Also missed Ron Santo Chicago Cub 3rd baseman.

        1
        2 years ago Log in to Reply
    3. William Bennett

      Usual message with this stuff is “See? You can still be a big success with T1!” Which is a good message. But for me, personally, having been dx’d as an adult (age 28) the message that “You can get T1 at ANY age!” is more significant. The whole “juvenile diabetes” thing leads to so much confusion about that, so high-profile cases like Moore—and now I learn Halle Berry—can help ameliorate that misunderstanding. Though “I thought only kids get that?” persists in the public at large and even in the medical community. Who certainly ought to know better, but often don’t, leading to people being misdiagnosed and put on pills-n-exercise treatments that don’t/can’t work.

      9
      2 years ago Log in to Reply
      1. George Rich

        Actually, 1/2 of all cases of T1D are diagnosed in people over the age of 30!

        2 years ago Log in to Reply
      2. Tom Caesar

        I was diagnosed at 19 and had a Doctor 2 years later couldn’t believe I was T1 and tried pills only for 6 months before he realized the error. That was in 1969, hopefully that rarely happens today.

        2 years ago Log in to Reply
    4. Kelly Steiner

      Kate Moss’s daughter

      2
      2 years ago Log in to Reply
    5. Mary Dexter

      James Norton (Grantchester)

      2 years ago Log in to Reply
    6. Patricia Kilwein

      There wasn’t a choice for none. I didn’t know about any of them let alone they were diagnosed with T1D!

      2 years ago Log in to Reply
      1. Molly Jones

        Same here. I chose Mary Tyler Moore as my answer in order to make a comment.

        2 years ago Log in to Reply
    7. Anthony Harder

      Bobby Clarke, captain of the Philadelphia Flyers

      0
      2 years ago Log in to Reply
    8. Edward Geary

      First was Bobby Clarke of the Philadelphia Flyers and Ron Santo of the Chicago Cubs.

      2 years ago Log in to Reply
    9. Phyllis Biederman

      I didn’t know about Robin Arzon, but just read up on her – what an amazing woman! Actually all of these people are quite extraordinary given the hurdles they had to overcome to reach such heights.
      Here are a few more I know about (some may not have had True T1D but they were diagnosed and put on insulin):
      Arthur Ashe, Billie Jean King, Babe Ruth, Thomas Edison, Mikhail Gorbachev, Alexander Zverev, Gary Hall, Sir Steve Redgrave, Adam Morrison and Charlotte Drury

      2 years ago Log in to Reply
    10. Karen DeVeaux

      Halle Berry has T2 diabetes. She was wrongly diagnosed and now takes no insulin.

      2
      2 years ago Log in to Reply
      1. Phyllis Biederman

        I’ve always wondered if she has another type of diabetes, given her history. A handful of my patients have been erroneously diagnosed with T1D diagnosis later changed to other less prevalent types of DM which sometimes may not require insulin. For instance – Monogenic Diabetes has many variations (ie MODY).

        1
        2 years ago Log in to Reply
    11. Ken Raiche

      Only familiar with three but Bobby Clark nor Max Domi weren’t on your list who are T1D.

      2 years ago Log in to Reply
    12. Megan S

      The list missed out on the actor Victor Garber who is T1 and does work with Beyond Type 1.

      2 years ago Log in to Reply
    13. Mick Martin

      I specifically didn’t choose Halle Berry as I don’t believe she even knows which type of diabetes she has, especially when she talks about reversing her type 1 diabetes by adopting a keto-style diet, and in doing so she managed to “cure” herself of T1D and magically weaned herself off insulin thanks to that healthier eating style.

      2
      2 years ago Log in to Reply
    14. Eva

      If Halle Barry really is Type 1, then I want to know
      who her endo. is. Either he is a genius or completely negligent.
      Moreover, if she is a spokesperson for Type 1 and advocates
      that you can “cure” type 1 with a paleo/keto diet and someone dies,
      I’d like to hear from an attorney whether she and her sponsors can
      be held responsible under the truth in advertising laws?

      1
      2 years ago Log in to Reply
    15. Becky Hertz

      Bret Michaels and Jordan Morris (MLS).

      1
      2 years ago Log in to Reply
    16. ConnieT1D62

      Sonia Sotomayor and I were born in the same year (1954) and were both diagnosed at age 8 in
      late Fall/early Winter of 1962. I didn’t know anything about her until I read an article about her after she was elected to the Supreme Court. I have wondered if we were affected by the same mumps virus that was going around that year. She lived as a kid in the Bronx NY and I lived as a kid in Toledo, Ohio.

      2 years ago Log in to Reply
    17. T1D4LongTime

      Jimmy Kimmel’s son

      2 years ago Log in to Reply

    Which of the following celebrities/professional athletes were you aware had a personal connection to T1D? Select all that apply! If you know of others, please share in the comments. Cancel reply

    You must be logged in to post a comment.




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