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    • 7 minutes ago
      Kristine Warmecke likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      My libre stopped falling off once I stopped running into door frames
    • 3 hours, 5 minutes ago
      Anneyun likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Pretty much always do within 3-4 days of starting a new sensor. Also, has anyone else noticed that their online order form for these things has been broken for like a month or more?
    • 3 hours, 26 minutes ago
      Elizabeth T. likes your comment at
      Has a stranger ever approached you to talk about your visible diabetes device(s)?
      I said yes, but never to have a conversation, it's always more like a "Cool, I have one too" kind of moment. It's a club!
    • 4 hours, 45 minutes ago
      Meerkat likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Well, since nearly everyone here commented about the Dexcom sensors, I'll add a comment about the Medtronic sensors. I do not use the patches sent by Medtronic as they irritate my skin. I use the Smith and Nephew IV3000 catheter dressing. It works well, keeps the sensor dry when I shower, and generally holds for a week.
    • 5 hours, 25 minutes ago
      Chris Albright likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I use the free Dexcom patch that you have to order. I don't know why they don't just send it with the sensors. Occasionally I use Simpatch when I either knock the sensor off or I get sweaty.
    • 6 hours, 1 minute ago
      Sherolyn Newell likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I've rarely needed to use an adhesive patch for my G6 but have done so occasionally when the original adhesive begins to peel...usually on day 8, 9 or 10. It's nice to have that option with patches supplied for free by Dexcom.
    • 6 hours, 10 minutes ago
      Lawrence S. likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 6 hours, 11 minutes ago
      Lawrence S. likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      So true about the "I prefer to bolus 15 minutes before ... and always forget" . Me too!
    • 6 hours, 11 minutes ago
      Lawrence S. likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 6 hours, 12 minutes ago
      Lawrence S. likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      You are not alone my friend, you are not alone😬
    • 6 hours, 12 minutes ago
      Lawrence S. likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Dysphagia (difficulty swallowing) and gastroparesis (delayed stomach emptying) compel four answers: 15 minutes before, 15 after, 30 after, and over the next 2 hours. It is no longer a "Set an equation, measure the carbs, and dose" certainty. All bets are off and out the window. It’s less like rearranging the deck chairs on the Titanic, and more like constructing a new house as it sinks. 😣
    • 6 hours, 14 minutes ago
      William Bennett likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I don't remember the online order system EVER working. I always have to call Dexcom for overpatches, after I go through the wasted time of trying to order on the online site. They should save us all time and just take down the site.
    • 6 hours, 19 minutes ago
      Lawrence S. likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Pretty much always do within 3-4 days of starting a new sensor. Also, has anyone else noticed that their online order form for these things has been broken for like a month or more?
    • 6 hours, 22 minutes ago
      Lawrence S. likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I use the over patches supplied by Dexcom. They work great.
    • 6 hours, 22 minutes ago
      Lawrence S. likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Absolutely 100% of the time. Not nearly as physical as I once was, but need to guarantee with ABSOLUTE certainty the @*(#@*# thing STAYS on, if I brush into anything, or get bumped into things....when it comes out early that is a lethal problem IMV
    • 6 hours, 26 minutes ago
      Marthaeg likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I use the over patches supplied by Dexcom. They work great.
    • 6 hours, 27 minutes ago
      Marthaeg likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Dexcom G6. ALWAYS with skin protectant (Cavilon) and Dexcom-supplied overpatches.
    • 6 hours, 27 minutes ago
      Megan S likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      Absolutely 100% of the time. Not nearly as physical as I once was, but need to guarantee with ABSOLUTE certainty the @*(#@*# thing STAYS on, if I brush into anything, or get bumped into things....when it comes out early that is a lethal problem IMV
    • 6 hours, 29 minutes ago
      Robin Melen likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I do use them sometimes though, Especially when I’m traveling
    • 6 hours, 32 minutes ago
      Carol Evans likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I use Dexcom stinckers purely for decoration when I do wear one. But right now I don’t with it on my abdomen no one sees but me I don’t waste the extra stickers.
    • 6 hours, 38 minutes ago
      Kathy Hanavan likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 6 hours, 39 minutes ago
      Kathy Hanavan likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      So true about the "I prefer to bolus 15 minutes before ... and always forget" . Me too!
    • 6 hours, 40 minutes ago
      Mary Halverson likes your comment at
      If you use a CGM, do you currently have an adhesive overpatch on your sensor to help it stick?
      I use the over patches supplied by Dexcom. They work great.
    • 23 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
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    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.

    Home > LC Polls > When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
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    For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    46 Comments

    1. Chrisanda

      The notification that my sensor or transmitter will expire “soon” in the wee hours of the night is very frustrating. I wish there was a “do not disturb “ function for non-critical alerts. I don’t need to be awaken at 3 am with an alert 10 days before my transmitter is set to expire! Not helpful!

      7
      2 years ago Log in to Reply
      1. Anita Galliher

        Amen!

        2 years ago Log in to Reply
    2. ConnieT1D62

      These days, very rarely any of the above except for physical effects of a low. I usually sleep soundly though pump alarms, but if I am dangerously low during sleep what I experience is struggling to awaken or escape from a weird dream. My husband awakens to witness me thrashing and moaning or talking nonsense and my pump CGM is beeping.

      However thanks to closed loop technology I rarely have sleep lows like that anymore with Tandem Control IQ. The pump adjusts and suspends insulin delivery if I am below target until I am back in range, thus I generally sleep peacefully through the night.

      1
      2 years ago Log in to Reply
    3. GLORIA MILLER

      My CGM does not alarm which is fine for me since I wake up any time glucose gets too low. When Omnipod 5 and Dexcom 7 become available I will switch to looping system. 65 years T1

      3
      2 years ago Log in to Reply
      1. Karen Taylor

        Right there with you. 66 yrs now. Looking forward to having a loop system

        2 years ago Log in to Reply
    4. Patricia Dalrymple

      I don’t have a CGM (yet). I get hot when I go low and I wake up.

      1
      2 years ago Log in to Reply
    5. Drina Nicole Jewell

      It’s because I have pee haha since I switched to tslim I have zero lows and highs at night.

      2
      2 years ago Log in to Reply
    6. Mary Dexter

      I wake up every two hours because of pain and contractions in my hips, legs and ankles. The pain wakes me before my CGM alarms. I look at it when the pain wakes me and if I am going high or low, I fix it. Although it seems to correspond with my fluctuating blood sugar, my endocrinologist chooses to pretend it doesn’t happen or makes ridiculous suggestions.

      2
      2 years ago Log in to Reply
    7. Larry Martin

      Calibration required.

      1
      2 years ago Log in to Reply
    8. Liz Avery

      The worst for me is the 3:00 a.m. need to calibrate my CGM. I seldom get high or lows overnight.

      2 years ago Log in to Reply
    9. Lawrence S.

      I’m glad you asked this questions. Perhaps my biggest frustration with an insulin pump/CGM is the number of ridiculous disturbances I get while I am asleep. “Your blood sugar was high/low 2 hours ago, do a blood test.” Are you kidding? I don’t care that my blood sugar was high/low in the past, and I don’t do blood tests. Low insulin warnings. I know my insulin’s low. Does it have to wake me up at 3am to tell me I have 5 or 10 units left? Oh, then there is the “incomplete bolus alert.” This happens often, when I have not tried to take a bolus at 2am. It just goes on and on. There really needs to be a “Do not Disturb” setting. Let me know when I’m very low or very high, in the present tense. Otherwise, I don’t want to hear from my pump.

      7
      2 years ago Log in to Reply
      1. Anita Galliher

        You took the words right out of my mouth!

        2
        2 years ago Log in to Reply
    10. Stephen Woodward

      Device indicates bg trend that will be out of range while asleep, wait to confirm trend Wil be in range.

      2 years ago Log in to Reply
    11. connie ker

      My CGM Freestyle Libre 14 day is without alarms. So when I wake up in the middle of the night for the bathroom walk, I check the sensor and see a number in the dark. It works well for me living alone for the past 3 years, and I am so thankful to have this device, and would find the alarms very annoying . Good sleep is so important for your body at any age!

      1
      2 years ago Log in to Reply
    12. Nick Trubov

      Type one diabetes doesn’t interfere with my sleep! EVER.

      1
      2 years ago Log in to Reply
      1. Anita Galliher

        You’re a very lucky person!

        2
        2 years ago Log in to Reply
    13. Mark Wilson

      When my pump goes out of Automode because of a minimal or maximum basal adjustment. Usually with warning. Then need a new calibration to restore Automode.

      2 years ago Log in to Reply
    14. kflying1@yahoo.com

      Before the DEXCOM G6 the most common cause of sleep disturbance was firemen asking “You ok now?” after my kids called 911. Great people these firemen.

      4
      2 years ago Log in to Reply
      1. Anita Galliher

        Bless all their hearts! ❤️

        2
        2 years ago Log in to Reply
    15. Derek West

      For the past week or more I have been alerted at 4:00 am that my pump needs a blood sugar reading to stay in auto mode. Since my sensor, by the morning, is invariably 10 lower than my blood test I just add a few points to the current reading and feed the information to the pump. It is quite annoying as I have no idea why.

      2 years ago Log in to Reply
    16. kristina blake

      For me it is CGFM warning of highs/lows. I have a very narrow range (60-120), so I get quite a few alarms. But I’m fine with that. keeps me steady and in my range.

      1
      2 years ago Log in to Reply
    17. Richard Wiener

      Very rarely awakened with my Dexcom G6. Frequently awakened for a journey to the bathroom. This is caused by fluid in my legs.

      2 years ago Log in to Reply
    18. Anita Galliher

      In addition to the maddening beeps and buzzes of lows and highs coming from my CGM, my legs have become the source of my worst sleep interruption. I get restless legs, leg cramps, aches, pains, numbness and prickly sensations. The only way to quieter my legs back down is to get out of bed and walk around until they calm down. At that time I also check my BG and go to the bathroom, and by that time I’m usually wide awake.

      2 years ago Log in to Reply
      1. M C

        Have you ever tried a potassium supplement? It may help with the leg cramping.

        1
        2 years ago Log in to Reply
      2. Jneticdiabetic

        This happens to me too. In my case, it seems to occur more when I’m dehydrated and drinking a big glass of water seems to help.

        2 years ago Log in to Reply
      3. Wanacure

        Does your diet provide adequate potassium?
        Do you need orthotics and extra depth shoes?
        If you’re doing leg exercises like squats, calf-raises, long hikes, or jogging…Remember to do calf stretches and thigh stretches before and after. Are you doing 5’ of ankle rotations every day? All these things helped me solve the problem of painful leg cramps.

        2 years ago Log in to Reply
      4. AnitaS

        Are you on statin drugs? They can cause muscle cramps.

        2 years ago Log in to Reply
    19. Amanda Barras

      I get woken up over lost signal from rolling over on my pump more often than highs or lows.

      2 years ago Log in to Reply
    20. Carol Meares

      My pump’s alarms are set at 70 and 150 and my phones alarms at 70 and 120. Night is the best time to get good even blood sugar readings for 1/3 of the 24 hour period for me in a relatively low range. 80/105 is optimal for me for that period. No effects of food, exercise or stress.

      2 years ago Log in to Reply
    21. George Lovelace

      On Tandem CIQ so there NO Lows, usually a battery or delivery issue

      2 years ago Log in to Reply
    22. dave hedeen

      BG required, not Hi or Lo

      2 years ago Log in to Reply
    23. Jneticdiabetic

      Biggest benefit since I switched to Tandem pump with Control IQ last November has been more peaceful nights and waking up in range every morning. I do occasionally still get overnight alarms most often from lows (due to late night snack mis-bolus or overcorrection) or me forgetting to check pump battery before bed.

      1
      2 years ago Log in to Reply
    24. Mick Martin

      I selected several of the different options offered as my sleep is very often disturbed by my pump ‘alarming’ indicating that my blood glucose level is high … even after I’ve already bolused to cover it; my blood glucose level is low … even though I’ve treated the low; that my sensor needs to be changed; that my battery is running low on power, etc. etc.

      1
      2 years ago Log in to Reply
    25. Kim Murphy

      When it runs out of insulin totally because the omnipods are so expensive I always wear them for the extra eight hours.

      1
      2 years ago Log in to Reply
    26. KarenM6

      I didn’t read the question fully, so my answer is incomplete…
      But, the low (or high) alarms…
      When I get a low alarm, it will frequently alarm 5 or 10 minutes later even though I’ve taken glucose… but, that takes 30 minutes or so to arrive in the blood. So, to have the extra alarms in the meantime are super annoying.
      And, the high is even worse because insulin takes an hour and more to arrive.
      I wish there was a way to put the alarms on “snooze” for a period of time while the solution to the problem works to show up in the blood sugar.

      2
      2 years ago Log in to Reply
      1. Sherolyn Newell

        My Dexcom has a setting for how often to repeat some of the alarms.

        1
        2 years ago Log in to Reply
      2. KarenM6

        Hi Sherolyn!
        I just checked mine. It is set to not repeat at all (0 minutes). But! I wonder if I change it to something like 30mins and 1 or 2 hours, it will stop alarming at me every time it crosses that demarcation line. I will give it a try. Thank you for the idea! 😀

        2 years ago Log in to Reply
      3. AnitaS

        I totally agree with you about putting the alarms on snooze. If I acknowledge a low by clicking on my pump, it should not keep reminding me my sugar is low every few minutes. My sugar too can take at least a half an hour to rise after eating pure carbs. I think as long as the problem is acknowledged, the pump should at least give your body time to get the blood sugar up. I think 1/2 hour is reasonable. If the low is not acknowledged, then yes, the cgm/pump has the obligation to notify.

        1
        2 years ago Log in to Reply
    27. Ahh Life

      There used to be a Ukrainian guy name Oleg who posted on this site. The trivial trifles of low device battery or checking BG levels seem pitifully inconsequential compared to obtaining basic insulin.

      So, Oleg, if you’re still around, what do you need? And how do I send it?

      Що потрібно? Куди відправити?

      Что нужно? Куда отправить?

      5
      2 years ago Log in to Reply
    28. KSannie

      What wakes me up is low sugar. Mine has to be 120 in order for me to stay asleep any length of time. My alarms are set for 75 and 150, but CIQ takes care of most of these. I do not know why I now cannot sleep with a BG below 120. I used to be able to get really low without noticing. My doctor suggested gradually lowering the point at which I would treat nighttime lows, but this has not worked. If my Sugar is 117, for example, I can lie awake 3 hours at least. (I give up after losing that much sleep – I really need the sleep.) I have tried several times, but nothing works to get me back to sleep until I hit, maybe 119.

      2 years ago Log in to Reply
    29. mbulzomi@optonline.net

      I run the DEX and the Tandem APP all the time on my iPhone. Both APPs alarms are set the same at night (0001-0700). Signal loos is depending what side of my abdomen the set and sensor is on.

      2 years ago Log in to Reply
    30. Teri Morris

      Starving and weak.

      2 years ago Log in to Reply
    31. Sherolyn Newell

      It seems like sometimes my supper digests really slowly. I will be fine all evening and then around midnight, I get a high alarm. I will do an adjustment bolus, but for me, insulin acts more slowly when I am sleeping. So often, I will get another high alarm in an hour.

      2 years ago Log in to Reply
    32. Jodi Greenfield

      My CGM does not have an alarm, so if I am not scanning it, it does not give me a reading. Last night I woke up soaking wet and hot, so I knew I was low. When I scanned, it read LO.
      After drinking a cup of juice, I scanned again and it read 40. It was a long morning…

      2 years ago Log in to Reply
    33. Cheryl Seibert

      I set a higher BG alarm point for nighttime compared to daytime. That way, I lose less sleep. I use Sleep Mode on my Tandem pump 11pm to 6am, so automatic high corrections are not active. The low alarms stay the same. However, I don’t often have alarms overnight. I’m usually 90+% in range.

      2 years ago Log in to Reply
    34. stillarobyn

      Calibration reminders for my CGM

      1 year ago Log in to Reply

    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you. Cancel reply

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