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    • 4 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 4 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 4 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 5 hours, 52 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 58 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 5 hours, 58 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 5 hours, 58 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 5 hours, 58 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 6 hours, 2 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 6 hours, 3 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 24 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 25 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 45 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 54 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 6 hours, 54 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 54 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 54 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 6 hours, 54 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 6 hours, 55 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 6 hours, 55 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    Were you experiencing DKA (diabetes-related ketoacidosis) when you were diagnosed with T1D?

    Home > LC Polls > Were you experiencing DKA (diabetes-related ketoacidosis) when you were diagnosed with T1D?
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    Several companies are investigating islet cell replacement therapies for people with T1D, some of which would require patients to be on immunosuppression therapies. Out of the following options, which of these outcomes would be the most meaningful and desirable for you?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. Amanda Barras

      I don’t know as I had just barely turned 4. I remember the Drs visit and the hospital but not the nature of my condition upon being admitted.

      2 years ago Log in to Reply
    2. Ahh Life

      Being only 4, I cannot remember a thing. In the subsequent 70years, however, I have only been symptomatic once or twice. ლ( ͡◣ ͜ʖ ͡◢)ლ

      2
      2 years ago Log in to Reply
    3. ConnieT1D62

      I don’t know. Perhaps I did. It was Nov/Dec 1962 and I was 8 years old. I remember being very sick “with something” causing nausea, vomiting, malaise, weight loss and extreme thirst with constant peeing.

      2 years ago Log in to Reply
    4. Steven Gill

      Originally diagnosed TYPE 2 and yes at that time.

      2 years ago Log in to Reply
    5. Sherolyn Newell

      If I was, it making me sick. My A1C at diagnosis was 14.1, so maybe. My first diagnosis was also Type 2. By the time I went to an endo, I was starving myself down to 8.3. At that time, my endo said it would be interesting to know if I had been experiencing DKA previously.

      2 years ago Log in to Reply
      1. Lynn Smith

        In 1967, at the age of 12, I was finally hospitalized for my symptoms. I had not kept down any food for nearly a week. Since I was already a skinny kid, that brought my weight down even further; I looked like a skeleton. Don’t know what my blood sugar was, but I am sure it was very high. My vision was very blurry so I had to wear glasses for a month or so until my body adjusted to normal blood sugars. I think I was in the hospital for four days.

        2 years ago Log in to Reply
    6. Joan Fray

      Sixty years ago. I was 12. My dad (t1d) himself) diagnosed me and took me to his doctor at Palo Alto Clinic. Home same day.

      2 years ago Log in to Reply
      1. AnitaS

        Wow, how wonderful your dad recognized what was going on and took you to an endo right away.

        2 years ago Log in to Reply
    7. rick phillips

      I was experiencing DIHD syndrome however.

      Dammit I hate diabetes syndrome

      3
      2 years ago Log in to Reply
      1. cynthia jaworski

        what is DIHD syndrome?

        1
        2 years ago Log in to Reply
    8. Mick Martin

      I don’t know as when I was initially diagnosed I knew virtually nothing of diabetes … even though I had a brother who had already been diagnosed as a type 1 diabetic. (Many years ago, type 1 diabetics were sent away to ‘special’ diabetic schools. My brother was more than a 100 miles from me, and the rest of my family.)

      What I do know is that when my doctor tested my urine, which was the way to test for diabetes, i.e. it was years before blood glucose meters became available for even doctor’s surgeries, I took my first insulin injection within about 1.5 – 2 hours. (I was admitted to hospital for about 1 week and was constantly bombarded with information of what to expect; what life was going to be like for me, etc. and was given no written information that I could refer back to.)

      2 years ago Log in to Reply
    9. Tere North

      The ketones weren’t tested, but they had to dilute my blood 50/50 to get a reading. Even then it was 800, so 1600 without.

      2 years ago Log in to Reply
    10. Amy Jo

      Found out due to a college class assignment that included a health screening.

      2 years ago Log in to Reply
    11. William Bennett

      I was certainly feeling sick, but not tipped over into DKA yet. Dr told my wife (I was 28) “If you hadn’t come in, you probably wouldn’t have been able to wake your husband up tomorrow morning.” So DKA adjacent, anyway!

      2 years ago Log in to Reply
    12. connie ker

      I was told over the telephone to my husband’s endo Dr. office to go buy a ketone test kit at the drugstore which I did. It showed ketones and the meter showed HIGH. I was 49 years old and later learned the term LADA which is what I have 23 years later.

      2 years ago Log in to Reply
    13. Conniekaycox

      Was forty nine. Spent 4 days in the ICU and almost died. Was horrid. That was march of 2020 when pandemic started. Am so thankful to all of you for sharing on here. Has been a rough year and a half. Without this site would have little to no information from people who live with this daily. Your all awesome.

      3
      2 years ago Log in to Reply
      1. Beth Franz

        The lack of good information from medical “professionals” is unreal. Like you, finding online forums with other patients sharing stories and info saved my life as well.

        2 years ago Log in to Reply
    14. Natalie Daley

      My doctor sent me for a five-hour fasting blood sugar test. The lab stoped it when it ranged 350-35. They said they don’t want to kill me. It was 1986 and this was my 40 birthday present. My GP treated it as Type 2 and had a dietician design a Draconian diet of 800 calories to lose 25 lbs. she agreed to 1100 but no more. I kept the diet and the weight off for five years. When my annual A1C was 12, I was placed in 70/30 insulin. He had no idea what to do with. A specialist at OHSU saved my life.

      2 years ago Log in to Reply
    15. Bob Durstenfeld

      I was 18 months old and had severe, chronic , diaper rash.

      2 years ago Log in to Reply
    16. Janis Senungetuk

      No, but I certainly didn’t feel well. It was 1955, I was 8 yrs. old. At no time during the whole month I was hospitalized did anyone say a word to me about diabetes, insulin injections or a specific diet. I’ll never understand why. All of the MD’s only spoke with my parents, just left me to wonder what was wrong.

      2 years ago Log in to Reply
    17. Becky Hertz

      I don’t know for sure but I doubt it. I Summit feel bad, just peeing and drinking and losing weight.

      2 years ago Log in to Reply
    18. AnitaS

      Yes, I was in DKA and lapsed into a coma at the hospital. Total time in the hospital was about 7 days. That was in 1973 and I was 9yrs. old at the time.

      2 years ago Log in to Reply
    19. LizB

      After feeling run down for a few weeks and then starting to feel really bad, unsable to do anything but drink and pee, I finally saw a doctor. He asked me to pee in a cup and then looked really scared. He told me to go to the ER immediately, don’t stop to go home for anything. He wrote a note asking them to take me right away. I still had to wait at least half an hour in the waiting room!
      In the ER the doctor there said she couldn’t believe that I was still conscious. She told my mother I should be dead. I got moved to a room very quickly where I was hooked up several IVs and monitors. Nobody really explained anything to me. I was begging them for a drink but wasn’t allowed anything. After 4 days they finally started to get everything in range and I was allowed to eat & drink. I spent 8 days in the hospital.

      2 years ago Log in to Reply
    20. Henry Renn

      Don’t know for sure but wasn’t really sick when insulin was begun at home.

      2 years ago Log in to Reply
    21. George Lovelace

      Father was LADA T1, I was Dxed in 1964, age 15. Surprised both Parents didn’t notice the 27 lb. weight loss, probably DKA caused.

      2 years ago Log in to Reply
    22. Denise Lyons

      Went to my Dr concerned that I might have type 2 diabetes. He brushed it off without any testing because I was a fit runner. Two months later I was found DKA, non responsive at home. Well he was right I’m not a type 2 diabetic…. This was 2020 at age 50.

      2 years ago Log in to Reply
      1. Karen Newe

        Stores like these frustrate me so much. A simple finger stick would have provided the information needed. I wish this became as standard as the blood pressure test.

        2 years ago Log in to Reply
    23. BOB FISK

      I was diagnosed in 1963, after a long series of mishaps that prevented me from going to my doctor. By the time he saw me, there was no doubt I was diabetic. He did a Benedict’s test, which of course was 4+. I was admitted to the hospital that evening and became unconscious during the night because of DKA that had existed for quite a while.

      2 years ago Log in to Reply
    24. lis be

      I don’t know, it was over 40 years ago. My mom brought me to the doctor because I was drinking a lot of water, peeing a lot and super thin. She saved my life! but I don’t remember hearing the term DKA until I was in my 20’s

      1
      2 years ago Log in to Reply
    25. PamK

      I was 2 1/2 years old, so I really don’t know if I was showing DKA symptoms.

      2 years ago Log in to Reply
    26. Molly Jones

      No DKA for me. I was diagnosed as type 2 during my annual check up at the age of 30. I don’t remember feeling any symptoms. The medications didn’t affect my BG and a around a month later the diagnosis was changed and spent a few days in the hospital getting adjusted to insulin.

      2 years ago Log in to Reply
    27. Beth Franz

      Yes with symptoms spanning over 2 months. Stopped eating, lost 40 lbs and barely walked upright into the ER that day with 500+ bg and zero potassium reserves. I had just moved into this city and had no PCP yet nor the ability to get into see a doc beyond the ER. I saw the look on that nurse’s face in the ER once my results started coming back as I got wheeled into the ICU. Apparently I was hours away from a coma. Misdiagnosed as T2, put on wrong amounts of insulin/meds and sent home. Retooling my diet, insulin amounts/types, and reading copious amount of information online is what has kept me alive!

      2 years ago Log in to Reply

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