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    • 13 hours, 24 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 13 hours, 26 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 13 hours, 27 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 13 hours, 28 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 13 hours, 36 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 15 hours, 28 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 15 hours, 29 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 15 hours, 31 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 19 hours, 32 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 21 hours, 34 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 22 hours, 16 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 19 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 22 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 22 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 22 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 22 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 22 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 52 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 53 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 23 hours, 5 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 34 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    On a scale of 1-5 how informed is your T1D health care team about the latest T1D technology and medications? (1 = not at all informed, 5 = very informed)

    Home > LC Polls > On a scale of 1-5 how informed is your T1D health care team about the latest T1D technology and medications? (1 = not at all informed, 5 = very informed)
    Previous

    Have you ever accidentally given yourself an injection of rapid-acting insulin instead of a long-acting (or vice versa)? Share in the comments how you handled this situation.

    Next

    How often do you make adjustments to your insulin-to-carb ratio?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Ahh Life

      5. I have only two requirements for selecting a physician. One, that they practice evidence-based medicine. And two, that they be reasonably current in the state of the art of their particular specialty. Obviously, bed-side manner counts little. Others may disagree, but those are my only two requirements. 💯

      1
      3 years ago Log in to Reply
    2. Lawrence S.

      I said, “I am unsure.” Discussion of latest technology only comes up when I mention it. My Endocrinology APRN is focused on my blood glucose readings, and making adjustments on my insulin pump. Not much discussion of technology.

      1
      3 years ago Log in to Reply
    3. mrthnmn

      I’m not sure if they know about new technologies and medications but they often don’t tell me about them. With research developments they certainly don’t tell me. I just found out about carb counting.

      3 years ago Log in to Reply
    4. Eva

      My endo office is always recruiting/conducting clinical studies. I appreciate that knowledge and benefit from it.

      3 years ago Log in to Reply
    5. Georgina Sokol

      I have NEVER had a doctor who ever mentioned new technology or advances on T1D.

      3 years ago Log in to Reply
    6. Jane Cerullo

      Usually know but office is so busy and Nurse Practitioners come and go so it’s better if I am interested in something that I bring it up.

      1
      3 years ago Log in to Reply
    7. Barbara Bubar

      I am usually the one to bring up new information, with accompanying paperwork, about diabetes technology. My NP is always appreciative. Yes, it’s a little role reversal but it’s fine.

      2
      3 years ago Log in to Reply
    8. Henry Renn

      My Endo C-PA is very well informed. As far as tech I use they staff have inside liasons with 2 companies. They also have assisted in the past when I had issues with my med supply company about getting supplies for my pump & CGM in a timely manner.

      3 years ago Log in to Reply
    9. Dave Akers

      I think a better question is how knowledgeable are they about the applications of new technologies. They usually are informed, but they are hesitant to apply new tech as they are unfamiliar with real-world experience.

      2
      3 years ago Log in to Reply
    10. Sue Martin

      They are part of a research and teaching hospital complex. So, yes they are very informed.

      3 years ago Log in to Reply
    11. Becky Hertz

      I’m seen at the UW Diabetes Institute in Seattle. I’d hope they were in top of things 😀

      1
      3 years ago Log in to Reply
    12. Kevin McCue

      Technology usually leads me to tell them but treatment options like using T2d drugs in combination with insulin for T1d management comes from them.

      3 years ago Log in to Reply
    13. Mick Martin

      My T1D health care team consists of more than 1 individual. Therefore, I would answer that SOME of them are very well informed about the latest T1D technology and others not so much.

      3 years ago Log in to Reply
    14. Melinda Lipe

      It’s hard to tell – usually ready to discuss if I bring it up, but they don’t bring it up themselves.

      1
      3 years ago Log in to Reply
    15. Kristine Warmecke

      Mine is very up to date. Not sure if she still is the head of Metabolism and Endocrine Research at the Medical University where I see her.

      3 years ago Log in to Reply
    16. Chris Albright

      They might be a ‘5’, but I don’t see that level of engagement during our meetings or disscussions

      2
      3 years ago Log in to Reply
    17. Jen Farley

      He keeps me updated, if I can’t update him first.

      3 years ago Log in to Reply
    18. Steven Gill

      In my 25 years seen 5 endocrinologists, only 1 seemed well versed in total care (at those medical trials for TYPE2 out of control). By that I mean did teaching as well as more modern insulins. His referral seemed fine but new, changed docs due to job/insurance changes. (my 1st endo~ said I was too old to be a TYPE 1, won’t say more…).The last seemed technically up to par but since the trials I kind of took control with my diabetic care. She was more hands off but did get me pumping. Since moving I looked for a doctor for convenience, while he generally refers all TYPE 1s to a local hospital (and marginally controlled TYPE2s) he’s my only health care provider. He and the staff seem comfortable with my a1Cs (last 3 in low 6 range) and agreed to my request for metformin. Knows nothing of an insulin pump or CGM, however easily prescribed me for the newest Medtronic system, takes care of my “other” healthcare needs.

      But I’m constantly reading literature on diabetes, periodicals, of medicines, and tech. We do discuss these.

      3 years ago Log in to Reply
    19. McKenzie H

      My endocrinologist is type 1 himself so I think that plays a role when it comes to being informed of diabetic technology and advancements.

      3 years ago Log in to Reply
    20. Brad Larson

      My endocrinologist is well aware except for Symlin (By Amylin) this may be due to the demographics of his patients. Low income neighborhood- The only place I could find an Endocrinologist. Symlin not covered by insurance.

      3 years ago Log in to Reply

    On a scale of 1-5 how informed is your T1D health care team about the latest T1D technology and medications? (1 = not at all informed, 5 = very informed) Cancel reply

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