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    • 6 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 8 hours, 48 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 8 hours, 50 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 11 hours, 41 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 11 hours, 58 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 12 hours, 54 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 16 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    In your experience, what are the biggest barriers to accessing diabetes-related medical care? Select all that apply.

    Home > LC Polls > In your experience, what are the biggest barriers to accessing diabetes-related medical care? Select all that apply.
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    21 Comments

    1. Bonnie Lundblom

      It’s hard sometimes to get my endocrinologist appointment scheduled tp be compliant with Medicare rules. I’m on a pump I must be seen every 3 months and there have been times that I had to beg to be fit in on any day at any time. Thankful that where I live there are plenty of endocrinologists who give excellent care to their patients.

      3 years ago Log in to Reply
    2. Ahh Life

      For a majority of folks it is probably cost. But right now in January of 2021 my biggest barrier is “other,” namely technical equipment failures–CGM’s, pumps, insulin. C’mon! This is 2021. This should not be happening.

      3 years ago Log in to Reply
    3. AimmcG

      Luckily I don’t have any real issues. Even though I May plop up here or there and feel guilty about my blood sugar numbers, I keep my appointments and face the consequences. If I have to change an appointment though it ends up causing delays as I can’t get in for 3 months!

      3 years ago Log in to Reply
    4. Donald Cragun

      My biggest problem is getting Solara Medical Supplies to ship me CGM and pump supplies in a timely manner.

      3 years ago Log in to Reply
    5. Karen Bowlby

      Edgepark

      3 years ago Log in to Reply
    6. Chip Brookes

      I have no problems being seen by my endo. He is the best. He takes time to listen to and discuss my concerns. I dread the day he retires

      3 years ago Log in to Reply
    7. Kim Pedraza

      I do have feelings of guilt being so brittle, everything effects my sugar. I am able to control the feelings. The biggest frustration is calling on medical supplies. I will be on hold forever trying to get through to someone. This is every single time I call.

      3 years ago Log in to Reply
    8. ConnieT1D62

      Like others have stated the biggest barrier is getting an appointment with the endocrine provider within the Medicare q 3 month time frame. To avoid hassles, I typically schedule them a 6 months to a year in advance and make sure I have no other commitments to interfere because having to reschedule with her can be next to impossible. However, the endo practice I go to has a roster of providers that can be seen in a pinch if need be.

      3 years ago Log in to Reply
    9. Thomas Hatton

      By far it’s cost for me. I have been carefull keeping track of my health insurance costs and for 2020 I paid 10% of my income for supplies copays and

      3 years ago Log in to Reply
    10. Stephen Woodward

      Medical equipment providers are a significant road block the need constant attention to have the supplies to manage T1D. And, the fact that the medical field is inundated with profit seekers that are killing and maiming people daily.

      3 years ago Log in to Reply
    11. Ernie Richmann

      Overall I have had few obstacles. I dread ordering supplies by phone which dexcom requires for some reason I don’t understand. It seems like forever once you are connected with the same questions repeated. I would say the pandemic has been an obstacle for many.

      3 years ago Log in to Reply
    12. Marjorie Priceman

      I moved from a major city to a rural area some years ago and found that Endocrinologists were few and far between. I do see a Nurse Practitioner who specializes in Diabetes, who is quite good, but I am one of the few Type 1 Diabetics she sees. Additionally, my family practice doctor is very well meaning but unaware of all the differences between T1 and T2. I have had Type 1 for 49 years and am doing quite well nonetheless.

      3 years ago Log in to Reply
    13. connie ker

      I am in the 4% of replys that say “other”. My other is I am completely satisfied with the NP Endo and her RN who travel 3 times a month to my smaller city. Now I can stay intown and they do the driving. I am so happy about this new arrangement, happy to be on Medicare with a supplement, and happy with my Medicare RX plan. So my only concern is what is going to happen with the Biden/Harris socialized medicine upheaval????? Will I be censored for saying that?

      3 years ago Log in to Reply
    14. Patricia Dalrymple

      Well, if we are getting political which is not a good idea, I would say my biggest worry used to be losing my job and not being able to get health care because of a pre-existing condition. My answer is time but also how often I have to go. I’ve talked my Endo into 3 times insyea

      3 years ago Log in to Reply
    15. Patricia Dalrymple

      I really don’t care for this new format – no editing at least via phone. Anyway to continue, I’m in control of my disease and would like to cut visits to twice per year. I go 3 times now.

      3 years ago Log in to Reply
    16. Sherolyn Newell

      @Ernie, I order Dexcom online, you should ask again. Regarding the question, my doctor always says come back in 3 months, then the scheduler says the next open appointment is closer to 4 months. So I said lack of appointment times.

      3 years ago Log in to Reply
    17. Janis Senungetuk

      Insurance coverage and cost are constant barriers. I waited 60 years before getting an insulin pump because of the cost. Even with supplies ‘covered’ by insurance there are still co-pays and now co-insurance that require payment.

      3 years ago Log in to Reply
    18. Ann Taylor

      I’m on Medicare with a supplement. I hate it when they decide they are not going to cover something- like now they aren’t going to cover Dexcom-then you have to call you care giver to see if they will talk to the insurance company. Luckily my care givers are great at least everyone but the endo. That was my 2nd check. Not enough endos in the area and I live in a good size city. The 3rd check was feeling ashamed- when I go high I figure it’s my fault I’m with you Connie. I’m worried about the next 4 years Does everyone else get all the comments cause I only get 5

      3 years ago Log in to Reply
    19. Patricia Dalrymple

      I’ve complained about the number of comments I see as well. Goes nowhere.

      3 years ago Log in to Reply
    20. Becky Hertz

      I’m on Medicare and dislike that they are so far behind in allowing us to treat our disease with the most up to date medicines and technology. One size does not fit all and sometimes you need more then one size. I dislike that insurance plans can dictate what you can and cannot use or charge exorbitant amounts is you have to use non-formulary meds (I’m allergic to Humalog!). I should be able to use everything I want to manage the Diabetes. We are all different and do is how we can best deal with this disease.

      3 years ago Log in to Reply
    21. Cheryl Seibert

      Pharmacy issues with pre-authorization, 90-day reorder time limits and lack of pharmacy coverage for items listed on their formulary are my biggest issues. The inability to reorder outside of the 90-day date causes issues when there have been infusion site / sensor failures. CVS Caremark’s inventory system does not differentiate between various insulin pump supplies (sets vs reservoirs), so in the past on Medtronic pumps, I would reorder sets and the system marked sets and reservoirs as being reordered. I’ve lost days of my time over the past 5-7 years with pharmacy and insurance coverage of all diabetic-related supplies. They lump ALL diabetics into one category (Type 2).

      3 years ago Log in to Reply

    In your experience, what are the biggest barriers to accessing diabetes-related medical care? Select all that apply. Cancel reply

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