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    • 7 hours, 32 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 8 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 8 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 8 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 11 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 11 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 11 hours, 55 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 18 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 15 hours, 15 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 6 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 6 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 6 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 6 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 6 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 8 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 8 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 14 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 15 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you are currently wearing a CGM, where on your body is your sensor placed right now?

    Next

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Sherolyn Newell

      I answered 5. Every few weeks, I hit a cycle of night time highs. I do not know why, but it’s a regular occurrence and I am in one now. Usually lasts a week or so. Under normal circumstances, it’s more like one or two.

      1
      4 years ago Log in to Reply
    2. Gary Taylor

      I answered 7. I don’t keep a log, though maybe I should. It seems to me that every night was interrupted by some alarm from my Medtronic 770G system. One night it was so frustrating that I dreamed my BG was high and in my semi-conscious state I gave myself a bolus. A few minutes later, I jolted fully awake wondering what the hell I had done. I got up and checked my BG. It was 120 not 198. This was at 4:30 am. I fixed myself something to eat, made some coffee, and stayed up.

      2
      4 years ago Log in to Reply
    3. Daniel Smith

      I answered 4. I started wearing a dexcom…. Love the device but man, you got to be on top of it otherwise it will alert you all night long.

      3
      4 years ago Log in to Reply
    4. Elissa Macher

      I’m happy for the night alerts! I’d much rather my TSlim/Dexcom wake me up, than go high or low!

      1
      4 years ago Log in to Reply
    5. GLORIA MILLER

      My Libre does not alarm. I am older and I wake up often during the night checking my glucose every few hours. If higher than I prefer I take a small bolus or treat for a low if necessary.

      4 years ago Log in to Reply
    6. George Lovelace

      I answered 0 because my Tandem X2 follows
      my Dexcom G6

      4 years ago Log in to Reply
    7. rick phillips

      I have wakened at 3:00 AM fit 47 years to chk blood sugar. My sensor can not help me with that.

      1
      4 years ago Log in to Reply
    8. Ahh Life

      Answer 4. There is a famous line at the end of Act 1 in Macbeth:

      “I go, and it is done’ the bell invites me. Hear it not, Duncan, for it is a knell, that summons thee to heaven or to hell.”

      Sigh!

      4
      4 years ago Log in to Reply
    9. William Bennett

      Had a bout with “compression lows” a few nights ago. There’s no way I can avoid sleeping on whichever side my Dexcom is located on, and generally that’s not a problem, but every once in a while I end up getting my chain yanked with false “urgent low!” alerts, always at stupid-o’clock in the a.m. Hate it when that happens.

      3
      4 years ago Log in to Reply
    10. connie ker

      I have had trouble sleeping because I have a broken down car sitting in my garage, and that is a troubling problem to solve. I don’t have alerts with the Freestyle Libre, but I check when I get up for bathroom trips.

      4 years ago Log in to Reply
    11. Amanda Barras

      Sadly a lot lately. When my TSlim gets less than 30 units in reservoir it doesn’t deliver right and I go high, so then I go take a shot and sometime I take too much, and go low. I’ve got to remember to refill to get me through the night better or change everything out early before it’s empty. Sigh.

      2
      4 years ago Log in to Reply
    12. dave hedeen

      AutoMode insures active diabetes management every 4 hours.
      Manual Mode insures sleep yet can result in too high or too low BG situations.

      1
      4 years ago Log in to Reply
    13. Janis Senungetuk

      Twice in the past week I’ve had to deal with false low alarms from a failing Dex sensor. When all the tech works together it’s wonderful, but if a component has problems it disrupts everything else.

      3
      4 years ago Log in to Reply
    14. Patricia Dalrymple

      I don’t have a CGM and can’t decide whether I want one. I NEED one but not sure about what you all are saying. I too am older and wake up at least once a night unless I stay up past 11pm. So, I check then. Normally when I go low, I get hot and that wakes me up, like last night. But only twice this week.

      4 years ago Log in to Reply
    15. Brandon Denson

      Trying to balance the highs and lows on this diabetes rollercoaster is very interesting. As I type this my Dexcom just alerted me NO READINGS ALERT – SENSOR ERROR – TEMPORARY ISSUE. WAIT UP TO 3 HOURS.

      Ain’t nobody got time for that lol 😂

      5
      4 years ago Log in to Reply
      1. Lawrence Stearns

        I’ve been going through the same thing with my Dexcom G6 system for a month now. I wonder…

        1
        4 years ago Log in to Reply
    16. Natalie Daley

      I started to use a CGM when the Freestyle Libre 2 came because of the alarm system. It works beautifully, but yes I was alerted four nights last very busy week. I turned 75, and this sensor systems is one of the better developments.

      1
      4 years ago Log in to Reply
    17. Tracy Jean

      This week has been a bad one, with four bad sensors reading much lower than I was.

      2
      4 years ago Log in to Reply
    18. Sahran Holiday

      Rare that I don’t get multiple alerts for lows. Will reduce my basal again after I get my A1c this Friday.

      1
      4 years ago Log in to Reply
    19. Ken Raiche

      I’ve got to admit I really enjoy the Tandem G6 combo as well Keto have no interruptions what so ever. Actually the only interruption that I receive is the 12 hour warning for not touching or using my pump.

      4 years ago Log in to Reply
    20. Bruno Filho

      T1D diabetes is worse than HIV. Change my mind.

      4 years ago Log in to Reply
    21. Amy Schneider

      I’ve learned to turn the alerts to silent each night.

      1
      4 years ago Log in to Reply
    22. Henry Renn

      Actually my wife hears it & wakes me but not for lows. I get awake when I get feelings associated with low or rapidly falling bg.

      1
      4 years ago Log in to Reply
    23. Wanacure

      After 3 months I’m conditioned to ALWAYS put my Dexcom 6 receiver in my pocket before stepping outside, even if just to hang clothes on backyard clotheslines or just across the avenue to check mailbox. Over 20’ distance between sensor and receiver can yield NO READINGS ALERT. And I haven’t given up comparing my CGM readings to finger prick readings…yet. Comparing readings really helped to persist in calibrating the CGM which at first was interrupting sleep with inaccurate low readings. CGM helped lower my amounts of two glargine and three lispro amounts of insulin delivered by injections.

      4 years ago Log in to Reply
    24. Jneticdiabetic

      Too many! I so appreciate the CGM technology, but it’s a love-hate relationship due to alarm fatigue overnight.

      1
      4 years ago Log in to Reply
    25. Molly Jones

      The alerts go off every night, but I have become accustomed to them unless they continue too long from long lasting low/ or very low BG. I also started wearing earplugs many year prior to T1D for help with sleeping.

      4 years ago Log in to Reply
    26. Cheryl Seibert

      I am awakened frequently. I have a high alert set at 140 because CIQ (Tandem) does not act quickly enough to stop the spike in BG. I use Sleep Mode to control the lows during sleep, which it does.

      4 years ago Log in to Reply
    27. Catherine Davis

      I do not worry about alarms overnight like I used to with the Medtronic Guardian sensor, 670G system. The alerts that happen with Tandem t:slim and Dexcom are not very concerning and I can generally ignore them or acknowledge and go back to sleep.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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