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    • 7 hours, 55 minutes ago
      Cecilia Yamamoto likes your comment at
      At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
      Why aren't there more studies on heart disease risk with only T1Ds? I have read peer reviewed medical articles that confirm that T1Ds were not studied exclusively in statin research. We were advised to be treated with statins even if our cholesterol was excellent and there were no other risk factors. I suffered from elevated A1c, weight gain, insulin resistance, extremely low cholesterol which led to vitamin D deficiency which caused respiratory problems and inability to exercise or enjoy leisure activities due to breathlessness and muscle pain. Doctors believed that any symptoms reported by patients were due to the "Nocebo effect" despite my improvement when I didn't take statins for six months when I forgot to refill my prescription! I suffered these side effects from 2002-2016 when I finally found a doctor who took me seriously. We need to be treated as individuals with T1D, not treated based on studies on the majority of T2 studies.
    • 9 hours, 2 minutes ago
      Lenora Ventura likes your comment at
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes, my dad had T1. My diagnosi made him and my mom so sad. I tried hard to make it no big deal so they wouldn’t worry.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 3 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected)

    Home > LC Polls > On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected)
    Previous

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

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    20 Comments

    1. Larry Martin

      How in the HELL would it be affected at all? This sounds like a Facebook question.

      2
      2 years ago Log in to Reply
    2. Sahran Holiday

      1 least affected. What’s Day after the 1?

      People know cause they see the Omnipod and CGM. Sometimes they ask. At the dance studio some of my closer friends watch my balance. Everyone goes in my bag to help themselves to snacks.

      1
      2 years ago Log in to Reply
    3. Daniel Smith

      I could see if I had a lot of fear surrounding my treatment I might turn down things that they want to do. But I am actually the planner in my group so no effect. Just takes a little planning ahead.

      1
      2 years ago Log in to Reply
    4. connie ker

      I put #3 because I am a widow living alone. Being spontaneous is difficult for me if I don’t make plans ahead of time and take insulin in a cool container or driving alone keeps me closer to home since I am a senior with type 1 LADA.

      3
      2 years ago Log in to Reply
    5. Christina Trudo

      My reaction is completely the opposite of Larry’s. I think everything in my life has been affected by diabetes in ways large and small. 59 of my 70 years.

      2
      2 years ago Log in to Reply
    6. Ernie Richmann

      I entered 1. What does the ā€œdayā€ after 1 mean. It usually does not have an affect for a whole day.

      2 years ago Log in to Reply
    7. Henry Renn

      At age 70 & 65 yr T1 almost everything is affected. I have some complications. I have to be choosy about restaurant menus when dining out. I didn’t socialize during quarantine. With diabetic arthropathy I can no longer hike so we can’t go out hiking with friends. I do not hold my wife back however so sometimes she goes out hiking with family. That is an affect on both of us bc we used to do that together. I think readers can extrapolate from the above so I won’t go on. In younger days my answer would have been a “2” but control of bg during physical activity & exertion would have been something non-diabetics didn’t have to worry about.

      4
      2 years ago Log in to Reply
    8. Clearblueskynm

      Two ways to look at it, it can affect it positively or negatively, but there is definitely an affect since a T1 makes so many decisions daily to keep themselves healthy. I chose 4, because it is so intertwined in my life that I even have a higher medical understanding and comprehension than those without a medical vindication that they grew up with. Some of the affects benefit my family greatly (call me when their doc has them doing tests so I can explain and calm them) and it can be negative as I sometimes need to sit something out. A lot of my effects from T1 I view positively, would I have been as fit and athletic as I am no without having T1 ? Many of my friends the same age don’t go bike, hike, swim, horseback riding – they simply can’t due to other physical issues. They may not understand the importance of vaccines, taking care of health, etc. I know this question set some people off, but they didn’t state it was a negative affect – and I see it in mostly positive affects, a few negative.

      2
      2 years ago Log in to Reply
    9. Becky Hertz

      Difficult question to answer since my life in it’s entirety is affected by T1. There’s positives and negative’s and ups and downs. When I really think about it, all decisions are made through T1 glasses.

      5
      2 years ago Log in to Reply
    10. Patricia Dalrymple

      We are all different and as a result we all react differently to this question. I see that as a positive. I surely don’t want to live in a world where everyone agrees with each other. My personal decisions almost always include a thought about T1D. It isn’t a deciding factor but I HAVE to plan properly. It MUST be thought about, unless you want to die an early, blind, amputated life (I known ALL of these through other people). And my T1D absolutely affects my husband, mainly because other people can’t shut up about how it affects someone they know. I have never had a negative reaction even though I’ve been as high as 420 when diagnosed and as low as 19. But someone told him they often went to sleep and wouldn’t wake up unless someone intervened. So now, I get pushed in the middle of the night if he cannot hear me breathing. And I agree: the diagnosis has had positive and negative affects. I feel blessed to have a community of free-thinkers that I belong to. Stay strong T1Ds!

      2
      2 years ago Log in to Reply
    11. Janis Senungetuk

      For the past 66 years every aspect of my life has been affected by T1D. All of my family, friends and business acquaintances have shared different parts of the journey.

      3
      2 years ago Log in to Reply
    12. ConnieT1D62

      Everyday and not at all. It is a part of my life and the life of those I am in relationship with because it is what it is and cannot be otherwise.

      1
      2 years ago Log in to Reply
      1. ConnieT1D62

        Oh by the way, I answered Other.

        2 years ago Log in to Reply
    13. Anita Galliher

      I answered 5. After 58 years with T1D, I find that tingling feet and legs waking me up in the morning to be just the beginning of my daily relationship with the disease. Then it’s checking my CGM, taking insulin if I’m high or starting a temp basal if I’m a little low before my morning coffee. Gym or walk or sedentary morning – further adjustments. How much insulin for lunch depends on the morning’s activities and number of carbs, plus the part the afternoon’s activities plays. Same goes for dinner and TV time. Then add in a husband, the dog, sometimes the grandkids, popcorn at
      a movie, a swim at the pool…… it’s a 24/7 kind of disease. As an extra added bonus I have neuropathy, charcoarthropathy, RLS, hypertension, depression, fatty liver, glaucoma and sleep apnea, most of which stem from T1D. I would probably weight twice as much as I do now if not for the food restrictions, so that’s one, and very possibly the only good thing about it. I hate it, and therefore have more trouble with it with every passing day. I’m now 72 years old and would so dearly love a cure. Instead, there’s never even a vacation from it, not even for one day.

      2
      2 years ago Log in to Reply
    14. Carol Meares

      Intimate and social are totally different categories for me. My husband is 100% affected by my diabetes. My social interactions with others varies but minimally affected unless I have a low while socializing with them. Friends try to accommodate my low carb eating but some are unaware of my eating habits due to T1D. I would give most friends a 1-3. Sorry that I can’t answer more focused on a single number.

      2
      2 years ago Log in to Reply
    15. Brandon Denson

      This is a very good question but I also find it hard to answer. Diabetes affects us in so many different ways personally which leaves me to believe that it has had a positive or negative affect on our relationships.

      To measure it by a number would be impossible.

      2
      2 years ago Log in to Reply
    16. Ann Auerbach

      Not affected one bit.

      1
      2 years ago Log in to Reply
    17. Molly Jones

      I answered with a 1, as it seems much less affecting than my epilepsy, but this is a question to be asked of those around me.
      I don’t know how bothersome it is to have my low glucose alarms at night for my husband, to have to be constantly concerned of the carbs in my meals, or if I need sugar due to hypoglycemia for other people. To me these things can be easily understood and managed compared to the unknown possibility of seizures.

      2
      2 years ago Log in to Reply
    18. Wanacure

      At first I answered just one day. But on second thought, yes, it’s affected every day of my life in both positive and negative ways. Would I have started training with weights at age 15? Would I later have taken up aerobic jogging and swimming and taken yoga classes as well? Every day at every meal I weigh my food portions. I take my finger pricks and injections in public spaces like light rail or buses. When attending social events I make it clear why I’m making such careful food choices. Intimate relationships? From the start I make it clear what to do if my face turns white or my behavior is unusual: ā€œask me to check my bg. If I’m passing out (unlikely nowadays) put these sugar cubes in my mouth.ā€ I ask if friends or acquaintances want more info when they reveal they’ve been diagnosed as pre-diabetic. I try to reassure them they can take steps to avoid diabetes. I always mention Dr. Richard Bernstein’s books. We all know the negatives. I try to make lemonade out of a lemon.

      2
      2 years ago Log in to Reply
    19. Cheryl Seibert

      I answered 4. A couple of years ago, I would have said 2 but I’m caregiving an elderly relative so stress has made pump alarms more frequent and so makes me cranky which affects those around me.

      1
      2 years ago Log in to Reply

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected) Cancel reply

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