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  • Activity
    • 4 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 28 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 44 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 54 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 42 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 45 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 27 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 27 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 34 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 35 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 38 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 13 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 24 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 36 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 37 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you are currently wearing a CGM, where on your body is your sensor placed right now?

    Next

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected)

    Sarah Howard

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    28 Comments

    1. Sherolyn Newell

      I answered 5. Every few weeks, I hit a cycle of night time highs. I do not know why, but it’s a regular occurrence and I am in one now. Usually lasts a week or so. Under normal circumstances, it’s more like one or two.

      1
      2 years ago Log in to Reply
    2. Gary Taylor

      I answered 7. I don’t keep a log, though maybe I should. It seems to me that every night was interrupted by some alarm from my Medtronic 770G system. One night it was so frustrating that I dreamed my BG was high and in my semi-conscious state I gave myself a bolus. A few minutes later, I jolted fully awake wondering what the hell I had done. I got up and checked my BG. It was 120 not 198. This was at 4:30 am. I fixed myself something to eat, made some coffee, and stayed up.

      2
      2 years ago Log in to Reply
    3. Daniel Smith

      I answered 4. I started wearing a dexcom…. Love the device but man, you got to be on top of it otherwise it will alert you all night long.

      3
      2 years ago Log in to Reply
    4. Elissa Macher

      I’m happy for the night alerts! I’d much rather my TSlim/Dexcom wake me up, than go high or low!

      1
      2 years ago Log in to Reply
    5. GLORIA MILLER

      My Libre does not alarm. I am older and I wake up often during the night checking my glucose every few hours. If higher than I prefer I take a small bolus or treat for a low if necessary.

      2 years ago Log in to Reply
    6. George Lovelace

      I answered 0 because my Tandem X2 follows
      my Dexcom G6

      2 years ago Log in to Reply
    7. rick phillips

      I have wakened at 3:00 AM fit 47 years to chk blood sugar. My sensor can not help me with that.

      1
      2 years ago Log in to Reply
    8. Ahh Life

      Answer 4. There is a famous line at the end of Act 1 in Macbeth:

      ā€œI go, and it is done’ the bell invites me. Hear it not, Duncan, for it is a knell, that summons thee to heaven or to hell.ā€

      Sigh!

      4
      2 years ago Log in to Reply
    9. William Bennett

      Had a bout with “compression lows” a few nights ago. There’s no way I can avoid sleeping on whichever side my Dexcom is located on, and generally that’s not a problem, but every once in a while I end up getting my chain yanked with false “urgent low!” alerts, always at stupid-o’clock in the a.m. Hate it when that happens.

      3
      2 years ago Log in to Reply
    10. connie ker

      I have had trouble sleeping because I have a broken down car sitting in my garage, and that is a troubling problem to solve. I don’t have alerts with the Freestyle Libre, but I check when I get up for bathroom trips.

      2 years ago Log in to Reply
    11. Amanda Barras

      Sadly a lot lately. When my TSlim gets less than 30 units in reservoir it doesn’t deliver right and I go high, so then I go take a shot and sometime I take too much, and go low. I’ve got to remember to refill to get me through the night better or change everything out early before it’s empty. Sigh.

      2
      2 years ago Log in to Reply
    12. dave hedeen

      AutoMode insures active diabetes management every 4 hours.
      Manual Mode insures sleep yet can result in too high or too low BG situations.

      1
      2 years ago Log in to Reply
    13. Janis Senungetuk

      Twice in the past week I’ve had to deal with false low alarms from a failing Dex sensor. When all the tech works together it’s wonderful, but if a component has problems it disrupts everything else.

      3
      2 years ago Log in to Reply
    14. Patricia Dalrymple

      I don’t have a CGM and can’t decide whether I want one. I NEED one but not sure about what you all are saying. I too am older and wake up at least once a night unless I stay up past 11pm. So, I check then. Normally when I go low, I get hot and that wakes me up, like last night. But only twice this week.

      2 years ago Log in to Reply
    15. Brandon Denson

      Trying to balance the highs and lows on this diabetes rollercoaster is very interesting. As I type this my Dexcom just alerted me NO READINGS ALERT – SENSOR ERROR – TEMPORARY ISSUE. WAIT UP TO 3 HOURS.

      Ain’t nobody got time for that lol šŸ˜‚

      5
      2 years ago Log in to Reply
      1. Lawrence Stearns

        I’ve been going through the same thing with my Dexcom G6 system for a month now. I wonder…

        1
        2 years ago Log in to Reply
    16. Natalie Daley

      I started to use a CGM when the Freestyle Libre 2 came because of the alarm system. It works beautifully, but yes I was alerted four nights last very busy week. I turned 75, and this sensor systems is one of the better developments.

      1
      2 years ago Log in to Reply
    17. Tracy Jean

      This week has been a bad one, with four bad sensors reading much lower than I was.

      2
      2 years ago Log in to Reply
    18. Sahran Holiday

      Rare that I don’t get multiple alerts for lows. Will reduce my basal again after I get my A1c this Friday.

      1
      2 years ago Log in to Reply
    19. Ken Raiche

      I’ve got to admit I really enjoy the Tandem G6 combo as well Keto have no interruptions what so ever. Actually the only interruption that I receive is the 12 hour warning for not touching or using my pump.

      2 years ago Log in to Reply
    20. Bruno Filho

      T1D diabetes is worse than HIV. Change my mind.

      2 years ago Log in to Reply
    21. Amy Schneider

      I’ve learned to turn the alerts to silent each night.

      1
      2 years ago Log in to Reply
    22. Henry Renn

      Actually my wife hears it & wakes me but not for lows. I get awake when I get feelings associated with low or rapidly falling bg.

      1
      2 years ago Log in to Reply
    23. Wanacure

      After 3 months I’m conditioned to ALWAYS put my Dexcom 6 receiver in my pocket before stepping outside, even if just to hang clothes on backyard clotheslines or just across the avenue to check mailbox. Over 20’ distance between sensor and receiver can yield NO READINGS ALERT. And I haven’t given up comparing my CGM readings to finger prick readings…yet. Comparing readings really helped to persist in calibrating the CGM which at first was interrupting sleep with inaccurate low readings. CGM helped lower my amounts of two glargine and three lispro amounts of insulin delivered by injections.

      2 years ago Log in to Reply
    24. Jneticdiabetic

      Too many! I so appreciate the CGM technology, but it’s a love-hate relationship due to alarm fatigue overnight.

      1
      2 years ago Log in to Reply
    25. Molly Jones

      The alerts go off every night, but I have become accustomed to them unless they continue too long from long lasting low/ or very low BG. I also started wearing earplugs many year prior to T1D for help with sleeping.

      2 years ago Log in to Reply
    26. Cheryl Seibert

      I am awakened frequently. I have a high alert set at 140 because CIQ (Tandem) does not act quickly enough to stop the spike in BG. I use Sleep Mode to control the lows during sleep, which it does.

      2 years ago Log in to Reply
    27. Catherine Davis

      I do not worry about alarms overnight like I used to with the Medtronic Guardian sensor, 670G system. The alerts that happen with Tandem t:slim and Dexcom are not very concerning and I can generally ignore them or acknowledge and go back to sleep.

      2 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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