Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 49 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 hour, 49 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 hour, 50 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 7 hours, 37 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 7 hours, 37 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 8 hours, 37 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 8 hours, 47 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 8 hours, 56 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 9 hours, 16 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 9 hours, 19 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 9 hours, 31 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 4 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 4 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 4 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 6 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 6 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 7 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 7 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 7 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 8 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 8 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 8 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 8 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 8 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 8 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you are currently wearing a CGM, where on your body is your sensor placed right now?

    Next

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by T1D? (5 = the most affected, 1 = the least affected)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 6 days ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    28 Comments

    1. Sherolyn Newell

      I answered 5. Every few weeks, I hit a cycle of night time highs. I do not know why, but it’s a regular occurrence and I am in one now. Usually lasts a week or so. Under normal circumstances, it’s more like one or two.

      1
      5 years ago Log in to Reply
    2. Gary Taylor

      I answered 7. I don’t keep a log, though maybe I should. It seems to me that every night was interrupted by some alarm from my Medtronic 770G system. One night it was so frustrating that I dreamed my BG was high and in my semi-conscious state I gave myself a bolus. A few minutes later, I jolted fully awake wondering what the hell I had done. I got up and checked my BG. It was 120 not 198. This was at 4:30 am. I fixed myself something to eat, made some coffee, and stayed up.

      2
      5 years ago Log in to Reply
    3. Daniel Smith

      I answered 4. I started wearing a dexcom…. Love the device but man, you got to be on top of it otherwise it will alert you all night long.

      3
      5 years ago Log in to Reply
    4. Elissa Macher

      I’m happy for the night alerts! I’d much rather my TSlim/Dexcom wake me up, than go high or low!

      1
      5 years ago Log in to Reply
    5. GLORIA MILLER

      My Libre does not alarm. I am older and I wake up often during the night checking my glucose every few hours. If higher than I prefer I take a small bolus or treat for a low if necessary.

      5 years ago Log in to Reply
    6. George Lovelace

      I answered 0 because my Tandem X2 follows
      my Dexcom G6

      5 years ago Log in to Reply
    7. rick phillips

      I have wakened at 3:00 AM fit 47 years to chk blood sugar. My sensor can not help me with that.

      1
      5 years ago Log in to Reply
    8. Ahh Life

      Answer 4. There is a famous line at the end of Act 1 in Macbeth:

      “I go, and it is done’ the bell invites me. Hear it not, Duncan, for it is a knell, that summons thee to heaven or to hell.”

      Sigh!

      4
      5 years ago Log in to Reply
    9. William Bennett

      Had a bout with “compression lows” a few nights ago. There’s no way I can avoid sleeping on whichever side my Dexcom is located on, and generally that’s not a problem, but every once in a while I end up getting my chain yanked with false “urgent low!” alerts, always at stupid-o’clock in the a.m. Hate it when that happens.

      3
      5 years ago Log in to Reply
    10. connie ker

      I have had trouble sleeping because I have a broken down car sitting in my garage, and that is a troubling problem to solve. I don’t have alerts with the Freestyle Libre, but I check when I get up for bathroom trips.

      5 years ago Log in to Reply
    11. Amanda Barras

      Sadly a lot lately. When my TSlim gets less than 30 units in reservoir it doesn’t deliver right and I go high, so then I go take a shot and sometime I take too much, and go low. I’ve got to remember to refill to get me through the night better or change everything out early before it’s empty. Sigh.

      2
      5 years ago Log in to Reply
    12. dave hedeen

      AutoMode insures active diabetes management every 4 hours.
      Manual Mode insures sleep yet can result in too high or too low BG situations.

      1
      5 years ago Log in to Reply
    13. Janis Senungetuk

      Twice in the past week I’ve had to deal with false low alarms from a failing Dex sensor. When all the tech works together it’s wonderful, but if a component has problems it disrupts everything else.

      3
      5 years ago Log in to Reply
    14. Patricia Dalrymple

      I don’t have a CGM and can’t decide whether I want one. I NEED one but not sure about what you all are saying. I too am older and wake up at least once a night unless I stay up past 11pm. So, I check then. Normally when I go low, I get hot and that wakes me up, like last night. But only twice this week.

      5 years ago Log in to Reply
    15. Brandon Denson

      Trying to balance the highs and lows on this diabetes rollercoaster is very interesting. As I type this my Dexcom just alerted me NO READINGS ALERT – SENSOR ERROR – TEMPORARY ISSUE. WAIT UP TO 3 HOURS.

      Ain’t nobody got time for that lol 😂

      5
      5 years ago Log in to Reply
      1. Lawrence Stearns

        I’ve been going through the same thing with my Dexcom G6 system for a month now. I wonder…

        1
        5 years ago Log in to Reply
    16. Natalie Daley

      I started to use a CGM when the Freestyle Libre 2 came because of the alarm system. It works beautifully, but yes I was alerted four nights last very busy week. I turned 75, and this sensor systems is one of the better developments.

      1
      5 years ago Log in to Reply
    17. Tracy Jean

      This week has been a bad one, with four bad sensors reading much lower than I was.

      2
      5 years ago Log in to Reply
    18. Sahran Holiday

      Rare that I don’t get multiple alerts for lows. Will reduce my basal again after I get my A1c this Friday.

      1
      5 years ago Log in to Reply
    19. Ken Raiche

      I’ve got to admit I really enjoy the Tandem G6 combo as well Keto have no interruptions what so ever. Actually the only interruption that I receive is the 12 hour warning for not touching or using my pump.

      5 years ago Log in to Reply
    20. Bruno Filho

      T1D diabetes is worse than HIV. Change my mind.

      5 years ago Log in to Reply
    21. Amy Schneider

      I’ve learned to turn the alerts to silent each night.

      1
      5 years ago Log in to Reply
    22. Henry Renn

      Actually my wife hears it & wakes me but not for lows. I get awake when I get feelings associated with low or rapidly falling bg.

      1
      5 years ago Log in to Reply
    23. Wanacure

      After 3 months I’m conditioned to ALWAYS put my Dexcom 6 receiver in my pocket before stepping outside, even if just to hang clothes on backyard clotheslines or just across the avenue to check mailbox. Over 20’ distance between sensor and receiver can yield NO READINGS ALERT. And I haven’t given up comparing my CGM readings to finger prick readings…yet. Comparing readings really helped to persist in calibrating the CGM which at first was interrupting sleep with inaccurate low readings. CGM helped lower my amounts of two glargine and three lispro amounts of insulin delivered by injections.

      5 years ago Log in to Reply
    24. Jneticdiabetic

      Too many! I so appreciate the CGM technology, but it’s a love-hate relationship due to alarm fatigue overnight.

      1
      5 years ago Log in to Reply
    25. Molly Jones

      The alerts go off every night, but I have become accustomed to them unless they continue too long from long lasting low/ or very low BG. I also started wearing earplugs many year prior to T1D for help with sleeping.

      5 years ago Log in to Reply
    26. Cheryl Seibert

      I am awakened frequently. I have a high alert set at 140 because CIQ (Tandem) does not act quickly enough to stop the spike in BG. I use Sleep Mode to control the lows during sleep, which it does.

      5 years ago Log in to Reply
    27. Catherine Davis

      I do not worry about alarms overnight like I used to with the Medtronic Guardian sensor, 670G system. The alerts that happen with Tandem t:slim and Dexcom are not very concerning and I can generally ignore them or acknowledge and go back to sleep.

      5 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]