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    • 15 hours, 3 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 15 hours, 34 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 15 hours, 34 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 20 hours, 55 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 20 hours, 56 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 20 hours, 56 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 5 hours ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 13 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 13 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 17 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 17 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 17 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 17 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 17 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 17 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 17 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 19 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 19 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 19 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 19 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 19 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 19 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

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    Do you use any diabetes-related smartphone apps (e.g., glucose tracking, bolus calculations, data sharing, etc.)? Share your favorites in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Amy Schneider

      I turn the alarms off before I go to sleep.

      1
      4 years ago Log in to Reply
      1. Kris Sykes-David

        I usually turn my high alarm on the G6 up to 150 or 160 at night. I tend to be lower overnight anyway. Except last night! I had a dinner that really hung on…..

        4 years ago Log in to Reply
    2. Ahh Life

      Sleep? What is sleep? ╮(╯_╰)╭

      1
      4 years ago Log in to Reply
    3. connie ker

      I often get up during the night or early hours and scan the sensor before heading to the bathroom. I don’t have alarms and have candy peppermints beside the bed . If the numbers are heading up or are high, I get up and start the day with MDI. Pre-dawn syndrome is what wakes you up too.

      4 years ago Log in to Reply
    4. Lawrence S.

      I answered “7”. But, normally, I would have probably said 1. Seven this week because my doctor had me on Prednisone. What a nightmare that was. I was taking up to 4 times the amount of insulin that I usually use. I changed my pump profiles and temp. basal rates a half-dozen times each day.

      3
      4 years ago Log in to Reply
      1. Jane Cerullo

        Been there with steroid shots in hip. Feel for you. It was a nightmare. Short time for me thankfully but I understand and sympathize.

        2
        4 years ago Log in to Reply
      2. KarenM6

        Yes, indeed! Steroids are brutal to blood sugar!

        4 years ago Log in to Reply
    5. Liz Avery

      2 times – Medtronic CGM calibration.

      1
      4 years ago Log in to Reply
    6. Jane Cerullo

      Came back from vacation and had a few nights with lows until I readjusted my Tresiba. I now take twice a day. Works better for me. I do usually get up two times to use the bathroom so I check then anyway.

      4 years ago Log in to Reply
    7. Sherolyn Newell

      I’m in one of those times when my digestion seems extra slow, so my supper carbs hit after I’m in bed, sometimes as much as 3 to 4 hours after the meal. So my number was higher than normal (4 nights).

      2
      4 years ago Log in to Reply
      1. RegMunro

        Hi I also have the slow digestion experience. I think I’ve now spotted what foods cause the delay. Then I have a second fast acting injection about 3 hours after the first. Seems to work for me, except I still don’t get it right every time.

        2
        4 years ago Log in to Reply
      2. ELYSSE HELLER

        I have the same problem. The doc said that I have EPI (exocrine diabetic insufficiency), which used to be called diabetic diarrhea. Big pharma came out with a medication for EPI but I don’t take it because I think that I’m on enough meds and I’s rather used to this syndrome.

        4 years ago Log in to Reply
      3. KarenM6

        Thank you, Sherolyn, Elysse, and Reg! I _might_ have this, too. I’ve been commenting to my doctor for a few years now how my food seems to show up 2 to 4 hours after my insulin. I will take a look at other symptoms and see if this might apply.
        EPI must be different than gastroparesis, though they seem similar in the slow food symptom.

        4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I had Covid last Christmas and just now doing basal testing. So I’ve been having more notifications/alerts than normal than pre covid.

      4 years ago Log in to Reply
    9. Joan Fray

      A couple times a night I get an alarm or check my bg. Have Tandem IQ but still, nights are busy…..

      4 years ago Log in to Reply
    10. Amanda Barras

      Chose 2, but it’s probably more. Sigh.

      1
      4 years ago Log in to Reply
    11. RegMunro

      All 3 on same night!

      4 years ago Log in to Reply
    12. GLORIA MILLER

      I don’t have a pump or CGM that alarms since that is what I wanted. I wake up with a low – even after 65 years T1 – so I have no need of alarms. I do wake up several times at night and check my glucose, making adjustments as needed, but nothing wakes me to do this.

      4 years ago Log in to Reply
    13. Ernie Richmann

      I got up and changed the infusion site since the corrections were not bringing down my bg high readings.

      4 years ago Log in to Reply
    14. KCR

      I have been having problems this week with false compression lows (i.e., look like compression lows but no actual compression). Gah! 🤪

      1
      4 years ago Log in to Reply
    15. Mark Schweim

      0… But I’ve been home sick for the past two weeks so not sleeping lightly enough for anything to be able to wake me up.

      4 years ago Log in to Reply
    16. Becky Hertz

      Sometimes I’m disturbed, mostly with lows sometimes with highs. If I’m lucky and fighting a stubborn high, I can deal with the alarm and roll over and go back to sleep.

      1
      4 years ago Log in to Reply
    17. mbulzomi@optonline.net

      Because of my personnel site problems (T1D-55 years and counting.), I continue to have to change my night boluses. As I say, “oh well”, but it’s getting old!

      4 years ago Log in to Reply
    18. M C

      Using the FreeStyle Libre 2 – provides alarms – in the past week, 3 times for lows, and once for ‘sensor out of range’.

      4 years ago Log in to Reply
    19. Bekki Weston

      Was a tough week, either a high or a low every night.

      4 years ago Log in to Reply
    20. P-O Heidling

      I stated “0” as I never have issues with the values during night anymore. After switching to low crab/LCHF 12 years ago. my blood sugar is always stable during night. I also don’t use and CGM or pump so there is now alarms going off.

      I had more trouble with lows during the nights when eating the more traditional diabetic food.
      T1D since 1981, eating max 20 gr carb/day since 2010.

      4 years ago Log in to Reply
    21. Kelly Wilhelm

      I’ve tightened my alarms so I’m getting more of them right now plus if it’s not a high/low alarm there’s always a random alert like low battery or low insulin. It would be nice to not be alerted in the middle of the night when you have plenty of insulin/power to get thru the next 3 hours!!

      4 years ago Log in to Reply
    22. PamK

      Been experiencing a lot of nighttime highs lately, but am adjusting my basals to get them back down to normal!

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

    You must be logged in to post a comment.




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