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    • 1 hour, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 23 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 19 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 42 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 39 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 5 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 14 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    How helpful do you think it would be to see a mental health professional who specializes in issues related to chronic illness?

    Next

    Do you use any diabetes-related smartphone apps (e.g., glucose tracking, bolus calculations, data sharing, etc.)? Share your favorites in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Amy Schneider

      I turn the alarms off before I go to sleep.

      1
      4 years ago Log in to Reply
      1. Kris Sykes-David

        I usually turn my high alarm on the G6 up to 150 or 160 at night. I tend to be lower overnight anyway. Except last night! I had a dinner that really hung on…..

        4 years ago Log in to Reply
    2. Ahh Life

      Sleep? What is sleep? ╮(╯_╰)╭

      1
      4 years ago Log in to Reply
    3. connie ker

      I often get up during the night or early hours and scan the sensor before heading to the bathroom. I don’t have alarms and have candy peppermints beside the bed . If the numbers are heading up or are high, I get up and start the day with MDI. Pre-dawn syndrome is what wakes you up too.

      4 years ago Log in to Reply
    4. Lawrence S.

      I answered “7”. But, normally, I would have probably said 1. Seven this week because my doctor had me on Prednisone. What a nightmare that was. I was taking up to 4 times the amount of insulin that I usually use. I changed my pump profiles and temp. basal rates a half-dozen times each day.

      3
      4 years ago Log in to Reply
      1. Jane Cerullo

        Been there with steroid shots in hip. Feel for you. It was a nightmare. Short time for me thankfully but I understand and sympathize.

        2
        4 years ago Log in to Reply
      2. KarenM6

        Yes, indeed! Steroids are brutal to blood sugar!

        4 years ago Log in to Reply
    5. Liz Avery

      2 times – Medtronic CGM calibration.

      1
      4 years ago Log in to Reply
    6. Jane Cerullo

      Came back from vacation and had a few nights with lows until I readjusted my Tresiba. I now take twice a day. Works better for me. I do usually get up two times to use the bathroom so I check then anyway.

      4 years ago Log in to Reply
    7. Sherolyn Newell

      I’m in one of those times when my digestion seems extra slow, so my supper carbs hit after I’m in bed, sometimes as much as 3 to 4 hours after the meal. So my number was higher than normal (4 nights).

      2
      4 years ago Log in to Reply
      1. RegMunro

        Hi I also have the slow digestion experience. I think I’ve now spotted what foods cause the delay. Then I have a second fast acting injection about 3 hours after the first. Seems to work for me, except I still don’t get it right every time.

        2
        4 years ago Log in to Reply
      2. ELYSSE HELLER

        I have the same problem. The doc said that I have EPI (exocrine diabetic insufficiency), which used to be called diabetic diarrhea. Big pharma came out with a medication for EPI but I don’t take it because I think that I’m on enough meds and I’s rather used to this syndrome.

        4 years ago Log in to Reply
      3. KarenM6

        Thank you, Sherolyn, Elysse, and Reg! I _might_ have this, too. I’ve been commenting to my doctor for a few years now how my food seems to show up 2 to 4 hours after my insulin. I will take a look at other symptoms and see if this might apply.
        EPI must be different than gastroparesis, though they seem similar in the slow food symptom.

        4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I had Covid last Christmas and just now doing basal testing. So I’ve been having more notifications/alerts than normal than pre covid.

      4 years ago Log in to Reply
    9. Joan Fray

      A couple times a night I get an alarm or check my bg. Have Tandem IQ but still, nights are busy…..

      4 years ago Log in to Reply
    10. Amanda Barras

      Chose 2, but it’s probably more. Sigh.

      1
      4 years ago Log in to Reply
    11. RegMunro

      All 3 on same night!

      4 years ago Log in to Reply
    12. GLORIA MILLER

      I don’t have a pump or CGM that alarms since that is what I wanted. I wake up with a low – even after 65 years T1 – so I have no need of alarms. I do wake up several times at night and check my glucose, making adjustments as needed, but nothing wakes me to do this.

      4 years ago Log in to Reply
    13. Ernie Richmann

      I got up and changed the infusion site since the corrections were not bringing down my bg high readings.

      4 years ago Log in to Reply
    14. KCR

      I have been having problems this week with false compression lows (i.e., look like compression lows but no actual compression). Gah! 🤪

      1
      4 years ago Log in to Reply
    15. Mark Schweim

      0… But I’ve been home sick for the past two weeks so not sleeping lightly enough for anything to be able to wake me up.

      4 years ago Log in to Reply
    16. Becky Hertz

      Sometimes I’m disturbed, mostly with lows sometimes with highs. If I’m lucky and fighting a stubborn high, I can deal with the alarm and roll over and go back to sleep.

      1
      4 years ago Log in to Reply
    17. mbulzomi@optonline.net

      Because of my personnel site problems (T1D-55 years and counting.), I continue to have to change my night boluses. As I say, “oh well”, but it’s getting old!

      4 years ago Log in to Reply
    18. M C

      Using the FreeStyle Libre 2 – provides alarms – in the past week, 3 times for lows, and once for ‘sensor out of range’.

      4 years ago Log in to Reply
    19. Bekki Weston

      Was a tough week, either a high or a low every night.

      4 years ago Log in to Reply
    20. P-O Heidling

      I stated “0” as I never have issues with the values during night anymore. After switching to low crab/LCHF 12 years ago. my blood sugar is always stable during night. I also don’t use and CGM or pump so there is now alarms going off.

      I had more trouble with lows during the nights when eating the more traditional diabetic food.
      T1D since 1981, eating max 20 gr carb/day since 2010.

      4 years ago Log in to Reply
    21. Kelly Wilhelm

      I’ve tightened my alarms so I’m getting more of them right now plus if it’s not a high/low alarm there’s always a random alert like low battery or low insulin. It would be nice to not be alerted in the middle of the night when you have plenty of insulin/power to get thru the next 3 hours!!

      4 years ago Log in to Reply
    22. PamK

      Been experiencing a lot of nighttime highs lately, but am adjusting my basals to get them back down to normal!

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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