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    • 4 hours, 15 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 4 hours, 15 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 13 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 8 hours, 13 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 8 hours, 13 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 8 hours, 14 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 28 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 49 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 8 hours, 55 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 56 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 9 hours, 53 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 42 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 42 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 10 hours, 43 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 43 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 46 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 10 hours, 46 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 47 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 48 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 10 hours, 49 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 54 minutes ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 54 minutes ago
      MT likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 11 hours, 11 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 11 hours, 12 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you’re an adult with T1D, have you worked at a job that requires strenuous physical activity (ex: construction, landscaping, etc.)? Share your experiences and advice for managing T1D on the job in the comments!

    Next

    Do you consider the glycemic index of different foods before deciding what to eat?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Nevin Bowman

      Is 8 an option? 🙂

      4
      5 years ago Log in to Reply
    2. Sahran Holiday

      More than once per night. CGM saving me.

      1
      5 years ago Log in to Reply
    3. Kristine Warmecke

      By my device 0, by my DAD twice. Way to go Mimi!

      1
      5 years ago Log in to Reply
    4. Joan McGinnis

      I woke because I forgot to press start on my new sensor and I regularly ck when I wake for anything, so had to run downstairs and find my code to enter, this is rare for me, very rare now I am in control IQ

      5 years ago Log in to Reply
    5. Patricia Kilwein

      Mostly to check bg……

      5 years ago Log in to Reply
    6. kristina blake

      I run a tight ship – narrow range of acceptability (60-120), so frequent alerts are par for the course. But I don’t mind. I do what i need to and fall back asleep.

      2
      5 years ago Log in to Reply
    7. Becky Hertz

      Usually it’s no big deal, but this past week has been annoying as I’m not sleeping well either and usually I’m a great sleeper.

      5 years ago Log in to Reply
    8. ConnieT1D62

      None. 0. Tandem CQI works for me!

      1
      5 years ago Log in to Reply
    9. lis be

      I said 6, but only recently. Perimenopause is causing so many fluctuations that are difficult to predict. Before perimenopause i would have said 3

      1
      5 years ago Log in to Reply
    10. Chrisanda

      I can go weeks with no interruptions, but then I hit a night where I’m ready to throw everything out the window! The usual cause is constant low alarms. I’ve figured out that if my sensor is within about 12-24 hours of expiring, it sometimes gives me low readings. There have been times when I’m alarming that I’m in the low 60s, or even 50s, and when I use a meter I’m in my range…80s to 120s! And no amount of calibration will work. I’ve learned that if that’s the case, the first time it happens the sensor comes off until the next morning!

      5 years ago Log in to Reply
      1. Wanacure

        Tried calibrating two times? I’ve tried that and it helps to make sure the frigging Dexcom registers my input.

        5 years ago Log in to Reply
    11. BARRY HUNSINGER

      The alerts always have to do with “blocked insulin flow”. I simply disconnect my quickset and reconnect it and maybe move my pump around.

      5 years ago Log in to Reply
    12. Thomas Cline

      I routinely check blood sugar at night even without CGM alarming (and often take sugar or insulin to correct), made easier by my need to use the bathroom in the wee hours due to the necessity of having to stay well hydrated to avoid severe night leg cramps, as well as age. However, I find a particularly annoying aspect of the Dexcomb G6 CGM that I use is that sensors routinely display a severe, erratic dip during the first night of use, likely from pressure on the sensor. The last example on my current sensor was a reading of below 40 (‘low”) when my blood sugar was 85 by multiple finger ticks. Typical and annoying (particularly for my wife), since one cannot silence the alarms, even if one knows bogus readings are likely. And the “low” alarm is particularly annoying, as it is intended to be. After one day the sensor seems to settle down (in) and not give the huge bogus swings, but I do wonder how DEXCOM got this thing past the FDA when it shows such erratic behavior during the first day. Since I save all my CGM readings, I can document to anyone who cares that this behavior is not in my imagination. I wonder if anyone else has had this problem. The other annoying thing is that I find the G6 to be most reliable in the last few days of its mandated 10-day life. DEXCOM designed it so that sensors cannot be used beyond the 10-day limit even if they are functioning flawlessly. There is no justification for this, since when a sensor truly does run out of life (this has happened to me prematurely a couple of times), it simply drops the signal multiple times, making it clear that it is at the end of its life, rather than giving inaccurate readings. I routinely used the G5 twice its “normal” life, but DEXCOM made sure to fill that loophole when they replaced the G5 with the G6. Yes I use less strips with the G6 (certainly not 0 like one person on this site wrote), but that doesn’t begin to compensate for the increased requirement for sensor replacement (not to mention the huge increase in the amount of plastic waste associated with the G6 vs. the G5).

      3
      5 years ago Log in to Reply
      1. Lynn Smith

        Thomas, I agree wholeheartedly with all your G6 issues as I have had the exact same things happen to me. Recently I called Dexcom because my G6 sensor was acting as though it was a G5. It kept wanting me to calibrate. They told me it is a known issue, but that it seems to not happen as long as you wait at least 15 minutes to start a new sensor after stopping the previous one. Ridiculous. And I seem to forget that every time. So, I have been wasting lots of strips lately. If you didn’t have to wait two hours to start getting readings, it wouldn’t be such a big deal to wait the 15 minutes. But, alas, after 54 years of Type I diabetes, I am eternally grateful for the advances in care, so I will quit complaining and move on. 😬

        1
        5 years ago Log in to Reply
      2. Wanacure

        I first noticed discombobulated readings with Dexcom G6 when my sensor is within 24 hours of death. I assume each new sensor needs calibrating. Yes, YOU CAN prevent false lows that interrupt sleep. It’s a balancing act, isn’t it? You’ve got to avoid hypoglycemia to protect your prefrontal cortex, BUT false lows disrupting deep sleep and dream state are
        an annoyance and can also to a lesser extent (?) be risky. Siestas, if you can take ‘em, will help. Or catchup naps on the weekend.

        5 years ago Log in to Reply
    13. Molly Jones

      This week was not bad. Only two interrupted nights. I make sure my sugar is not dropping or in the normal/low range when I go to bed. If it is I make sure to have some fatty food possibly with a small amount of carbs that take a while to digest. I don’t remember being woken from high alarms.

      1
      5 years ago Log in to Reply
    14. Cheryl Seibert

      I chose “1” but it may have been “0”. I have the night BGs controlled and seldom have lows or highs disrupt my sleep. Occasionally, I will eat too much after 9pm and overcorrect trying to keep the overnight BGs from going high (I use Sleep Mode on the TSlim so no autocorrections). That will cause a low about 2am.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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