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    • 5 hours, 15 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 50 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 51 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 52 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 52 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 35 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 36 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 25 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 13 hours, 13 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 20 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 16 hours, 21 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 40 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 41 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 54 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you’re an adult with T1D, have you worked at a job that requires strenuous physical activity (ex: construction, landscaping, etc.)? Share your experiences and advice for managing T1D on the job in the comments!

    Next

    Do you consider the glycemic index of different foods before deciding what to eat?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Nevin Bowman

      Is 8 an option? 🙂

      4
      4 years ago Log in to Reply
    2. Sahran Holiday

      More than once per night. CGM saving me.

      1
      4 years ago Log in to Reply
    3. Kristine Warmecke

      By my device 0, by my DAD twice. Way to go Mimi!

      1
      4 years ago Log in to Reply
    4. Joan McGinnis

      I woke because I forgot to press start on my new sensor and I regularly ck when I wake for anything, so had to run downstairs and find my code to enter, this is rare for me, very rare now I am in control IQ

      4 years ago Log in to Reply
    5. Patricia Kilwein

      Mostly to check bg……

      4 years ago Log in to Reply
    6. kristina blake

      I run a tight ship – narrow range of acceptability (60-120), so frequent alerts are par for the course. But I don’t mind. I do what i need to and fall back asleep.

      2
      4 years ago Log in to Reply
    7. Becky Hertz

      Usually it’s no big deal, but this past week has been annoying as I’m not sleeping well either and usually I’m a great sleeper.

      4 years ago Log in to Reply
    8. ConnieT1D62

      None. 0. Tandem CQI works for me!

      1
      4 years ago Log in to Reply
    9. lis be

      I said 6, but only recently. Perimenopause is causing so many fluctuations that are difficult to predict. Before perimenopause i would have said 3

      1
      4 years ago Log in to Reply
    10. Chrisanda

      I can go weeks with no interruptions, but then I hit a night where I’m ready to throw everything out the window! The usual cause is constant low alarms. I’ve figured out that if my sensor is within about 12-24 hours of expiring, it sometimes gives me low readings. There have been times when I’m alarming that I’m in the low 60s, or even 50s, and when I use a meter I’m in my range…80s to 120s! And no amount of calibration will work. I’ve learned that if that’s the case, the first time it happens the sensor comes off until the next morning!

      4 years ago Log in to Reply
      1. Wanacure

        Tried calibrating two times? I’ve tried that and it helps to make sure the frigging Dexcom registers my input.

        4 years ago Log in to Reply
    11. BARRY HUNSINGER

      The alerts always have to do with “blocked insulin flow”. I simply disconnect my quickset and reconnect it and maybe move my pump around.

      4 years ago Log in to Reply
    12. Thomas Cline

      I routinely check blood sugar at night even without CGM alarming (and often take sugar or insulin to correct), made easier by my need to use the bathroom in the wee hours due to the necessity of having to stay well hydrated to avoid severe night leg cramps, as well as age. However, I find a particularly annoying aspect of the Dexcomb G6 CGM that I use is that sensors routinely display a severe, erratic dip during the first night of use, likely from pressure on the sensor. The last example on my current sensor was a reading of below 40 (‘low”) when my blood sugar was 85 by multiple finger ticks. Typical and annoying (particularly for my wife), since one cannot silence the alarms, even if one knows bogus readings are likely. And the “low” alarm is particularly annoying, as it is intended to be. After one day the sensor seems to settle down (in) and not give the huge bogus swings, but I do wonder how DEXCOM got this thing past the FDA when it shows such erratic behavior during the first day. Since I save all my CGM readings, I can document to anyone who cares that this behavior is not in my imagination. I wonder if anyone else has had this problem. The other annoying thing is that I find the G6 to be most reliable in the last few days of its mandated 10-day life. DEXCOM designed it so that sensors cannot be used beyond the 10-day limit even if they are functioning flawlessly. There is no justification for this, since when a sensor truly does run out of life (this has happened to me prematurely a couple of times), it simply drops the signal multiple times, making it clear that it is at the end of its life, rather than giving inaccurate readings. I routinely used the G5 twice its “normal” life, but DEXCOM made sure to fill that loophole when they replaced the G5 with the G6. Yes I use less strips with the G6 (certainly not 0 like one person on this site wrote), but that doesn’t begin to compensate for the increased requirement for sensor replacement (not to mention the huge increase in the amount of plastic waste associated with the G6 vs. the G5).

      3
      4 years ago Log in to Reply
      1. Lynn Smith

        Thomas, I agree wholeheartedly with all your G6 issues as I have had the exact same things happen to me. Recently I called Dexcom because my G6 sensor was acting as though it was a G5. It kept wanting me to calibrate. They told me it is a known issue, but that it seems to not happen as long as you wait at least 15 minutes to start a new sensor after stopping the previous one. Ridiculous. And I seem to forget that every time. So, I have been wasting lots of strips lately. If you didn’t have to wait two hours to start getting readings, it wouldn’t be such a big deal to wait the 15 minutes. But, alas, after 54 years of Type I diabetes, I am eternally grateful for the advances in care, so I will quit complaining and move on. 😬

        1
        4 years ago Log in to Reply
      2. Wanacure

        I first noticed discombobulated readings with Dexcom G6 when my sensor is within 24 hours of death. I assume each new sensor needs calibrating. Yes, YOU CAN prevent false lows that interrupt sleep. It’s a balancing act, isn’t it? You’ve got to avoid hypoglycemia to protect your prefrontal cortex, BUT false lows disrupting deep sleep and dream state are
        an annoyance and can also to a lesser extent (?) be risky. Siestas, if you can take ‘em, will help. Or catchup naps on the weekend.

        4 years ago Log in to Reply
    13. Molly Jones

      This week was not bad. Only two interrupted nights. I make sure my sugar is not dropping or in the normal/low range when I go to bed. If it is I make sure to have some fatty food possibly with a small amount of carbs that take a while to digest. I don’t remember being woken from high alarms.

      1
      4 years ago Log in to Reply
    14. Cheryl Seibert

      I chose “1” but it may have been “0”. I have the night BGs controlled and seldom have lows or highs disrupt my sleep. Occasionally, I will eat too much after 9pm and overcorrect trying to keep the overnight BGs from going high (I use Sleep Mode on the TSlim so no autocorrections). That will cause a low about 2am.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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