Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 20 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 8 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 50 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 13 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 36 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 34 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Home > LC Polls > In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?
    Previous

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Next

    How much does T1D impact your ability to participate fully in work or school?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    20 Comments

    1. Jneticdiabetic

      I had episode a couple months ago when my pump ran out of insulin and I got pulled into a meeting part way through filling a new reservoir. Meeting required urgent follow-up and I was disconnected for about 3 hrs before I noticed I was thirsty and nauseated. Had to inject, hydrate and rest a couple of hours that time. I usually work 70+ hrs per week though, so more than make up for it. With the exception of my maternity leaves, I’ve taken less sick time off in 20 years than most of my “healthy” colleagues take each year. I joke that I’m just used to feeling lousy so don’t feel the need to take a day off when I do. T1D resiliency!

      1
      4 years ago Log in to Reply
    2. Mick Martin

      0 hours as I haven’t worked since 1990, having been retired on grounds of ill health.

      4 years ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I got an infected pump site at work. I had to go to urgent care & then had follow up appointments after that. Because of Covid the urgent care was over flowing & it took hours and most of my work day instead of a quick trip like I expected.

      4 years ago Log in to Reply
    4. Sherolyn Newell

      I didn’t put 0, because doctor appointments take about an hour every 3 months. Other than that, I haven’t missed any work due to T1D.

      4 years ago Log in to Reply
    5. Louise Robinson

      I’m retired, so scheduling appointments is not an issue for me. I did work for 18 years as a Type 1 (diagnosed in 1976 and worked in my primary career until 1994). During my working years, I was on MDI. I had one hospitalization due to DKA in 1980 where I was in ICU and lost about 2 weeks of work. Other than that, I did not lose any work time due to my diabetes. Since I was a salaried worker, I still had flexibility about taking time off for doctor appointments and always made up the time (I worked 10 to 12 hour days on average anyway to get the job done.) I don’t feel that my diabetes kept me from accomplishing my goals. I did have to modify and adopt a lifestyle more conducive to living well with diabetes but that has been well worth it.

      4 years ago Log in to Reply
    6. AnitaS

      I am retired but if you want to consider doing other work (house work, washing cars etc., volunteering at a dog shelter) I do have to postpone doing those types of work occasionally till my sugar levels rise.

      4
      4 years ago Log in to Reply
      1. KarenM6

        vacuuming is the BEST blood sugar decreasing activity available! ;p 😀

        1
        4 years ago Log in to Reply
    7. Lisa

      I feel very lucky!

      4 years ago Log in to Reply
    8. Kelly Wilhelm

      I’m retired so question isn’t relevant to me.

      4 years ago Log in to Reply
    9. cynthia jaworski

      Only my semi-annual endo check-up.

      4 years ago Log in to Reply
    10. Patricia Kilwein

      Because of the complications, loss of sleep and such I’ve wondered how ppl manage that do work. My husband and I have been retired for 10 years and before that I wasn’t on a pump. I did have days that completely and do still have days where I am completely exhausted.

      1
      4 years ago Log in to Reply
    11. Steve Rumble

      Retired 8 years ago!

      4 years ago Log in to Reply
    12. Nick Trubov

      Retired now, but missed no work during the forty years that I DID work.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      Travel time to/from medical appointments has taken 4 hours. The greatest loss of time has been from waiting/fruitless conversations with DME supplier and insurance.

      1
      4 years ago Log in to Reply
    14. Ernie Richmann

      Can’t remember the last time I was sick. I am feeling great.

      4 years ago Log in to Reply
    15. LizB

      I’d say about 3-4 hours because of how long it takes me to get to/from my current endo, who I saw last week. I work from home so it wasn’t a problem.

      4 years ago Log in to Reply
    16. KarenM6

      I’m unemployed at the moment (not retired)… but, when I worked, I was constantly having to leave for doctors’ appointments. BUT, I _always_ made up any lost time… it’s just that it is an unusual boss/company that is ok with this type of working. My experience was that most companies are strict about when you can and can not be at work (pre-COVID). WFH would not have been an option for me either.
      I almost always felt an uncomfortable tension when having to ask for time to take care of my medical needs.

      4 years ago Log in to Reply
    17. Lenora Ventura

      After working an extremely stressful job for 10+ years added on top of 35+ T1D longevity with very brittle responsiveness along the way. I usually miss 1 day a week of work 😿. My body is showing its age although I’m only 45

      4 years ago Log in to Reply
    18. Mark Schweim

      I said 0 due to T1D-related appointments since I work nights and no Doctor’s offices are open overnight, but I said 0 due to feeling sick because although I missed over 90 hours of work due to illness over the past month alone, that time missed from work was COVID instead of T1D related.

      4 years ago Log in to Reply
    19. Lawrence S.

      I am retired. However, I have had to go for blood tests and Endocrinologist visits. Also, I often lose time when working around the house to stop for snacks, and wait for my blood sugar levels to return to an acceptable level. I answered 5 to 8 hours. But, it is probably a lot more hours for stopping for snacks and blood sugar levels.

      4 years ago Log in to Reply

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]