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    • 13 hours, 4 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 54 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 25 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 27 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 52 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 54 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    In the past 12 months, have you been required to change medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you been required to change medications or devices because of your health insurance?
    Previous

    If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult?

    Next

    How do you bolus for pizza? If you typically use multiple strategies, please select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    39 Comments

    1. Lawrence S.

      Yes, but indirectly. I must order my Diabetes Medical Equipment and supplies through an insurance approved supply company. The company, Edgepark, does not carry all of the supplies that I “want.” So, for example, I cannot get my VariSoft cannula and tubing measuring 43 inches. I must buy it with 32 inches, which causes me some inconveniences. I cannot get the IV Preps that I “want”. I must use their brand. However, I am able to use the Tandem Insulin Pump and the Novolog that I need.

      9 months ago Log in to Reply
      1. Lawrence S.

        My mistake, that’s Durable Medical Equipment, not Diabetic Medical Equipment.

        9 months ago Log in to Reply
      2. Kristine Warmecke

        I hear you there with the VariSoft tubing length and EdgePark.

        9 months ago Log in to Reply
    2. Maggie Morgan

      I had to switch to getting my CGM supplies through pharmacy rather than DME, which I am fine with since Edgepark sucks anyway. I also switched from Novolog to Humalog since it was preferred by my insurance.

      2
      9 months ago Log in to Reply
    3. Nevin Bowman

      Not required, but there are definitely financial advantages to using their preferred brands.

      9 months ago Log in to Reply
    4. Kristen Clifford

      I did have to change pumps and CGMS, but not because of insurance. It was because my old pump had died for good and was both out of warranty and discontinued. Insurance had nothing to do with it.

      9 months ago Log in to Reply
    5. Kristine Warmecke

      No, they tried to make me take Humalog – which I’m allergic to.

      1
      9 months ago Log in to Reply
    6. mbulzomi@optonline.net

      I answered NO. I have original Medicare and Medcare Part “B”, along with Federal Employee Program, Blue Cross, Blue Shield. Little to nothing comes out of my pocket. I pay $6000.00 dollars a year, however, my Insulin Pump, Dexcom supplies, Doctor visits (No Copays) and Prescriptions are far more the $6000.

      1
      9 months ago Log in to Reply
    7. Judith Marged

      I had to change, but not due to insurance. It seems that I am allergic to almost every long-acting insulin. Through a process of elimination, I have finally found one that doesn’t cause hives or a severe bronchial cough, Humulin or Novolin N. So, I am back to the original long-acting insulin taken when I first became diabetic. It was determined that I am allergic to metacresol. After doing some research on the ingredient, I have no idea why they would put that in insulin!!!

      9 months ago Log in to Reply
      1. sweet charlie

        Im confused… do you mean that the Humalin and Novolin N are OKAY for you??

        9 months ago Log in to Reply
      2. Judith Marged

        Yes, it is safe for me to take either Humulin NPH or Novolin NPH. Humulin NPH was the original insulin, along with Humulin R, that I took when first diagnosed. I cannot take Levemir, Tresiba, or Toujeo, or some of the new quick acting insulins. For my bolus insulin, I use the inhalable Afrezza, which as a powder, is acceptable.

        9 months ago Log in to Reply
    8. Richard Vaughn

      My insurance required my switching from Humalog to Novolog, and from FreeStyle Lite strips to One Touch Verio.
      I had a rash with Novolog. My endo helped me. Medicare allowed me to return to Humalog at $100 per vial. I did not have to pay for Humalog in previous years. I have found the One Touch strips to be less accurate than FreeStyle. Many times there is a 10-30 point different difference between the One Touch and finger stick numbers.

      1
      9 months ago Log in to Reply
    9. Jeff Balbirnie

      Multiple freaking times!!! The doctor knows nothing about any new changes! The pharmacy knows absolutely zero about whatever the new formulation they demand might be. Have been forced 4-6 times this year alone to change meds and never told what, why or when.

      Enraging and never excusable

      1
      9 months ago Log in to Reply
    10. gary rind

      my buddies at Express Scripts just changed me from FIASP to Lyumjev. not terrible but not great, we’ll see

      9 months ago Log in to Reply
    11. Marty

      This happened more than a year ago, but I had to switch from Fiasp to Lispro because that’s all I can get from the only supplier I could find who would accept Medicare Part B for insulin.

      9 months ago Log in to Reply
      1. Bob Durstenfeld

        Marty, who is supplying your Part B insulin?I can’t find a local supplier. Thanks.

        9 months ago Log in to Reply
      2. Marty

        Advanced Diabetes Supply in Carlsbad, CA sends me all of my Dexcom and Tandem supplies as well as Lispro insulin and they accept Medicare Part B coverage: https://www.northcoastmed.com

        9 months ago Log in to Reply
      3. ChrisW

        Marty, your DME (i.e. pump, CGM) and medication (i.e. insulin) normally come from two different companies. Advanced Diabetes Supply in Carlsbad didn’t pass my reputable company checks and doesn’t appear to be HIPAA compliant. Try Minipharmacy in Los Angeles or if you out of all other options for DME supplies, Byram Healthcare.

        9 months ago Log in to Reply
      4. Marty

        recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

        9 months ago Log in to Reply
    12. Ms Cris

      At first glance, yes, but with a Medically Necessary letter/form from my Dr, we got it covered again, but at a higher cost to me. Still worth it.

      9 months ago Log in to Reply
    13. Sue Martin

      I will be in the next couple of months. I am going back on glargine (Lantus) and I have a supply on hand. The pharmacy told me that when I need a refill, due to the insurance, they will give me a different, but chemically the same, medication.

      1
      9 months ago Log in to Reply
    14. Bob Durstenfeld

      I hate insurance company formularies. Why should insurance companies be able to dictate medical best practices? I find it annoying that these can be revised mid-year too, after you have made your plan selection.

      4
      9 months ago Log in to Reply
    15. Joan McGinnis

      I had to change from Novolog to Humalog. Has not been a problem but I dont see why they get to decide over the doctor and all going well with what I was on and prefer.

      1
      9 months ago Log in to Reply
    16. Yaffa Steubinger

      I answered yes but the only thing the insurance company changed was my glucose meter brand.

      9 months ago Log in to Reply
    17. Anthony Harder

      Answered “no” not in the last 12 months but have had insurance force a change multiple times before that. Most of the switches were Novalog-Humalog.

      9 months ago Log in to Reply
    18. Ken D

      No

      9 months ago Log in to Reply
    19. Brian Vodehnal

      I changed devices so I didn’t have to deal with Edgepark Medical. I could get a CGM locally and not deal with them.

      1
      9 months ago Log in to Reply
    20. Patricia Kilwein

      Right now my pump supplies and Humalog covered. It’s the amount that has to be adjusted. For asthma it’s a whole new problem.

      9 months ago Log in to Reply
    21. Thomas Brady

      I am on Humalog insulin, and have been since 1996. I went on the Tandem pump in 2014 and migrated to the TSlim X2 in 2019. My insurance is Medicare with a supplement that pays 100% of what Medicare does not cover. On my last insulin refill (8 vials every 90 days) the pharmacist at Walgreen’s came out and informed me that Medicare wanted me to substitute another insulin “non branded insulin” for my Humalog. I politely asked him if he was going to dispense an insulin for my TSlim which was not approved for use by the manufacturer, not used in the testing for the pump the results being used by the FDA for the pump’s approval, and not prescribed by my doctor. He just said “Oh”, went back behind his station, made a call and I got my Humalog. I do not know if this was Walgreen’s or Medicare’s nonsense, but they tried this once before and I gave them the same speech and got my Humalog. Now I carry a copy of the Tandem paragraph from the Slim instruction manual when I go to the pharmacy. I am sure that they do not want the liability for dispensing insulin which is not tested in my pump and which the manufacturer says not to use! End of story for that nonsense! If insulin is costing Medicare too much, then yell at congress about it. Insulin costs about $6 a vial to make. The price they charge is OUTRAGEOUS!!!! When we were in France I went into a pharmacy in Paris and after showing her the box from my US Humalog she told me that I could buy it from her for $18 Euros (about $18 at that time) without a prescription! I guess the mark-up in the US is to cover the profits of Lilly and the costs of their lobbyists!

      1
      9 months ago Log in to Reply
    22. Patricia Dalrymple

      I said other: I upgraded to the Medtronic 770G and with it comes a glucometer that wirelessly transmits the BG number to my pump. I called Cigna and questioned whether I could go to this new accucheck glucometer at the same cost as my one touch that they made me switch to after being on a prior accucheck. They said yes in the chat. However, when I picked it up, instead of free test strips they tried to charge me. I am going back to one touch but I am appealing and getting my Endo involved. We will see. I fight with them all the time and usually win.

      9 months ago Log in to Reply
    23. Teri Morris

      Yes. Greenshield Canada REFUSES to cover CGMs -Libre or Dexcom- for me, even with a letter from my endo.?!

      9 months ago Log in to Reply
    24. Kevin McCue

      Yes and no, because insurance will not fill a 90 day rx( they hold until 95 before filling). I have to extend my infusion sets past the recommendation of my doctor to keep from running out

      9 months ago Log in to Reply
    25. Marty

      I recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

      9 months ago Log in to Reply
      1. Lawrence S.

        ADS? What’s that?

        9 months ago Log in to Reply
      2. Marty

        Sorry, I meant to add a reply to my comment below. ADS is the acronym for my insulin and supplies provider that required me to switch to Lispro insulin.

        9 months ago Log in to Reply
    26. Stephen Woodward

      Lyumjev and Afrezza are not covered so I use coupons or pay out of pocket. Love Medicare.

      9 months ago Log in to Reply
    27. Stang777

      Yes, as of the beginning of 2022, Express Scripts, nationwide, will no longer cover Lantus and have switched those who have a Lantus script with them to Semglee, which is an interchangeable insulin for Lantus. Any pharmacist can fill a Lantus script with Semglee without notice to the patient or doctor who prescribed Lantus for their patient. In their press release last years, they claimed it was being done to save their customers money, but it doesn’t save me much at all. I get two boxes in Lantus/Semglee as a 90 day supply, and all I save once they switched me was 6 bucks for that 90 day supply, so 2 bucks a month. That isn’t enough to validate a claim of saving anyone money. I believe, if anyone is saving money by this switch, that the only ones who are actually saving money is Express Scripts, and they are not passing those savings along to those who use the insulin, unlike what they claimed in their press release before making their customers make this switch.

      9 months ago Log in to Reply
    28. Bea Anderson

      No, but when I went on Medicare. Dexcom was a very good change.

      8 months ago Log in to Reply
    29. PamK

      No, I did not change insulin, but I did have to get Prior Authorization for an insulin that was previously covered by my old insurance company.

      8 months ago Log in to Reply

    In the past 12 months, have you been required to change medications or devices because of your health insurance? Cancel reply

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