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    • 8 hours, 30 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 20 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 10 hours, 16 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 59 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 18 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 50 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 54 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 49 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 50 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 19 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 28 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 13 hours, 32 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 8 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 9 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult?

    Home > LC Polls > If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult?
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    In the past 12 months, have you been required to change medications or devices because of your health insurance?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    26 Comments

    1. Ja'fr Yirka

      I was diagnosed at age 15 and calculated my own doses from the start.

      1 year ago Log in to Reply
    2. HMW

      I was diagnosed at age 7 in 1989. At the time I took a mixture of Novolin N and Novolin R twice a day, took BG readings with chemstrips twice a day and ate every 2 hours to prevent lows.
      I learned to give myself injections at diabetes camp 2 years later. My mom and I would discuss: if I am low 2 days in a row at the same time to decrease insulin and if high 3 days in a row to increase insulin. I started making my own adjustments without talking to my mom around age 10-11, maybe.
      I started Humalog on a sliding scale (the amount I took depended on my BG reading, not carb count) at mealtimes (continuing Novolin N) when I switched to an adult endocrinologist around age 18.

      3
      1 year ago Log in to Reply
      1. Amanda Barras

        I wish I was given that sort of practical information. But, sadly I wasn’t really taught what to do and didn’t figure out how to adjust my own properly until I was in my early 20s.

        1 year ago Log in to Reply
    3. Amanda Barras

      At age 11 I mistakenly thought raising my insulin dose without tell anyone was a good idea only to have crazy lows later… I got banned from doing that (and scared of too) and didn’t start taking an active roll until I was an older teen.

      1 year ago Log in to Reply
    4. Ahh Life

      Calculation was straight forward arithmetic – measure out 12 units of regular (always first). Then add 32 units of NPH (not particularly helpful).

      I was 5 or six years old. And I don’t even think I learned how to count until the first grade. But kids can learn to do anything.

      PS. Now I use control IQ and still get the #*%$ arithmetic wrong, in spite of the best algorithmic intentions. (.︡⚈ ︵⚈︠.)

      3
      1 year ago Log in to Reply
    5. mojoseje

      It was so long ago I don’t remember.

      1 year ago Log in to Reply
    6. Jeff Balbirnie

      There was ZERO calculations then because insulin dosages never varied it was the identical amount of bovine/porcine regular & NPH, one time a day period.

      The sole variation was when/if we were sick or had too many lows, only then did it change a couple units.

      Daily adjustment never happened!

      4
      1 year ago Log in to Reply
      1. Don P

        I absolutely echo that !! Things have altered considerably over the years resulting in much better control…… T1 since early 50’s

        2
        1 year ago Log in to Reply
    7. Jeannie Hickey

      I used a sliding scale at age 12 after doing the urine test, but just adding a unit or 2 of Regular if sugar was 5+.

      1
      1 year ago Log in to Reply
    8. Linda Zottoli

      Like other long-termers have mentioned, there was no “calculating your own insulin doses” involved when I was a child, there were set dosages, 2 per day in my case. My 1950s dosages were likely adjusted each summer at Clara Barton Birthplace Camp — and told my parents, who then told me so I would know how much insulin to take, as I remember.

      1
      1 year ago Log in to Reply
    9. rick phillips

      I was 17 when Dx’d so I started right away. Besides putting x in is not much of a calculation.

      1 year ago Log in to Reply
    10. Kristine Warmecke

      As other long timer’s have said there wasn’t much to adjust, unless I was low or high for several day’s in a row. After my first year at Camp I learned about sliding scale dosing. My endocrinologist was the medical director, so at my first visit after that I took charge of my dosing. If I had questions I could call my CDE or ask my parent’s. Diagnosed in 1982 at age 11, started on R and NPH.

      2
      1 year ago Log in to Reply
    11. Liz Avery

      When I was diagnosed in 1966 the doctor set my dosing. Changes were made 1x each week after a fasting blood glucose test. I do not remember when I started dosing my self. Without a meter things were tough, got my first meter in 1982.

      1
      1 year ago Log in to Reply
    12. Janis Senungetuk

      It was a totally different world in the 1950’s. There wasn’t any carb counting or insulin adjustment on a per meal or daily basis. When dx at 8 my doctor prescribed one AM injection of beef/pork insulin daily. I ate a very small variation of the same food in proportions determined by the ADA Exchange diet EVERY day. I was still using a predetermined, set amount of insulin as a 16 year old, although my diet and activities had definitely changed. I no longer remember exactly when I started using a sliding scale to determine the amount of insulin to take.

      3
      1 year ago Log in to Reply
    13. Bill Williams

      I was diagnosed in 1960 and, like almost everyone else, was on a fixed dose of Lente until I got my first (clunky) glucometer in the early 1980s. Then I learned how to use regular to supplement at mealtimes.

      1
      1 year ago Log in to Reply
    14. Randy Mees

      As another long timer, diagnosed in 1961, I did what the doctor told me to which was one shot a day . My mother worked in a medical clinic so I was able to get them to draw blood and check my glucose level every 3 months then adjust my insulin dosage at that time.

      2
      1 year ago Log in to Reply
    15. Lynn Smith

      There was no calculating when I was 12 and was diagnosed with T1D. You just took the same long acting amount everyday. I think I do remember taking short acting if the urine test showed I was too high.

      2
      1 year ago Log in to Reply
    16. Kathryn Keller

      My daughter is only 7 still. Occasionally, I will have her put her carbs in her phone and then the dose is calculated for her but I still always check to make sure she put in the amount right.

      1
      1 year ago Log in to Reply
    17. KarenM6

      I’m in the Long Timers Club where insulin was a fixed amount, no calculations, and I ate around my insulin. Was on one shot a day (beef & pork insulins… NPH and regular) until I think 1996. 1996 was when I got my first endo who, basically, saved my life! 🙂

      1
      1 year ago Log in to Reply
    18. Becky Hertz

      I grew up in the Nph/regular days. There was no calculating. I didn’t start dosing via calculations until I was an adult in my 30’s.

      2
      1 year ago Log in to Reply
    19. Kevin McCue

      Diagnosed with T1d at 21 and always have been on sliding scale for dosing

      1 year ago Log in to Reply
    20. M C

      I had just turned 16 at diagnosis, and was responsible for my own insulin administration from the beginning. It was also at a time (talking about over 45 years ago) when doctors basically dictated your dosing and you just did as told.
      Totally different today with the advent of insulin pumps, and the ability to make adjustments as necessary. (As soon as I started with a pump I have taken care of adjusting insulin doses, both bolus and basal. Guessing, if this technology had been available when I was first diagnosed, I would have been able to start making adjustments as soon as I had lived with the condition long enough and became familiar with what needed to be done to improve control.)

      1
      1 year ago Log in to Reply
    21. Melinda Lipe

      As a child, all insulin dosages were prescribed by the doctor. (1966) Nothing was calculated by the user. If urine glucose was 1+ or more, an exact sliding scale was prescribed, not a mealtime calculation. It’s a wonder so many of us survived and have done well.

      2
      1 year ago Log in to Reply
    22. csreineke

      Diagnosed at age 15 – dosing on my own since day one.

      1 year ago Log in to Reply
    23. Wanacure

      Diagnosed in 1959 at 15. Two days high urine, increase by this much. Two days low, decrease by this much. Doctor later advised on how to adjust NPH and diet for M, W, F afternoon weightlifting at home. Exc. endocrinologist thanks to my mom. Later I followed Dr. Skyler’s sliding scales when they were published. There used to be medical establishment hostility toward “European” tighter bg control. It was better to spill a little urine sugar occasionally (180 mg/dL) (faintest green on yellow Testape for urine). Even today, my doctors don’t want me to be in normal bg range. “Risk of falling, especially at your age.” Some T1ds themselves don’t want such tight control as I do and that’s OK. Keeping perfectly normal bg when you start swimming laps or doing interval training for 40’ on the elliptical? Even with a pump, is that possible? I guess athletes and Olympic competitors must have very detailed lengthy guidelines.

      1 year ago Log in to Reply
    24. Cheryl Seibert

      Not until I was 18-20 yrs old. From age 6-13 I was under the care of a pediatrician that knew nothing about diabetes so he never changed my dosage all those years. The Internal Medicine physician from age 13 – 20 thought only he knew about diabetes and I didn’t know my own body. Eventually, at age 20 I changed to an Endo that specializes in T1D and have been adjusting my own dosages ever since.

      1 year ago Log in to Reply

    If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult? Cancel reply

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