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    • 1 hour, 2 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 1 hour, 8 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 1 hour, 8 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 1 hour, 17 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 hours, 38 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 3 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 3 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 3 hours, 50 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 3 hours, 50 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 4 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 5 hours, 24 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 5 hours, 25 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 5 hours, 25 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 5 hours, 31 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 5 hours, 38 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 5 hours, 41 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 8 hours, 14 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 8 hours, 15 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 21 hours, 56 minutes ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 23 hours, 43 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 23 hours, 44 minutes ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 23 hours, 45 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    In the past 12 months, have you been required to change medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you been required to change medications or devices because of your health insurance?
    Previous

    If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult?

    Next

    How do you bolus for pizza? If you typically use multiple strategies, please select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    39 Comments

    1. Lawrence S.

      Yes, but indirectly. I must order my Diabetes Medical Equipment and supplies through an insurance approved supply company. The company, Edgepark, does not carry all of the supplies that I “want.” So, for example, I cannot get my VariSoft cannula and tubing measuring 43 inches. I must buy it with 32 inches, which causes me some inconveniences. I cannot get the IV Preps that I “want”. I must use their brand. However, I am able to use the Tandem Insulin Pump and the Novolog that I need.

      3 years ago Log in to Reply
      1. Lawrence S.

        My mistake, that’s Durable Medical Equipment, not Diabetic Medical Equipment.

        3 years ago Log in to Reply
      2. Kristine Warmecke

        I hear you there with the VariSoft tubing length and EdgePark.

        3 years ago Log in to Reply
    2. Maggie Morgan

      I had to switch to getting my CGM supplies through pharmacy rather than DME, which I am fine with since Edgepark sucks anyway. I also switched from Novolog to Humalog since it was preferred by my insurance.

      2
      3 years ago Log in to Reply
    3. Nevin Bowman

      Not required, but there are definitely financial advantages to using their preferred brands.

      3 years ago Log in to Reply
    4. Kristen Clifford

      I did have to change pumps and CGMS, but not because of insurance. It was because my old pump had died for good and was both out of warranty and discontinued. Insurance had nothing to do with it.

      3 years ago Log in to Reply
    5. Kristine Warmecke

      No, they tried to make me take Humalog – which I’m allergic to.

      1
      3 years ago Log in to Reply
    6. mbulzomi@optonline.net

      I answered NO. I have original Medicare and Medcare Part “B”, along with Federal Employee Program, Blue Cross, Blue Shield. Little to nothing comes out of my pocket. I pay $6000.00 dollars a year, however, my Insulin Pump, Dexcom supplies, Doctor visits (No Copays) and Prescriptions are far more the $6000.

      1
      3 years ago Log in to Reply
    7. Judith Marged

      I had to change, but not due to insurance. It seems that I am allergic to almost every long-acting insulin. Through a process of elimination, I have finally found one that doesn’t cause hives or a severe bronchial cough, Humulin or Novolin N. So, I am back to the original long-acting insulin taken when I first became diabetic. It was determined that I am allergic to metacresol. After doing some research on the ingredient, I have no idea why they would put that in insulin!!!

      3 years ago Log in to Reply
      1. sweet charlie

        Im confused… do you mean that the Humalin and Novolin N are OKAY for you??

        3 years ago Log in to Reply
      2. Judith Marged

        Yes, it is safe for me to take either Humulin NPH or Novolin NPH. Humulin NPH was the original insulin, along with Humulin R, that I took when first diagnosed. I cannot take Levemir, Tresiba, or Toujeo, or some of the new quick acting insulins. For my bolus insulin, I use the inhalable Afrezza, which as a powder, is acceptable.

        3 years ago Log in to Reply
    8. Richard Vaughn

      My insurance required my switching from Humalog to Novolog, and from FreeStyle Lite strips to One Touch Verio.
      I had a rash with Novolog. My endo helped me. Medicare allowed me to return to Humalog at $100 per vial. I did not have to pay for Humalog in previous years. I have found the One Touch strips to be less accurate than FreeStyle. Many times there is a 10-30 point different difference between the One Touch and finger stick numbers.

      1
      3 years ago Log in to Reply
    9. Jeff Balbirnie

      Multiple freaking times!!! The doctor knows nothing about any new changes! The pharmacy knows absolutely zero about whatever the new formulation they demand might be. Have been forced 4-6 times this year alone to change meds and never told what, why or when.

      Enraging and never excusable

      1
      3 years ago Log in to Reply
    10. gary rind

      my buddies at Express Scripts just changed me from FIASP to Lyumjev. not terrible but not great, we’ll see

      3 years ago Log in to Reply
    11. Marty

      This happened more than a year ago, but I had to switch from Fiasp to Lispro because that’s all I can get from the only supplier I could find who would accept Medicare Part B for insulin.

      3 years ago Log in to Reply
      1. Bob Durstenfeld

        Marty, who is supplying your Part B insulin?I can’t find a local supplier. Thanks.

        3 years ago Log in to Reply
      2. Marty

        Advanced Diabetes Supply in Carlsbad, CA sends me all of my Dexcom and Tandem supplies as well as Lispro insulin and they accept Medicare Part B coverage: https://www.northcoastmed.com

        3 years ago Log in to Reply
      3. ChrisW

        Marty, your DME (i.e. pump, CGM) and medication (i.e. insulin) normally come from two different companies. Advanced Diabetes Supply in Carlsbad didn’t pass my reputable company checks and doesn’t appear to be HIPAA compliant. Try Minipharmacy in Los Angeles or if you out of all other options for DME supplies, Byram Healthcare.

        3 years ago Log in to Reply
      4. Marty

        recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

        3 years ago Log in to Reply
    12. Ms Cris

      At first glance, yes, but with a Medically Necessary letter/form from my Dr, we got it covered again, but at a higher cost to me. Still worth it.

      3 years ago Log in to Reply
    13. Sue Martin

      I will be in the next couple of months. I am going back on glargine (Lantus) and I have a supply on hand. The pharmacy told me that when I need a refill, due to the insurance, they will give me a different, but chemically the same, medication.

      1
      3 years ago Log in to Reply
    14. Bob Durstenfeld

      I hate insurance company formularies. Why should insurance companies be able to dictate medical best practices? I find it annoying that these can be revised mid-year too, after you have made your plan selection.

      4
      3 years ago Log in to Reply
    15. Joan McGinnis

      I had to change from Novolog to Humalog. Has not been a problem but I dont see why they get to decide over the doctor and all going well with what I was on and prefer.

      1
      3 years ago Log in to Reply
    16. Yaffa Steubinger

      I answered yes but the only thing the insurance company changed was my glucose meter brand.

      3 years ago Log in to Reply
    17. Anthony Harder

      Answered “no” not in the last 12 months but have had insurance force a change multiple times before that. Most of the switches were Novalog-Humalog.

      3 years ago Log in to Reply
    18. Ken D

      No

      3 years ago Log in to Reply
    19. Brian Vodehnal

      I changed devices so I didn’t have to deal with Edgepark Medical. I could get a CGM locally and not deal with them.

      1
      3 years ago Log in to Reply
    20. Patricia Kilwein

      Right now my pump supplies and Humalog covered. It’s the amount that has to be adjusted. For asthma it’s a whole new problem.

      3 years ago Log in to Reply
    21. Thomas Brady

      I am on Humalog insulin, and have been since 1996. I went on the Tandem pump in 2014 and migrated to the TSlim X2 in 2019. My insurance is Medicare with a supplement that pays 100% of what Medicare does not cover. On my last insulin refill (8 vials every 90 days) the pharmacist at Walgreen’s came out and informed me that Medicare wanted me to substitute another insulin “non branded insulin” for my Humalog. I politely asked him if he was going to dispense an insulin for my TSlim which was not approved for use by the manufacturer, not used in the testing for the pump the results being used by the FDA for the pump’s approval, and not prescribed by my doctor. He just said “Oh”, went back behind his station, made a call and I got my Humalog. I do not know if this was Walgreen’s or Medicare’s nonsense, but they tried this once before and I gave them the same speech and got my Humalog. Now I carry a copy of the Tandem paragraph from the Slim instruction manual when I go to the pharmacy. I am sure that they do not want the liability for dispensing insulin which is not tested in my pump and which the manufacturer says not to use! End of story for that nonsense! If insulin is costing Medicare too much, then yell at congress about it. Insulin costs about $6 a vial to make. The price they charge is OUTRAGEOUS!!!! When we were in France I went into a pharmacy in Paris and after showing her the box from my US Humalog she told me that I could buy it from her for $18 Euros (about $18 at that time) without a prescription! I guess the mark-up in the US is to cover the profits of Lilly and the costs of their lobbyists!

      1
      3 years ago Log in to Reply
    22. Patricia Dalrymple

      I said other: I upgraded to the Medtronic 770G and with it comes a glucometer that wirelessly transmits the BG number to my pump. I called Cigna and questioned whether I could go to this new accucheck glucometer at the same cost as my one touch that they made me switch to after being on a prior accucheck. They said yes in the chat. However, when I picked it up, instead of free test strips they tried to charge me. I am going back to one touch but I am appealing and getting my Endo involved. We will see. I fight with them all the time and usually win.

      3 years ago Log in to Reply
    23. Teri Morris

      Yes. Greenshield Canada REFUSES to cover CGMs -Libre or Dexcom- for me, even with a letter from my endo.?!

      3 years ago Log in to Reply
    24. Kevin McCue

      Yes and no, because insurance will not fill a 90 day rx( they hold until 95 before filling). I have to extend my infusion sets past the recommendation of my doctor to keep from running out

      3 years ago Log in to Reply
    25. Marty

      I recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

      3 years ago Log in to Reply
      1. Lawrence S.

        ADS? What’s that?

        3 years ago Log in to Reply
      2. Marty

        Sorry, I meant to add a reply to my comment below. ADS is the acronym for my insulin and supplies provider that required me to switch to Lispro insulin.

        3 years ago Log in to Reply
    26. Stephen Woodward

      Lyumjev and Afrezza are not covered so I use coupons or pay out of pocket. Love Medicare.

      3 years ago Log in to Reply
    27. Stang777

      Yes, as of the beginning of 2022, Express Scripts, nationwide, will no longer cover Lantus and have switched those who have a Lantus script with them to Semglee, which is an interchangeable insulin for Lantus. Any pharmacist can fill a Lantus script with Semglee without notice to the patient or doctor who prescribed Lantus for their patient. In their press release last years, they claimed it was being done to save their customers money, but it doesn’t save me much at all. I get two boxes in Lantus/Semglee as a 90 day supply, and all I save once they switched me was 6 bucks for that 90 day supply, so 2 bucks a month. That isn’t enough to validate a claim of saving anyone money. I believe, if anyone is saving money by this switch, that the only ones who are actually saving money is Express Scripts, and they are not passing those savings along to those who use the insulin, unlike what they claimed in their press release before making their customers make this switch.

      3 years ago Log in to Reply
    28. Bea Anderson

      No, but when I went on Medicare. Dexcom was a very good change.

      3 years ago Log in to Reply
    29. PamK

      No, I did not change insulin, but I did have to get Prior Authorization for an insulin that was previously covered by my old insurance company.

      3 years ago Log in to Reply

    In the past 12 months, have you been required to change medications or devices because of your health insurance? Cancel reply

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