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    • 12 hours, 10 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 12 hours, 16 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours, 23 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 9 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 9 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    In the last 12 months, how many times have you gotten blood work/lab work done?

    Home > LC Polls > In the last 12 months, how many times have you gotten blood work/lab work done?
    Previous

    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Next

    If you use an insulin pump, how often do you keep unexpired backup long-acting insulin at home?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Kelly Wilhelm

      I chose 5-6 times because I see the Endo 3-4 times a year and my primary care doc twice a year and he generally runs some labs although not the same labs that endo runs. I also have thyroid issues so that’s followed pretty closely plus we check a few other things like my liver panel, etc.

      4 years ago Log in to Reply
    2. Lawrence S.

      I’m having blood and urine lab done this morning, in about 1 hour. I see the Endo 4 times a year, with blood work before all visits, plus a few for other doctor visits.

      4 years ago Log in to Reply
    3. Ahh Life

      3 or 4. But this is a particularly sore spot for me.

      In the state of Florida, you used to be able to do handfuls of the standard blood work for 10, 20, or 30 dollars. Now, thanks to our elected representatives, it is illegal to do the work unless it is done by a hospital or hospital associated group, costing $700 to $800 each time.

      Thank you so much, honorable and duly elected representatives of we the people, for ensuring 1) medical costs stay high, 2) others benefit, not consumers and, 3) only the well insured and wealthy get good medical care. (>﹏<)

      2
      4 years ago Log in to Reply
      1. TEH

        Yeah, my hospital has a list price of $660 for my blood tests. Medicate has negotiated significantly lower rates, and covers it completely after the deductible. My alternative is to drive 60 miles round trip to a lab or my Endo’s office for a 15 minute blood draw.

        This sounds like a case of the Hospital lobbyists having more $$ than the lab lobbyist. The Hospitals are trying to recoup the losses from Covid.

        1
        4 years ago Log in to Reply
    4. AimmcG

      I have MS as well as Type 1 Diabetes so I get blood drawn frequently.

      4 years ago Log in to Reply
    5. Sue Compo

      For my autoimmune issues. (Thyroid. Rheumatology etc )

      4 years ago Log in to Reply
    6. Retired and glad

      I had to answer 9 or more times because last summer I had a heart attack and was in the hospital (ICU and regular) for ten days. “Normally” I would get the blood tests about twice a year.

      4 years ago Log in to Reply
    7. Kristine Warmecke

      5 to 6 times a year now, though my endocrinologist has agreed to have her lab work drawn when I have my oncology labs drawn every 3 month’s. Plus my PCP does labs a couple times a year. Now I also have GI labs that need to be done to rule out a lot of thing’s.

      4 years ago Log in to Reply
    8. gary rind

      this is my one frustration with my endo, he does them only once a year. plus it’s usually AFTER an office visit so we never discuss them

      4 years ago Log in to Reply
    9. Sherrie Johnson

      I answered 5 to 6 every three months for the endocrinologist it’s required to get Medicare covered diabetic supplies and one for my primary

      4 years ago Log in to Reply
    10. Carol Meares

      I used to get it done 2-3 times but since Covid only 1/year

      4 years ago Log in to Reply
    11. Bruce Schnitzler

      Blood work for both glucose and for cancer treatment. Glucose also tested when blood work is done for cancer.

      1
      4 years ago Log in to Reply
    12. LizB

      I had labs done 5 times in the last 12 months, mostly because my thyroid labs have been off and my endo keeps changing my levothyroxine dose which is starting to really annoy me. I will be going to the lab yet again next week.

      4 years ago Log in to Reply
    13. Molly Jones

      I have my BG and thyroid tested quarterly. I didn’t count the other blood work I have done unrelated to endocrinology,

      4 years ago Log in to Reply
    14. Wanacure

      I answered 2 but should have answered 4. In addition to yearly blood tests and urine tests I got a lab test for a minor skin cancer (positive) and an endoscopy that revealed I’m gluten intolerant! So no more Imperial Russian Stouts, no more double IPAs. And since most ouzo, whiskeys, etc are made from grains containing gluten, they are out as well. Wines and rum are OK. I could find only one vodka 100% corn-derived. I have yet to develop a taste for cactus liquors, like tequila and mexacato (sp?). My diet is already low carb, so no problems there.

      4 years ago Log in to Reply
    15. Sarah Berry

      I have also been treated for cancer since November, so lots of blood tests.

      4 years ago Log in to Reply
    16. AnitaS

      I said 5-6. I normally don’t have quite that many draws but I had surgery last year which upped
      it a few.

      4 years ago Log in to Reply

    In the last 12 months, how many times have you gotten blood work/lab work done? Cancel reply

    You must be logged in to post a comment.




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