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    • 4 hours, 23 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 4 hours, 25 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 5 hours, 21 minutes ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 5 hours, 55 minutes ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 6 hours, 4 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 4 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 6 hours, 20 minutes ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 7 hours, 20 minutes ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 7 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 7 hours, 55 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 55 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 7 hours, 59 minutes ago
      TEH likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 day, 2 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 2 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 day, 2 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 4 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 5 hours ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 5 hours ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
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    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Home > LC Polls > If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
    Previous

    Would you be willing to use a bio-similar insulin if it were available at a lower cost than your current insulin?

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    In the last 12 months, how many times have you gotten blood work/lab work done?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    10 Comments

    1. LizB

      One additional thing I would bring is one of my old backup pumps. “Loaner” was a choice, but I don’t need that as I can use my own old pump.

      1
      4 years ago Log in to Reply
    2. John Williamson

      I also take my previous insulin pump as backup even though I have never needed to use it.

      1
      4 years ago Log in to Reply
    3. KCR

      Having had a bad low in December for which I needed a microdose of glucagon, I’d now also bring a Gvoke syringe.

      2
      4 years ago Log in to Reply
    4. Marty

      I remember when everyone was stranded in place on 9/11. I always pack at least twice what I think I might need of everything, usually 3x as much insulin. My previous pump stays in my luggage.

      2
      4 years ago Log in to Reply
    5. luis.cosme@mac.com

      My T:Slim died yesterday.
      My t:slim died yesterday. I was out on a walk when it started screeching that urgent beep you get when you’re below 55 (or at least the Dexcom thinks so). I was at 85 per my Dexcom, which was still working. The screen wouldn’t wake up so it continued screeching every 3 minutes. I got back home about 20 minutes later and plugged it in to see if that would revive it. (Note that the battery was probably around 85% when I left but I wanted to make sure.)

      I called Tandem and she asked if it was blinking 3 red lights, which I hadn’t noticed in the daylight but I was able to confirm it after about a minute or so. She told me that the pump needs to be replaced and that the new one will arrive tomorrow (Monday). So two days without the pump.

      Fortunately, I kept my old Medtronic 630 with a box of reservoirs and infusion sets and was able to reprogram it using the t:connect app to recall my basal settings. (I had placed it in its storage mode without a battery.) Otherwise, I would’ve needed to get a prescription for Lantus and go to MDI for a couple of days, likely ruining my Saturday plans. Fortunately, the Dexcom continued working.

      So, the lesson for me is to take that back-up Medtronic with me when I travel out-of town (about once a month), even though it’s a pain to carry extra supplies.

      1
      4 years ago Log in to Reply
    6. Maureen Helinski

      I was away in Italy once and without realizing it I used up all my infusion sets. I went to a hospital but they couldn’t help. Fortunately I was home 8 days later and kept the same infusion set in me. It worked. I did have needles just in case.

      4 years ago Log in to Reply
    7. Heather Sharp-Keys

      I went out of town to a funeral last year. My CGM goes through cycles where 2 sensors in the box of three don’t work right the whole ten days. I was only going to be gone three days and had not had a bag low in a couple of weeks. I seriously thought about just taking one extra sensor, but that little diabetes voice most T1people have, told me to bring a whole box. It also told me to bring a glucagon kit. On the way to the funeral, my seatbelt ripped my sensor out. Never had that happen before. Stopped at a truck stop, put in a new sensor and noticed my sugar was in the mid 100s
      We got a bite to eat and some coffee. I took my Novolog for the carbs I ate and decided not to do a correction bolus until I got a reading from the new sensor. No more insulin as my sugar was 118. Sometime early the next morning my receiver started screeching for a critical low. I didn’t wake up. My mom who had moderate Alzheimer’s woke up, grabbed the glucagon, mixed it and gave it to me in the thigh. I woke up, barfed as I always do after glucagon, ate some glucose tabs and a PB&J after silencing the receiver. I hadn’t needed glucagon in over a year and I seriously doubted she would look in my purse, find it, mix it, and shoot it in me. it’s amazing what our brains can do in an emergency. Next trip take your glucagon!

      2
      4 years ago Log in to Reply
      1. KarenM6

        I agree, Heather! I don’t forget my Baqsimi anymore!!! My experience at an airport (written above) led me to request some type of glucagon. I really should have had it available, but didn’t. Lesson learned!!!

        4 years ago Log in to Reply
    8. KarenM6

      I had an experience once where I had to try 4 sensors before I found one that would work. (The needles weren’t releasing and I couldn’t get the inserter off without pulling the sensor out.) So I always do 2 or 3 times what I will expect to need.
      I did that for a trip overseas, but it didn’t work out. My sensors kept failing because they said I had to put a new one in. As I _was_ putting new ones in, it was quite annoying. And, because I was overseas, the company wouldn’t/couldn’t help me out. I had to go without a CGM for the final leg of my trip.
      But, I ended up really needing a working CGM because we had a late connecting plane arrival and had to run about a mile or two through the airport to make our next plane.
      We made it by the skin of our teeth. When we got on the plane and had settle in, I checked my BS and it was 43. (I am hypo unaware, so didn’t have any symptoms.)
      I just thought, “No wonder I had such a hard time running through the airport!”

      Anyway, I’ve experienced far too many CGM and pump issues to ever feel comfortable going away from my home with less than double what I will need! =:o

      2
      4 years ago Log in to Reply
    9. Wanacure

      If my Dexcom sensor was going to expire before the 7 days was up, yes I’d bring another. If my transmitter was going to expire before 7 days was up, I’d bring the replacement. If my two insulin vials were about to surpass 28 days, I’d bring a fresh vial of each type, with extra syringes as well.

      4 years ago Log in to Reply

    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you. Cancel reply

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