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    • 9 hours, 32 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 12 hours, 25 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 13 hours, 47 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 13 hours, 48 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 17 hours, 21 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Home > LC Polls > In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!
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    If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM?

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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Wanacure

      My brother died in October last year. He was 3 years younger and developed T1D same age as me, at age 15. Some kind of respiratory failure. Covid maybe? I wonder. His girlfriend refused his intubation. why was I not contacted? This was a shock to me and explains my absence from this forum. And then I broke my ankle.

      2
      3 years ago Log in to Reply
      1. Kathy Hanavan

        I am really sorry about your brother and welcome back!

        1
        3 years ago Log in to Reply
      2. Marty

        So sorry!

        1
        3 years ago Log in to Reply
      3. Steven Gill

        Sorry

        3 years ago Log in to Reply
      4. Karen Tay

        My condolences.

        1
        3 years ago Log in to Reply
      5. Ahh Life

        We are all saddened by the death of your brother. Contending with the inscrutability of other people involved often seems unreasonable and unimaginable. Good luck.

        3 years ago Log in to Reply
    2. Kathleen Juzenas

      My brother, who is 10 years my elder. Oddly, we were both diagnosed in our mid-twenties.

      3 years ago Log in to Reply
    3. William Bennett

      I have five siblings, about 20 first cousins and scores of second cousins (children of first cousins). One of the second cousins has T1, that’s it. Also zero for grandparents, aunts & uncles. Same for T2 afaik, though my sister has been dx’d pre-d.

      There used to be a thread on the old TUDiabetes forum, “Are you the (lucky) one?” for people with zero T1s in their family. There were a lot of us! I was always told, from dx on, not to be surprised b/c it doesn’t typically run in families, though more recently it’s apparent to me that in some cases it does. Not in mine though.

      3 years ago Log in to Reply
    4. Amanda Barras

      No siblings

      3 years ago Log in to Reply
    5. Karen Mielish-Clausell

      My siblings have type 2

      3 years ago Log in to Reply
    6. Shannon Barnaby

      I have two siblings but neither have T1D.

      3 years ago Log in to Reply
    7. mojoseje

      My brother’s T1 manifested after he had emergency gallbladder surgery in his 20s. Mine emerged when I was 7, one month after my mother died. I wonder how many people’s T1 emerges after a traumatic experience. I’ve heard it’s a thing.

      My older brother has T2.

      Also, when I was in high school, my biology teacher asked me how many siblings I had and how many of them were diabetic. (This was in the late 70s.) She told me she had three sibling and they were all diabetic but she was spared. She was surprised there weren’t more of us. At the time, I was the only one but because she told me it runs in families, I was aware that some of my siblings would become diabetic.

      1
      3 years ago Log in to Reply
    8. Kate Kuhn

      T1D is clearly in my family- Father, Aunt, Uncle, Cousin, Sister, and Son. Interestingly, neither of my grand parents.

      3 years ago Log in to Reply
    9. Bob Durstenfeld

      I have tow out of three younger siblings with T1D. My eldest of three sons has T1D and his eldest daughter has T1D. It sort of runs in our family.

      3 years ago Log in to Reply
    10. TS

      I have one brother but he doesn’t have diabetes.

      3 years ago Log in to Reply
    11. Lynn Smith

      I had an older sister who was diabetic, but I never knew if she was a T1D LADA or an extremely insulin resistant Type 2. I was diagnosed T1D at the age of 12. She was already married and living in another city by then (at the age of 16). Years later she developed Graves disease and years after that I found out she had been diagnosed as a diabetic. She never did what the doctors told her. She ate as she pleased, didn’t always take her insulin on time or at all, and so her health got worse and worse. By the time I knew much about her health, she was taking probably 3 times the amount of insulin as I was. I could go on. Long story short, she died in 2020 at the young age of 69. Between heart bypass surgery, multiple strokes, and gastroparesis, I’m not sure what her cause of death was. My uninformed diagnosis was too many years of smoking and uncontrolled diabetes cascaded her health downward into a condition she couldn’t survive. Sad story.

      3 years ago Log in to Reply
    12. Steven Gill

      I’ve a brother diagnosed T1d a few months before our older sister died of breast cancer, I was “erroneously” diagnosed TYPE2 a week after her passing (May will be 25 years). Three years later our younger sister died of leukemia, a few weeks later at those medical trials my diagnosis was changed to T1d. Through my brother’s life with alcohol and all that goes with it we lost touch but with his sobriety we remaining brothers and he are probably closer than Iegally allowed (sarcasm). My brother and myself mostly make fun of our diabetes, even the roughest times but off and on support each other. Ironically a cousin adopted into the family was diagnosed only 15 years ago and we found ways to bond: her care is abhorrent but tough for her to change her lifestyle and habits (neuropathy, gastroparesis, COPD…). No idea of other family.

      3 years ago Log in to Reply
    13. Yaffa Steubinger

      No siblings with T1, just two grandkids 🙁

      3 years ago Log in to Reply
    14. Mary Halverson

      None of my 5 siblings have it, all older than I in their 70’s, and no other family. I was diagnosed at age 61 8 years ago.

      3 years ago Log in to Reply
    15. anj1832

      I am the only one in my family with T1D. Both my older brother (34) and little brother (28) do not have it. I was diagnosed when I was 3 and I remain the only one with it. Some days it would be nice to have someone/ family member to talk to about it but then again, I wouldn’t wish this disease on my worst enemy.

      2
      3 years ago Log in to Reply
    16. kilupx

      My parents had 2 children. My brother got type 1 at age 10. I was 9 at the time. Fast forward 57 years: My brother had died a few years before and I was diagnosed with LADA at age 66. There is no other blood relative with type 1 or type 2. How I wish my brother was here to coach me. I don’t know anyone with type 1, which is why I read this site so religiously.

      1
      3 years ago Log in to Reply
    17. Karen Tay

      Yes, my younger brother, by 2 years, was diagnosed at the age of 6.
      He passed away at the age of 43 due to other reasons but his T1D definitely put a hardship on him.

      3 years ago Log in to Reply
      1. Ita Shapiro

        I’m so sorry that you lost him.

        3 years ago Log in to Reply
    18. Kristine Warmecke

      I have 2 younger brothers, one 2 years younger and the other 8 years younger than me. The one 2 years younger than me was diagnosed at 7 months old, I was diagnosed at 11 years old. We still are the first one we ask about T1D things, especially have you ever….
      We used to come up with some pretty good pranks to play on our endo. team. 😂

      3 years ago Log in to Reply
    19. Ita Shapiro

      My beloved brother passed away from an acute t1d complication

      3 years ago Log in to Reply
    20. Kristine Brown

      Mom with TD1
      Son with TD1
      Daughter with TD1

      3 years ago Log in to Reply
    21. Melinda Lipe

      No living relatives with T1D. I had to go to a children’s camp to meet other kids like me.

      3 years ago Log in to Reply
    22. Donna Condi

      My younger brother was diagnosed with Type 2 diabetes and put on pills. After several years he was put on Lantus nightly. After a few more years he was put on Humalog injections before meals. He has never been told he is Type 1.

      3 years ago Log in to Reply
    23. Cristina Jorge Schwarz

      I have T1D. I have a sibling who does not have T1D.

      3 years ago Log in to Reply
    24. mbulzomi@optonline.net

      I’m the only one with T1D in my entire family.

      3 years ago Log in to Reply
    25. Jen Farley

      I do have 1 sibling a younger brother with type 2. I also have a sister with pancreatic cancer and she maintains with diet like type 2.

      3 years ago Log in to Reply
    26. sweetcharlie

      I like all the NO’s!!!

      3 years ago Log in to Reply
    27. RegMunro

      I do have a T1D daughter

      3 years ago Log in to Reply
    28. Missy Kirchem

      No type 1 but my sister has 3 different autoimmune diseases and my brother has 1 different one also.

      3 years ago Log in to Reply
    29. Maurine Bowser

      My sister with T1D and a nephew with T1D and a niece with celiac.

      3 years ago Log in to Reply
    30. T1D4LongTime

      I have no siblings

      3 years ago Log in to Reply

    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments! Cancel reply

    You must be logged in to post a comment.




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