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    • 1 hour, 13 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 1 hour, 13 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 1 hour, 55 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 2 hours, 59 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 2 hours, 59 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 4 hours, 38 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 4 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I am too old and prefer my daughters get islet cells. There isn’t going to be enough to treat everyone I am sure as the supply will not allow that
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?
    Previous

    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Jane Cerullo

      Insulin for MDI $210. Iport $60. Needles $10. Dexcom no cost.

      3 years ago Log in to Reply
    2. Gerald Oefelein

      Medicare deductible.

      3 years ago Log in to Reply
    3. emily anderson

      I live in Spain, where we have socialized medicine. Our citizens´ taxes pay for my insulin, sensors, tubing, pump, and all medical appointments. I am from the USA but would be terrified to have to move back there because of my diabetes. I mean, that, and all the mass shootings…

      7
      3 years ago Log in to Reply
      1. JOAN ULMER

        So how much are citizens paying in taxes? Just curious how much socialized medicine costs each person/year?

        1
        3 years ago Log in to Reply
    4. Daniel Bestvater

      I live in Ontario Canada so pump is covered but not Dexcom G6, insulin and medication. So I spent ~$1,800 during this time period.

      3 years ago Log in to Reply
    5. Louise Robinson

      Annual Part B Medicare Deductible. $226 in 2023.

      3 years ago Log in to Reply
    6. Steven Gill

      Dropped insurance until the end of the year, guessing about $500 for Libre3, insulin pens, strips, and prescriptions. Lower than my copay with insurance? (dropped the pump/CGM combo)

      3 years ago Log in to Reply
    7. Marty

      I spent $227, about half my Medicare Part D deductible, on prescriptions. I also had to buy some test strips out of pocket because CVS suddenly won’t refill the prescription. It’s probably some nonsense about Medicare Part B coverage but I haven’t had time to devote to waiting on the phone to try to figure it out.

      3 years ago Log in to Reply
    8. KarenM6

      I spent over $6,000. Ugh and ouch.

      1
      3 years ago Log in to Reply
    9. Wanacure

      At least $500. ($105 for 3 vials of Lantus, long acting insulin + $105 for 3 vials of Humalog, fast acting insulin + $127.85 Byram for Dexcom 6 supplies in January and $127.85 to Byram for Dexcom 6 supplies in March

      3 years ago Log in to Reply
    10. Wanacure

      + cost of surgery for ankle fracture surgery caused by osteopenia & neuropathy in feet, both T1D complications, + pain pills & antibiotics after ankle surgery exceeds $500 total out of pocket costs for T1D January thru March 2023. I forgot cost of crutches and walker and appointment copayments, x-rays. Most of the thousands of $ for surgery and metal implants and screws and overnight hospital stay were paid by Medicare. Do not privatize Medicare.

      3 years ago Log in to Reply
    11. Michelle Turner

      My Insurance is the best I have ever had! I work for a hospital, I get my meds from their pharmacy. All of my diabetes supplies are covered. My Insulin, my omnipod 5, DexcomG6. I’m very Thankful!

      2
      3 years ago Log in to Reply
    12. Troy Bruce

      Largest expense is for Dexcom g6 Sensors. Using GoodRX averaging 170 a month. My insurance won’t consider them as preventative. So i have to meet a ridiculous deductible first. DoubleCross of Michigan. They do consider insulin as preventative. I believe it’s mandatory. Fiasp and Lantus each is around 200 for 90 day supply. Can’t complain about that.

      1
      3 years ago Log in to Reply
    13. Maurine Bowser

      I spent around $500 in Jan to get an InPen which also covered my deductible. I’m on Medicare so generics are covered but not pen needles.

      3 years ago Log in to Reply
    14. Britni

      I misread the question. I answered 501-750 but should have said 1-250

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023? Cancel reply

    You must be logged in to post a comment.




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