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    • 3 hours, 13 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 3 hours, 18 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 3 hours, 25 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 6 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I also have Hashimoto’s.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        Me too.

        3 years ago Log in to Reply
    2. Karen DeVeaux

      Celiac

      1
      3 years ago Log in to Reply
    3. Kathleen Juzenas

      One: rheumatoid arthritis

      3 years ago Log in to Reply
    4. Lawrence S.

      I have so many autoimmune diseases, I don’t even know if I know them all. Hypothyroid, pemphagoid, asthma, Celiac disease. The list goes on. I’m not sure anymore which ones are autoimmune diseases.

      3 years ago Log in to Reply
    5. Jane Cerullo

      Graves’ disease with TED
      Probable lupus. Rashes on skin appear to be lupus. Decided not to be tested.

      3 years ago Log in to Reply
    6. Karington Johnston

      I also have epilepsy, which is chronic, but not autoimmune

      1
      3 years ago Log in to Reply
      1. Wanacure

        😎 Karington, you ain’t alone. But “epilepsy” is stigmatized . Did you know about eugenics and epilepsy? Yeah, epileptics were STERILIZED & institutionalized by US doctors before AND after Nazis were doing it. So now (to obscure their past?) doctors call it “seizure disorder”.)

        3 years ago Log in to Reply
    7. Carl Robertson

      Addison’s disease

      3 years ago Log in to Reply
    8. Carol Meares

      I put one but it is not really a disease. It is a syndrome. Sjogrens. Dupytrens a disease? I have that, too

      3 years ago Log in to Reply
    9. Janice Bohn

      Thyroid.

      3 years ago Log in to Reply
    10. pru barry

      Graves. In the scheme of things it’s a non-entity. Once my thyroid was diagnosed as over producing, and removed, my once daily thiamine tablet is taken with no more concern than a daily vitamin. When learning about this, I was a little horrified and insulted to have another autoimmune disease, but my 69 year run with diabetes continues, and I keep grinning back at the grim reaper. We both are given to chortling!

      1
      3 years ago Log in to Reply
    11. Lynn Smith

      Celiac & Hashimoto’s hypothyroidism.

      1
      3 years ago Log in to Reply
    12. Bob Durstenfeld

      I have monogenic T1D, rather than autoimmune T1D.
      I still have T1D complications.

      3 years ago Log in to Reply
      1. Wanacure

        Bob, please see my response in my reply to Ginger. Others with rare diseases caused by one defective gene have already been cured at Fred Hutchinson in Seattle. I learned of this successful delicate costly research at a forum years ago. The presenter at that time mistakenly believed ALL diabetes was mult-genetic in cause. Today we know MOST, but NOT ALL. (Costs were covered by government research grants.)

        3 years ago Log in to Reply
    13. Anneyun

      I said 1, Rheumatoid Arthritis. Oh, but I have also had Dupytrens syndrome.

      3 years ago Log in to Reply
    14. jo

      I also have Celiac disease, frontal fibrosing alopecia and autoimmune leukopenia.

      3 years ago Log in to Reply
    15. Diana L.

      I have Diabetes 3c. Type 3c Diabetes (or Pancreatogenic Diabetes) can develop due to an illness or condition that affects or damages the pancreas. It can also occur if you have had surgery on your pancreas or if it is removed. I have 18% of my mancreas left.
      I had a distal pancreatectomy to remove a neuroendocrine tumor from my pancreas.

      3 years ago Log in to Reply
    16. Molly Jones

      Autoimmune conditions run in my mother’s family.
      I have hypothyroidism as does everyone else in the family. I also have epilepsy due to GAD antibodies that most likely caused my diabetes. Microscropic colitis, and Raynaud syndrome.

      3 years ago Log in to Reply
      1. Wanacure

        Molly, you might check my reply to Karington.
        Btw if you’re concerned about saving & improving Medicare: https://www.psara.org/.

        3 years ago Log in to Reply
    17. beth nelson

      I’ll bet a lot of people don’t know they have autoimmune diseases, based on the percentage of “no” answers. Also, once we are diagnosed with one, it’s not always (not usually?) explained that it is an autoimmune disease.

      4
      3 years ago Log in to Reply
    18. Shannon Barnaby

      Celiac disease and hypothyroidism

      1
      3 years ago Log in to Reply
    19. Carrolyn Barloco

      Vitiligo and Poly myalgia rheumatica (PMR)

      3 years ago Log in to Reply
    20. Jen Farley

      Rheumatoid Arthritis and Hypothyroid, at times all of it is exhausting.

      3 years ago Log in to Reply
    21. KIMBERELY SMITH

      Lot

      3 years ago Log in to Reply
    22. JanP

      Dysautonomia, asthma, Dupuytrens, ganglion cysts on my feet..there’s probably more

      3 years ago Log in to Reply
    23. Jan Masty

      Rheumatoid arthritis, vitiligo, hyothyroidism,, lichen sclerosis, lichen planus. The last two have only been an annoying but temporary issue years ago.

      3 years ago Log in to Reply
    24. Ginger Vieira

      T1D
      Celiac
      Fibromyalgia (+ chronic fatigue)
      POTS
      Hypothyroid

      3 years ago Log in to Reply
      1. Wanacure

        Ginger, in an earlier answer to this Q, Bob said he”s got monogenic diabetes. Have you ever heard of that? At https://www.healthline.com I learned there are 2 types of monogenic diabetes. 4% of all Americans w/ diabetes have it. 1 in 20,000 to maybe 1 in 500,000 infants have it. There are tests for it. My Q to you & Bob & esp genetic researchers into CRISPR, wouldn’t Bob be a great candidate for a REAL LASTING CURE? JUST ONE GENE! How many people with diabetes have been tested for this type which has a potential cure?

        3 years ago Log in to Reply
    25. mbulzomi@optonline.net

      I answered “0” nothing to discuss.

      3 years ago Log in to Reply
    26. Wanacure

      If celiac disease and allergies to a certain tree pollen count, then I have a total of three. Low carb gluten free diet handles celiac. Ten mg loratadine /day for a few days as needed handles tree pollen nasal congestion & sneezing.

      3 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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