Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 9 minutes ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 12 minutes ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 41 minutes ago
      Patricia Dalrymple likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 1 hour, 10 minutes ago
      Sarah Berry likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 1 hour, 11 minutes ago
      Sarah Berry likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 1 hour, 28 minutes ago
      Lozzy E likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Easiest way to stay in range is with physical activity. This is always true even before insulin was available. Tests and doctor appointments can cause mental stress. Physical activity does the opposite.
    • 1 hour, 30 minutes ago
      lis be likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 1 hour, 31 minutes ago
      lis be likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 1 hour, 31 minutes ago
      lis be likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 1 hour, 38 minutes ago
      atr likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      The list is great. Medications need to be on the list too.
    • 1 hour, 38 minutes ago
      atr likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 1 hour, 39 minutes ago
      atr likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Easiest way to stay in range is with physical activity. This is always true even before insulin was available. Tests and doctor appointments can cause mental stress. Physical activity does the opposite.
    • 1 hour, 39 minutes ago
      atr likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 2 hours, 6 minutes ago
      kristina blake likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 3 hours, 35 minutes ago
      Laurie B likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Good communication skills with provider -def an endo
    • 3 hours, 35 minutes ago
      Laurie B likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 5 hours ago
      Eve Rabbiner likes your comment at
      In what ways has diabetes positively influenced your life?
      It's hard to honestly say anything positive.
    • 15 hours, 50 minutes ago
      jamesmpii likes your comment at
      In what ways has diabetes positively influenced your life?
      D.R.A.W. It’s a theme I’ve used in public speaking. D is for discipline; a concept some people have to join the army to learn. R is for reward. You must reward yourself for things well done. A is for awareness. Awareness of yourself and others keeps you alive. W is for wonderment. Believing or thinking about things bigger than yourself. ル˖ ♡ ₍ ᐢ..ᐢ ₎ 📍 ࣪ . >
    • 15 hours, 51 minutes ago
      jamesmpii likes your comment at
      In what ways has diabetes positively influenced your life?
      I've become much more innovative with problem solving skills. I've learned to improvise in so many situations (e.g., when my pump ran dry and I had forgotten extra supplies, I realized that I had an extra 10 units in the tubing- I figured out how to force inject that to get an extra 10-12 hours, etc.) This improvising skill has spilled over into many other areas of my life. I don't think I'd be as flexible if I wasn't forced to "figure it out" because of my T1D.
    • 18 hours, 55 minutes ago
      Bob Durstenfeld likes your comment at
      In what ways has diabetes positively influenced your life?
      In a look at me world...it has shown me there is a strong community of amazing giving people going thru a shared struggle...
    • 18 hours, 55 minutes ago
      Bob Durstenfeld likes your comment at
      In what ways has diabetes positively influenced your life?
      Counting your blessings and being grateful for the good days
    • 18 hours, 55 minutes ago
      Bob Durstenfeld likes your comment at
      In what ways has diabetes positively influenced your life?
      Persistence
    • 18 hours, 55 minutes ago
      Bob Durstenfeld likes your comment at
      In what ways has diabetes positively influenced your life?
      D.R.A.W. It’s a theme I’ve used in public speaking. D is for discipline; a concept some people have to join the army to learn. R is for reward. You must reward yourself for things well done. A is for awareness. Awareness of yourself and others keeps you alive. W is for wonderment. Believing or thinking about things bigger than yourself. ル˖ ♡ ₍ ᐢ..ᐢ ₎ 📍 ࣪ . >
    • 23 hours, 18 minutes ago
      KCR likes your comment at
      In what ways has diabetes positively influenced your life?
      Developed internal discipline , helped me find my career as a CDE , helped me keep myself in good health. Introduced me to many excellent role models
    • 23 hours, 18 minutes ago
      KCR likes your comment at
      In what ways has diabetes positively influenced your life?
      It forced me to focus on caring for myself so I could best care for my family.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you’re a person with T1D, have you experienced symptoms of Raynaud’s phenomenon (a condition where the hands or feet experience temporarily less blood flow, become very cold, and may turn white or blue)?

    Home > LC Polls > If you’re a person with T1D, have you experienced symptoms of Raynaud’s phenomenon (a condition where the hands or feet experience temporarily less blood flow, become very cold, and may turn white or blue)?
    Previous

    Has your career path been influenced by living with T1D or having a loved one with T1D?

    Next

    Do you use any type of creams or ointments after removing your pump, CGM or injection site needle to prevent infection? Share in the comments what works for you!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 6 days ago 9 min read  
    News

    Drew Mendelow: Teen Creator of T1D1, a Free Insulin Calculator App for T1D Management 

    Michael Howerton, 2 weeks ago 6 min read  
    Lifestyle

    Protein, Glucose, and T1D: Expert Insights from Jennifer Okemah, MS, RDN 

    Jewels Doskicz, 2 weeks ago 8 min read  
    Lifestyle

    The Story of Dr. Guy Hornsby: From Teen Athlete to T1D Trailblazer 

    Michael Howerton, 3 weeks ago 8 min read  
    Research

    Type 2 Diabetes in Youth: A Rising Concern 

    Jewels Doskicz, 4 weeks ago 5 min read  
    Research

    Top T1D Exchange Research Highlights of 2025 

    Sarah Howard, 2 months ago 6 min read  

    11 Comments

    1. Jane Cerullo

      I have symptoms in both little fingers but have had surgery for Duputrens on both. So not sure raynauds or from surgeries. Very annoying. And can be painful.

      4 years ago Log in to Reply
    2. Sherolyn Newell

      No, and I hope I never do. That sounds scary.

      4 years ago Log in to Reply
    3. Lawrence S.

      I said, “maybe”. However, I am certain that I do have Raynaud’s. It just has not been diagnosed by a medical professional. Several of my siblings have been diagnosed with Raynauds. Throughout my whole life, I have had cold hands and feet, continuously. I feel cold most of the time, and am unable to live in cold weather (winter). As a matter of fact, I moved from the northern part of the USA to the southern part of the country specifically for that reason.

      4 years ago Log in to Reply
    4. Merry Woolsey

      I have had it in the past but not in recent years. I did have an MD tell me I did at that time, 2010, but no skin color change since 2015.

      4 years ago Log in to Reply
    5. TomH

      I’ve experienced instances of hand going numb, but attribute it to laying my head on it and cutting off normal blood flow similar to a compression low with a G6 CGM. There’s no pain, no color change that I’m aware of (hey its at night, in the dark…), no noticeable temperature change (think its a short-lived event), and it resolves quickly after changing position.

      4 years ago Log in to Reply
    6. Carol Meares

      The diagnosis from my doctor was based on my own testimony. Raynauds for me has been a regular occurrence since before my diabetes diagnoses. I have had Raynauds for probably 35-40 years.

      4 years ago Log in to Reply
    7. Liz Avery

      I don ‘t have problems but I have family members that are not diabetic that do.

      4 years ago Log in to Reply
    8. Karen Taylor

      I answered too quickly. I have not been medically diagnosed with Raynaud’s however have all the symptoms.

      4 years ago Log in to Reply
    9. Molly Jones

      I was diagnosed with this five years ago after experiencing progressive symptoms for more than twenty+ years.
      I can cool my husband down very quickly with my hands and feet most any time of the day, except when I first wake up after lying in bed. Most of my body is warm then.
      I also use mittens and hand warmers many times of the years when others are warm. I also like my drinks to be room temperature. Ice hurts and can give my lips a blue tinge.
      I find it strange that I hate the heat though. I cannot cool down once it’s over a certain comfortable temperature. Maybe the same blood flow problem leads to this?

      4 years ago Log in to Reply
    10. Melinda Lipe

      Maybe – I have severe pain in my hands when I touch ice.

      4 years ago Log in to Reply
    11. AnitaS

      My hands do get very cold at different times. My left hand tends to get cold at breakfast and sometimes either hand will get cold while walking a dog. My hands don’t get white or blue however.

      4 years ago Log in to Reply

    If you’re a person with T1D, have you experienced symptoms of Raynaud’s phenomenon (a condition where the hands or feet experience temporarily less blood flow, become very cold, and may turn white or blue)? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]