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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Home > LC Polls > If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.
    Previous

    For how many years have you (or your loved one) been living with T1D so far?

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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. John Williamson

      I am glad to see some physicians make use of portals. My primary care refuses to post anything – even appointments while my endo only does so after covering everything during my appointment. I wonder how many are like mine?

      4 years ago Log in to Reply
    2. Henry Renn

      I try to limit messaging bc I think my providers are required to reply to every text. Do not know if there is a HIPPA regulation, a law or simply protocul of medical system.

      4 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      My doctor and his team are amazing at responding to my messages. Can also access all test results like xrays not just labs.

      4 years ago Log in to Reply
    4. AnitaS

      I always use it to see my test results. I have used it 2x to do a telehealth appointment during high covid times (about a year ago I believe). I occasionally use it to message my provider, schedule appointments, or pay bills. I prefer paying right at the time of my appointment, but some offices don’t want the contact with my credit card (I am assuming) so they do not take payments at time of appointment.

      4 years ago Log in to Reply
    5. Marla Peaslee

      prescriptions refills

      1
      4 years ago Log in to Reply
    6. Kathleen Juzenas

      Just to see lab results. They also post my next appointment. The portal allows messages but I sent one and it went unanswered. When I then called, the provider told me to call (not message) if I have a question. They are good about returning calls within 24 hrs.

      4 years ago Log in to Reply
    7. Lori Lehnen

      I do all of the activities mentioned. When I switched to my new endo, the receptionist sent me a link for the portal and since then, all interactions have been virtual. I believe I’m getting better care because I routinely get follow up messages from the dr, via the portal, that are directly related to what we talked about. The portal must make it easier for her, which translates to better care for me and that makes me happy.

      1
      4 years ago Log in to Reply
    8. mojoseje

      I order my prescriptions.

      1
      4 years ago Log in to Reply
    9. Bea Anderson

      I don’t make appointments but I do check upcoming appointments.

      4 years ago Log in to Reply
    10. Amy Schneider

      While the portal offers many options, most are not implemented, like scheduling.

      4 years ago Log in to Reply
    11. PamK

      Refilling my prescriptions/medical devices.

      3 years ago Log in to Reply
    12. Cheryl Seibert

      I love the ability to send my endo a message! I also verify appointment times, check lab results, medical history (which quite often is inaccurate after 40 yrs with them, multiple electronic record upgrades, and the ER putting in inaccurate info). I have not had the need to schedule appointments on the portal, but this option is available.

      3 years ago Log in to Reply
    13. Velika Peterson

      Requesting new/refill prescriptions for insulin or supplies

      3 years ago Log in to Reply

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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