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  • Activity
    • 6 hours, 41 minutes ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 11 hours, 19 minutes ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 14 hours, 10 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 14 hours, 36 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 14 hours, 37 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 15 hours, 8 minutes ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 16 hours, 17 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 16 hours, 30 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 16 hours, 31 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
    • 16 hours, 47 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 16 hours, 48 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 17 hours, 12 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 18 hours, 41 minutes ago
      Bruce Schnitzler likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.
    • 19 hours, 14 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 19 hours, 59 minutes ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I am required to see my Endo every three months by Medicare. Otherwise, I'd probably go 2 times per year.
    • 20 hours ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I didn't have to change but I couldn't get a new one from Caremark because it wasn't on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!
    • 1 day, 13 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.
    • 1 day, 13 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 13 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan) I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!
    • 1 day, 18 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 18 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 19 hours ago
      TEH likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Home > LC Polls > Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?
    Previous

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Ahh Life

      Yes, regularly. Mostly for upcoming appointments. But it was invaluable one time when I replaced pumps and all the ratios and equations were dead in the water and un-resurrect-able along with the pump. ( ͡ᵔ ͜ʖ ͡ᵔ)

      1
      1 year ago Log in to Reply
    2. Lena Selbrand

      I also check that what they write about me is correct. Last time I had grown 8″ but of course my BMI was great due to that!! Lol!

      3
      1 year ago Log in to Reply
      1. Lori Lehnen

        I had the opposite happen. The dietitian accidentally clicked my weight in kg instead of lb so my weight was listed as 2.2 times what it actually was. I contacted them quickly to correct it because I did not want an erroneous “morbidly obese” designation showing up in my medical records. Who knows what the insurance company would do with that information.

        1 year ago Log in to Reply
    3. Pete Murphy

      Yes…..BUT…unfortunately in our state, the portals are all stand alone….so doctor A has no idea what you are doing with doctor B

      SO…I use the portal for the interaction with the specific practice.

      1
      1 year ago Log in to Reply
    4. Jane Cerullo

      It’s either good or bad depending. It’s really the only way to get in touch with office. Sometimes takes days for a response so can be frustrating

      1 year ago Log in to Reply
    5. Lawrence S.

      Yes. My T1D provider is at a local hospital. So, everything is on the hospital portal. And, all of my doctors, and different specialists can see all of my data.

      1 year ago Log in to Reply
    6. Ms Cris

      Yes, and it’s why I slowly moved all my providers to that hospital network, for better coordination of care.

      Other providers, pre-diagnoses, were not using that records system, and so transferring records/tests/history was an absolute pain. Shouldn’t be this difficult!

      1 year ago Log in to Reply
    7. Mick Martin

      My T1D health care provider DOES offer access to an online patient portal where you can access your medical records, contact your provider, but I use it infrequently.

      I generally use the patient portal to check what any blood tests that I’ve had done have revealed.

      I have personal email addresses for my endocrinologist, diabetes specialist nurse, etc. which I use to contact them if I need to.

      1 year ago Log in to Reply
    8. Joan Benedetto

      Yes, but we use it only to obtain a script refill when in between visits.

      1 year ago Log in to Reply
    9. Antsy

      My last 3 endocrinologists have used the same portal; it’s fine for paying a bill or checking an appt date. But I dislike the fact that messages sent to my doc or their staff is not private. Other physician offices or hospital depts (in many hospitals, in many states) who use this EMR system are able to view messages not expressly meant for them. While most of the thousands of employees within this massive group of hospitals & clinics would never bother to go into my chart, the fact that they are allowed to is worrisome. Using this portal, a friend had one doc read a msg that had been addressed to ANOTHER doc, and let’s just say it created a long-term, painful problem for her.

      1 year ago Log in to Reply
      1. Mark Schweim

        What makes you thing ALL the Doctors or Doctor offices using the service can read all your messages? And if that’s the case then why does the system require me to not only specify which Doctor’s office, but specify which Doctor I’m sending the message to?

        I have never seen or heard anything from any of my Doctors offices mentioning anything in a message I’d sent to another Doctor even when in that message I had asked that Doctor to mention the question or concern to one of my other doctors in the same office.

        1 year ago Log in to Reply
      2. Antsy

        Mark, I know they can because my spouse works for this hospital group, and he confirmed he has access to messages of any patient in the system. I also checked with my END’s office, who agreed.

        1 year ago Log in to Reply
    10. Robin Melen

      My medical group has a patient portal, but it’s really only good for emailing my doctors and paying bills. It claims to post medical records, but the most recent ones on mine are from 2020! It’s really a terrible platform. I’ve seen others that are much more robust.

      1
      1 year ago Log in to Reply
    11. KarenM6

      My endocrinologist does not have a portal, but other of my doctors do. Of the two or three different systems from those doctors that have a portal, only one is super hard to use.
      But, none to figure out at the endo… so really easy! ;p (jk)

      1 year ago Log in to Reply
    12. Janis Senungetuk

      Yes, andI’ve used it often to contact my endo and Educator with questions.Until recently I was getting a response to a question by the next day. Now the HMO has put up another layer of “physician guardians” and too often the first reply is from staff who haven’t glanced at my medical records or at least their action/answers indicate that they have no knowledge of my medical history. My primary physician is with a different healthcare organization and that makes it my responsibility to coordinate communication re. lab test results and Rx. I’m definitely not happy about that and have let them know that they need to make an effort to communicate with each other.

      1
      1 year ago Log in to Reply
    13. Kim Murphy

      I used to use it a lot, unfortunately they changed it and now it doesn’t work anymore.

      1 year ago Log in to Reply
    14. Steven Gill

      I see a small time neighborhood doctor just a few miles from my place. He doesn’t even have email, everything’s done over the phone.

      1
      1 year ago Log in to Reply
    15. Carol Meares

      I use it regularly but the results of my tests are not put up on there. I like to have access to my results so that when I am visiting another place I can call that information up for a new or temporary doctor or care provider when needed.

      1 year ago Log in to Reply
    16. Wanacure

      I’m hoping to use it more often after getting a newer more powerful, more secure electronic device and connection.

      1 year ago Log in to Reply
    17. mbulzomi@optonline.net

      His medical association keeps the records, but if I went to a Hospital in California, your local medical staff/ doctor cannot review their records. So much for electronics records!

      1 year ago Log in to Reply
    18. HMW

      Yes, I use it regularly, but it is quite poor for viewing medical records (my provider tells me to look at her notes, but they don’t seem to be available to me). I mostly use it to pay bills, message my provider, video telehealth appointments and print out lab request forms.

      1 year ago Log in to Reply
    19. PamK

      I really don’t like using the online portal, but it seems to be the only way I can contact my endo or get my lab results. It’s very frustrating to use it though!

      1 year ago Log in to Reply

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.? Cancel reply

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