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If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?
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I wasn’t ever under the care of an endocrinologist let alone a pediatric one as a child or young adult.
I didn’t meet my first endo until I was 29.
The doctors I had before my first endo were NOT good doctors, especially for a child.
I was several years older than many school peers. My pediatric primary was happy to seem me graduate. He was about to retire formally, died of a massive aneurism days before.
I was seven when I was diagnosed. I did not see an endocrinologist until I was in my 40s.
I was 18 and in college when I was diagnosed. Therefore, my diabetes care has always been with an adult primary care and/or endocrinologist.
In 2023
OK, I find the choices should have the multiple ability, diagnosed as a child I had 2 choices…… I answered how questioned was worded. Sure wasn’t ” a child diabetes provider “
I was diagnosed at 3 years – 1960
I didn’t see an endocrinologist until around 1991.
I was dx at 8 and stayed with my GP pediatrician until 13, although during that time I had an appointment with an Internist who specialized in diabetes. At 13 my parents thought it best to transfer my care to a new physician who had just moved to Kansas City from St. Louis where he had worked in research at Washington University. His research had been in an oral medication to replace insulin injections. He had zero people skills. He’d discuss my treatment with my mother but would only lecture me. His insistence on keeping me on a very rigid schedule and having me use every new insulin that became available made my life miserable throughout adolescence. As soon as I graduated from high school I insisted that I wouldn’t see him anymore. It was quite some time before I trusted physicians again. I didn’t see an endocrinologist until I was in my 50’s.
Wow! I would have reacted the same way.
I transferred to an adult endo in college and then struggled to find another for several years when I moved to my first career position.
I was diagnosed at 18 1/2. I first saw an Endo a year later.
I was 30 years old when Dx’d with T1D. As I learned about D, I became somewhat jealous of those Dx’d when young. From what I heard, the support offered to the child and their family was amazing: social worker, medical education/information, help dealing with school issues etc. After being found in a DKA coma by a nosy neighbor with a key to my house (she was nosy, but honest so I thought it a good idea for her to have a key) I rec’d my Dx. I was discharged from hospital with an Rx for insulin and syringes. No other info. Didn’t know anyone with any type of D, there was no internet then (so no access to good reliable info). I certainly hope thngs have changed. To make myself feel betterm I tell myself that my Dx was when they still referred to T1/T2 as juvenile onset/adult onset and the HCP’s figured I had had T1 for many years and just failed to do what I had to do. If they realized I was a total newbie, perhaps some education and support would have been forthcoming.
I started with a primary care doctor when I was about 19 years. About 30 years ago I went to an endocrinologist once but they told me I didn’t need to see them as my diabetes was in control so I stayed with my primary care doctor. Then in 2019 is when I got an endocrinologist permanently for my diabetes.
I was almost 18 when I was diagnosed so I went straight to a adult endo.
I answered the question wrong. I saw a family doctor when I was diagnosed at the age of 12. I continued to see a general practitioner up until the time I became pregnant at the age of 24. That’s the first time I saw an endocrinologist. So I should have answered I never saw a pediatric endo instead of answering 24-25. Sorry. 😬
Dead when I was 15 but had watched my dad injecting NPH every morning and I was the only one of his 5 boys to be Dxed. Our pediatrician neighbor got me in the hospital for a’10 day training’ and once I learned how to do a sub-q injection it was then it became a ‘shot in the dark’
I was diagnosed at 18 y/o, so adult-ish. Went directly to an adult endocrinologist.
I was 19 or 20 when I was told I needed to switch to the adult side. My brother was allowed to stay until he graduated college. I was in college for my BSN and had started clinical rotations.
My pediatrician saw me from the start and just continued care until I graduated college. That was outside that practice’s norm, but my mom also worked in the healthcare field so since I was on her insurance til graduation day, I stayed put.
Diagnosed at 12, and was referred to an adult endocrinologist right away.
I was 17 1/2 years old.