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    • 5 hours, 30 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 5 hours, 52 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 6 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 6 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 6 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 6 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 7 hours, 9 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 7 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 7 hours, 14 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 8 hours, 1 minute ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 1 hour ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 6 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 17 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 17 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 1 hour ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 1 hour ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 1 hour ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 1 hour ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 5 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 5 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 6 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 6 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 7 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    Do you (or your loved one with T1D) usually eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) usually eat gluten-free?
    Previous

    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?

    Next

    If you are an adult with T1D, do you take a Vitamin D supplement?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. sdimond

      I eat less than 40 grams of carbs each day. I eat no grains except a small amount of corn, a couple of taco shells per week.

      2 years ago Log in to Reply
    2. Henry Renn

      Taking it is by choice that I take D but it began after hospitalization for auto accident & blood testing.

      2 years ago Log in to Reply
    3. Lawrence S.

      I was diagnosed with Celiac disease about 15 years ago. Eating a gluten-free diet, on top of being T1D is extremely difficult and stressful. I would NOT eat gluten-free if I didn’t have to. It also has a negative effect on social occasions that usually involve food, as well as eating at restaurants, which I now try to avoid.

      1
      2 years ago Log in to Reply
    4. KCR

      But my non-D husband does!

      1
      2 years ago Log in to Reply
    5. Janice B

      I am not gluten free but I do limit gluten as I do not feel well if it is too frequently in my diet

      2 years ago Log in to Reply
    6. Marty

      I have a grain mill and baking bread and other things from freshly ground grains is one of my hobbies. I know that food allergies and intolerances can develop at any time, but I’ve been OK so far and this makes it easy for me to avoid refined carbs.

      3
      2 years ago Log in to Reply
      1. Kristine Warmecke

        How neat, Marty. I’ve just started learning how to make bread.

        2 years ago Log in to Reply
      2. Lawrence S.

        Excellent, Marty.
        I bake my own gluten free breads. But, I purchase the Bobs Red Mill and Pamela’s bread mixes at the store and online. It would be great to grind my own grains.
        Very interesting.

        2 years ago Log in to Reply
    7. Megan S

      I don’t “usually” eat gluten free, but my spouse is celiac so when we share a meal, I will. Or I will by accident if it just doesn’t happen to include any gluten containing ingredients.

      2 years ago Log in to Reply
      1. cynthia jaworski

        same here.

        2 years ago Log in to Reply
    8. Nevin Bowman

      Yes, because I eat low carb but not because of anything related to gluten itself.

      2 years ago Log in to Reply
    9. Kristine Warmecke

      I don’t but have found that I prefer some gluten-free foods over those with gluten.

      2 years ago Log in to Reply
    10. Lynn Smith

      Yes, because of Celiac disease. I hate it!!!!!

      1
      2 years ago Log in to Reply
    11. Lindsey Whitnell

      We don’t limit what food we eat. In general, we try to eat healthy, balanced meals and snacks with special treats every now and then. We’re trying to make celebrations less about food and more about other ways to experience the holiday / occasion.

      1
      2 years ago Log in to Reply
    12. Russell Buckbee

      My sister has celiac and she’s into’d us to some good foods gluten free. So we eat them.

      2 years ago Log in to Reply
    13. Eva

      I eat as healthy as I can (organic, mostly gluten & dairy free – I drink kefir, eat some cheeses and sourdough). However, I did a 23andme DNA test, and the report showed that I had one variant detected in the HLA-DQA1 gene and one variant detected in the HLA-DQB1 gene. Freaked out, I went to my endo, who ran Total Iga Ab which was less than 1. So, I don’t have celiac’s.

      1
      2 years ago Log in to Reply
    14. Becky Hertz

      I don’t avoid items with gluten nor do I seek them out. My sister (non-T1D) is gluten sensitive but I don’t seem to have issues.

      1
      2 years ago Log in to Reply
    15. KIMBERELY SMITH

      Wheat bread with gluten in has my head hurt

      1
      2 years ago Log in to Reply
    16. Carol Meares

      For 8 years I ate gluten free by choice, mainly to eat low carb. I just got too hard. I had a lot less rollercoasters when I ate gluten free than I have now.

      2 years ago Log in to Reply
    17. Jeff Balbirnie

      SIBO, anaphylaxis allergy(ies) to wheat, etc. in the immediate family guarantees at bare minimum GF habits

      2 years ago Log in to Reply
    18. T1DGJ

      I found gluten items in the USA create inflammation in me – I get achy and problem areas like old injuries begin to hurt. It may be gluten, or it may be the WAY grains are grown, sprayed, and processed in the states. I don’t hurt from bread in other countries that are more strict in not allowing pesticides to crack open the grains sooner.

      2 years ago Log in to Reply
    19. Amanda Laforet

      I am gluten intolerant and have to figure out how to go from a gluten based house to myself personally going gluten free and it’s not easy.

      2 years ago Log in to Reply
    20. PamK

      I do eat gluten-free when my son is eating with me because he has celiac. I do not. So, when he is not around I eat normally (IE: not gluten-free).

      2 years ago Log in to Reply

    Do you (or your loved one with T1D) usually eat gluten-free? Cancel reply

    You must be logged in to post a comment.




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