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    • 2 hours, 18 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 2 hours, 19 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 5 hours, 8 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 57 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 4 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 4 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 24 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 24 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 37 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 22 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 22 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 6 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 9 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 6 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      No. Fruits, veggies and whole grains are too important for our health.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I do not eat keto but it is safe. The term is ketosis which is very different from DKA. “ Ketosis is a normal metabolic process where the body produces ketones for energy when carbohydrate intake is limited, while ketoacidosis is a life-threatening complication of diabetes where dangerously high levels of ketones cause blood to become acidic. Ketosis is typically harmless and can be induced by fasting or following a ketogenic diet, according to Healthline. Ketoacidosis, however, is a serious emergency requiring immediate medical attention, says the Mayo Clinic.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      i agree! eating lower card due to Dr. Bernsteins book was a game changer in my type 1 control. I am so grateful he wrote it. I only found the book 10 years ago but wish I had known about it for the first 32 years of insulin treatment.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I have been a Type 1 since 1976. Back in the early 2000's, a friend gave me the book "Diabetes Solution" written by Dr Richard K Bernstein. Reading that book was a turning point for me in my diabetes control as it made me aware of the HUGE role carbohydrates play in glucose levels. I immediately became "carb-aware" and started tracking and reducing the number of total carbohydrate grams I was eating. My A1c's dropped from 9's and 8's into the low 6's with several higher 5's. My goal is to keep my A1c in the low 6's. As I've aged, (now 75), I've had to reduce the total number of daily carbs I consume in order to maintain my control. I credit becoming carb-aware and reducing my daily carbohydrate intake for not having developed any of the serious long-term diabetes complications that require additional treatment and medication. The diabetic ophthalmopathy that was first noticed in the late 1990's as well as neuropathy in my feet noticed about the same time have not progressed in the intervening 25 years. (I was on MDI until 2011 when I transitioned to an insulin pump. I resisted using a pump for years but love the added control and flexibility the pump gives me.) Life is good!
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    Do you (or your loved one with T1D) usually eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) usually eat gluten-free?
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    If you are an adult with T1D, do you take a Vitamin D supplement?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. sdimond

      I eat less than 40 grams of carbs each day. I eat no grains except a small amount of corn, a couple of taco shells per week.

      2 years ago Log in to Reply
    2. Henry Renn

      Taking it is by choice that I take D but it began after hospitalization for auto accident & blood testing.

      2 years ago Log in to Reply
    3. Lawrence S.

      I was diagnosed with Celiac disease about 15 years ago. Eating a gluten-free diet, on top of being T1D is extremely difficult and stressful. I would NOT eat gluten-free if I didn’t have to. It also has a negative effect on social occasions that usually involve food, as well as eating at restaurants, which I now try to avoid.

      1
      2 years ago Log in to Reply
    4. KCR

      But my non-D husband does!

      1
      2 years ago Log in to Reply
    5. Janice B

      I am not gluten free but I do limit gluten as I do not feel well if it is too frequently in my diet

      2 years ago Log in to Reply
    6. Marty

      I have a grain mill and baking bread and other things from freshly ground grains is one of my hobbies. I know that food allergies and intolerances can develop at any time, but I’ve been OK so far and this makes it easy for me to avoid refined carbs.

      3
      2 years ago Log in to Reply
      1. Kristine Warmecke

        How neat, Marty. I’ve just started learning how to make bread.

        2 years ago Log in to Reply
      2. Lawrence S.

        Excellent, Marty.
        I bake my own gluten free breads. But, I purchase the Bobs Red Mill and Pamela’s bread mixes at the store and online. It would be great to grind my own grains.
        Very interesting.

        2 years ago Log in to Reply
    7. Megan S

      I don’t “usually” eat gluten free, but my spouse is celiac so when we share a meal, I will. Or I will by accident if it just doesn’t happen to include any gluten containing ingredients.

      2 years ago Log in to Reply
      1. cynthia jaworski

        same here.

        2 years ago Log in to Reply
    8. Nevin Bowman

      Yes, because I eat low carb but not because of anything related to gluten itself.

      2 years ago Log in to Reply
    9. Kristine Warmecke

      I don’t but have found that I prefer some gluten-free foods over those with gluten.

      2 years ago Log in to Reply
    10. Lynn Smith

      Yes, because of Celiac disease. I hate it!!!!!

      1
      2 years ago Log in to Reply
    11. Lindsey Whitnell

      We don’t limit what food we eat. In general, we try to eat healthy, balanced meals and snacks with special treats every now and then. We’re trying to make celebrations less about food and more about other ways to experience the holiday / occasion.

      1
      2 years ago Log in to Reply
    12. Russell Buckbee

      My sister has celiac and she’s into’d us to some good foods gluten free. So we eat them.

      2 years ago Log in to Reply
    13. Eva

      I eat as healthy as I can (organic, mostly gluten & dairy free – I drink kefir, eat some cheeses and sourdough). However, I did a 23andme DNA test, and the report showed that I had one variant detected in the HLA-DQA1 gene and one variant detected in the HLA-DQB1 gene. Freaked out, I went to my endo, who ran Total Iga Ab which was less than 1. So, I don’t have celiac’s.

      1
      2 years ago Log in to Reply
    14. Becky Hertz

      I don’t avoid items with gluten nor do I seek them out. My sister (non-T1D) is gluten sensitive but I don’t seem to have issues.

      1
      2 years ago Log in to Reply
    15. KIMBERELY SMITH

      Wheat bread with gluten in has my head hurt

      1
      2 years ago Log in to Reply
    16. Carol Meares

      For 8 years I ate gluten free by choice, mainly to eat low carb. I just got too hard. I had a lot less rollercoasters when I ate gluten free than I have now.

      2 years ago Log in to Reply
    17. Jeff Balbirnie

      SIBO, anaphylaxis allergy(ies) to wheat, etc. in the immediate family guarantees at bare minimum GF habits

      2 years ago Log in to Reply
    18. T1DGJ

      I found gluten items in the USA create inflammation in me – I get achy and problem areas like old injuries begin to hurt. It may be gluten, or it may be the WAY grains are grown, sprayed, and processed in the states. I don’t hurt from bread in other countries that are more strict in not allowing pesticides to crack open the grains sooner.

      2 years ago Log in to Reply
    19. Amanda Laforet

      I am gluten intolerant and have to figure out how to go from a gluten based house to myself personally going gluten free and it’s not easy.

      2 years ago Log in to Reply
    20. PamK

      I do eat gluten-free when my son is eating with me because he has celiac. I do not. So, when he is not around I eat normally (IE: not gluten-free).

      2 years ago Log in to Reply

    Do you (or your loved one with T1D) usually eat gluten-free? Cancel reply

    You must be logged in to post a comment.




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