Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 10 minutes ago
      Scott Rudolph likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      Had to, no. But Medicare is adding coverage for FIASP in '26 so it will be "bye, bye, bye, bye, bye" to Lyumjev!
    • 17 hours, 29 minutes ago
      Kristi Warmecke likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Unlike most of the comments on this subject matter, I have needed glucagon several times per year. I am very active, and work hard around the house. I have a Tandem X2 pump with Control IQ and a Dexcom G7 sensor. However, from time to time, my blood sugars drop quickly, or I spend too much time between taking my meal insulin dose and eating my meal, where I need help. The glucagon has come in very handy. For me, it would be fool-hardy to be caught without it. Regarding cost, the price on glucagon has shot up, drastically, over the past year or two, even with health insurance. Luckily, I was able to find a generic, NOT pre-mixed glucagon. It is referred to as "Glucagon Emergency Kit For Low Blood Sugar 1MG." It's the old fashioned kind where you have to mix it yourself. But, at least I have something in case of an emergency.
    • 20 hours, 52 minutes ago
      eherban1 likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      I use InPen and it's great. Except they aren't keeping up with iOS so you now have to unlock your phone and open the app to check IOB instead of simply looking at the home screen. You can tell when app developers aren't users, otherwise they'd know how much of a pain this is when you check 50 times a day
    • 21 hours, 53 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 21 hours, 55 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 21 hours, 56 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 21 hours, 57 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I do because it Costc me over $300 to replace it. Too expensive.
    • 22 hours, 23 minutes ago
      John Barbuto likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Medicare has added FIASP for 2026! Besides the great news of being able to use this once again, it is one of the few fast acting insulins that works with the inPen. I am considering doing that in the new year
    • 22 hours, 23 minutes ago
      John Barbuto likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Been using fiasp for 2 years (in the UK) and it's significantly better than novorapid. Would highly recommend to everyone, especially if you find your insulin a bit slow to act.
    • 23 hours, 16 minutes ago
      Lozzy E likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Medicare has added FIASP for 2026! Besides the great news of being able to use this once again, it is one of the few fast acting insulins that works with the inPen. I am considering doing that in the new year
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      The last Glucagon prescription that I purchased was 15 years ago. Now it's way too expensive because my insurance doesn't cover it. They just want us to either die or use ambulance service to use or send us to ER. Pretty stupid to me. I've had T1D for 52 years and never needed it really. Only 3 times during early morning hypos in 2015-16 I needed rescue to wake me.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      My experience over the past 65 years is that a sugary drink and patience will bring me out of a low satisfactorily. If I’m unconscious, as has happened four or five times over that period, the EMTs know what to do.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No I haven't a glucagon in yeans. Reason being:, every time I had a prescription, the glucaagon was never used and expired.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I do because it Costc me over $300 to replace it. Too expensive.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 1 day, 8 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No,insurance won't cover it. T1D for 45+ years and haven't had a situation where I needed it - so far so good
    • 1 day, 10 hours ago
      Vicki Breckenridge likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 1 day, 16 hours ago
      Richard likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 1 day, 18 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      My experience over the past 65 years is that a sugary drink and patience will bring me out of a low satisfactorily. If I’m unconscious, as has happened four or five times over that period, the EMTs know what to do.
    • 1 day, 18 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Expiration dates are put on by the manufacturerbecause they have to, and almost never indicate the product won't work. I am confident if I need it , it will work.
    • 1 day, 18 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      With the latest monitoring technology I will probably never need it. I did need it a couple of times in the past, many years ago, and I do have expired Glucagon on hand. I do question whether expiration is real, since until it is mixed, what is there to expire?
    • 1 day, 21 hours ago
      ConnieT1D62 likes your comment at
      Have you been diagnosed with neuropathy? If so, please share your top management tips in the comments.
      My endocrinologist is very good about following the standards of care and looks at my feet every three months when I’m in as well as once a year he does a thorough test with a microfilament and a tuning fork regarding my feet. He says that there is mild neuropathy and at this point, it has not caused me any real problem no pain, numbness, tingling. I recently had a nerve conduction test on my hands because there was concern that there might be something going on with my spine and the neurologist did tell me I had some neuropathy in my hands along with carpal tunnel syndrome in both of them. This all was a surprise to me. I have had a complaint of periodic numbness in some fingers of both hands which he said at this point is mainly being caused by carpal tunnel syndrome. So I think a lot of people with diabetes may be unaware of some mild neuropathy unless their doctors are doing regular thorough testing. my cardiologist also suspects that the fact that my blood pressure tends to go all over the place, sometimes being high, and then crashing to extremely low levels is caused by autonomic neuropathy, and I suspect that some of my chronic gastrointestinal distress may also be caused by some neuropathy. diabetes for 64 years so not a surprise.
    • 1 day, 22 hours ago
      Bill Williams likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I have been a T1D for 57 years. I have not had Glucagon on hand in 25+ years. Normal carb/sugary items seem to be ok.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Home > LC Polls > If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.
    Previous

    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 3 days ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 2 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 3 weeks ago 11 min read  
    Meet the Expert

    Meet the Expert: Centering the Voices of Youth and Families from Vulnerable Populations 

    Jewels Doskicz, 4 weeks ago 8 min read  
    News

    Tidepool’s Brandon Arbiter on Building Better T1D Care Through Connected Data 

    Michael Howerton, 1 month ago 6 min read  

    21 Comments

    1. Bob Durstenfeld

      How about my doctors?

      5 years ago Log in to Reply
    2. Gene Maggard

      My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

      5 years ago Log in to Reply
    3. Ernie Richmann

      I allow my doctor to look at my clarity reports.

      5 years ago Log in to Reply
    4. Jeffrey Joseph

      Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

      5 years ago Log in to Reply
    5. Derek West

      I share with my endo through my Carelink account.

      5 years ago Log in to Reply
    6. Maureen Helinski

      I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

      5 years ago Log in to Reply
    7. David Smith

      I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

      5 years ago Log in to Reply
    8. Henry Renn

      I share with my Endo to monitor & adjust settings on pump.

      5 years ago Log in to Reply
    9. Nicholas Argento

      This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

      5 years ago Log in to Reply
    10. Amanda Barras

      I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

      5 years ago Log in to Reply
    11. kristina blake

      Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

      5 years ago Log in to Reply
    12. Mick Martin

      The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

      5 years ago Log in to Reply
    13. Catherine Van Hove

      I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

      5 years ago Log in to Reply
    14. George Lovelace

      With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

      5 years ago Log in to Reply
    15. Ann Auerbach

      I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

      5 years ago Log in to Reply
    16. Pat Reynolds

      I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

      5 years ago Log in to Reply
    17. Lisa Laissle

      My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

      5 years ago Log in to Reply
    18. Sally Numrich

      I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

      5 years ago Log in to Reply
    19. Jneticdiabetic

      When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

      5 years ago Log in to Reply
    20. Molly Jones

      I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

      5 years ago Log in to Reply
    21. Julian Reeves

      I share my results with my endocrinologist.

      5 years ago Log in to Reply

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]