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    • 13 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 14 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 14 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 hour, 41 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 8 hours, 41 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 16 hours, 7 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 16 hours, 8 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 16 hours, 8 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 16 hours, 9 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 18 hours, 21 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 20 hours, 54 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 22 hours, 48 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 13 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 13 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 14 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 21 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 21 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 21 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 21 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
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    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Home > LC Polls > If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.
    Previous

    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      How about my doctors?

      5 years ago Log in to Reply
    2. Gene Maggard

      My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

      5 years ago Log in to Reply
    3. Ernie Richmann

      I allow my doctor to look at my clarity reports.

      5 years ago Log in to Reply
    4. Jeffrey Joseph

      Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

      5 years ago Log in to Reply
    5. Derek West

      I share with my endo through my Carelink account.

      5 years ago Log in to Reply
    6. Maureen Helinski

      I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

      5 years ago Log in to Reply
    7. David Smith

      I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

      5 years ago Log in to Reply
    8. Henry Renn

      I share with my Endo to monitor & adjust settings on pump.

      5 years ago Log in to Reply
    9. Nicholas Argento

      This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

      5 years ago Log in to Reply
    10. Amanda Barras

      I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

      5 years ago Log in to Reply
    11. kristina blake

      Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

      5 years ago Log in to Reply
    12. Mick Martin

      The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

      5 years ago Log in to Reply
    13. Catherine Van Hove

      I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

      5 years ago Log in to Reply
    14. George Lovelace

      With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

      5 years ago Log in to Reply
    15. Ann Auerbach

      I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

      5 years ago Log in to Reply
    16. Pat Reynolds

      I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

      5 years ago Log in to Reply
    17. Lisa Laissle

      My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

      5 years ago Log in to Reply
    18. Sally Numrich

      I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

      5 years ago Log in to Reply
    19. Jneticdiabetic

      When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

      5 years ago Log in to Reply
    20. Molly Jones

      I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

      5 years ago Log in to Reply
    21. Julian Reeves

      I share my results with my endocrinologist.

      5 years ago Log in to Reply

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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