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    • 4 hours, 57 minutes ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 4 hours, 58 minutes ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 12 hours, 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 12 hours, 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 12 hours, 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 12 hours, 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 12 hours, 29 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 16 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 16 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 17 hours, 39 minutes ago
      KSannie likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 18 hours, 2 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 18 hours, 2 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 18 hours, 8 minutes ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 18 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 18 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 18 hours, 25 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 19 hours, 16 minutes ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 9 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 1 day, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 1 day, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 1 day, 16 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 1 day, 16 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
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    If you use time in range reports, what BG level is set as your High range? If you have different target range settings depending on time of day, please answer with the High setting at 12 p.m. in your time zone.

    Home > LC Polls > If you use time in range reports, what BG level is set as your High range? If you have different target range settings depending on time of day, please answer with the High setting at 12 p.m. in your time zone.
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    If you use time in range reports, what BG level is set as your Low range? If you have different target range settings depending on time of day, please answer with the Low setting at noon in your time zone.

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    How many times in 2021 did you have an appointment with your main T1D health care provider?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Ahh Life

      200. And before every vehement zealot weighs in on how “bad” this number is, please peruse one of the best academic articles I have come across: 😋

      https://onlinelibrary.wiley.com/doi/full/10.1111/dme.14433

      2
      4 years ago Log in to Reply
      1. Wanacure

        Ahh Life, I’ve had to read the article several times & will read it again for fuller understanding. I’m keeping closer track of time spent below 70 per 24 hour day. Too much time below 70 can lead to hypoglycemic unawareness in my humble opinion. I only just started wearing a CGM in 2021. So, hiking, jogging, aerobic exercise? I may have to raise my high tolerance to 180. When younger I was doing at least 40’ swimming laps, jogging 2.8 miles, or interval training on elliptical…I had to reduce long acting insulin and eat extra carbs. Fortunately, I finally found a book for diabetics showing how many calories are burned each minute for many diverse exercises. Call me a zealot. 🙂 Thanks for that article.

        4 years ago Log in to Reply
    2. Mick Martin

      I have my “High range” set to 8.4 mmol/l, which is equivalent to 151 mg/dL.

      4 years ago Log in to Reply
    3. AnitaS

      I usually use 155 as my setting, however, if I think my sugar may go up more than normal, I may give a correction at 125-130

      4 years ago Log in to Reply
    4. Lawrence S.

      180. I’ve always used 180 for my high range, 70 for my low range. Try to stay as close to 100 as possible.

      1
      4 years ago Log in to Reply
    5. Sue Martin

      My doctor uses it but I really don’t.

      4 years ago Log in to Reply
    6. kristina blake

      I cheat. I use the “standard” 180 for my uploads that I share with the Endo. But, personally I aim for 130. I’ll run a report with my targets just for me to see and then send the version with 180 to the Endo office. I got tird of being scolded for not having a higher TIR with my setting. No matter what I said, asking them to look at the range for the TIR, I was still told to manage better. I’m in the high 90%’s when using 180, not so high using 120130 as the high.

      1
      4 years ago Log in to Reply
      1. Wanacure

        I support your efforts to keep maximum at 130.

        4 years ago Log in to Reply
    7. Janis Senungetuk

      Last year I mentioned to both endo and diabetes educator that after responding to CGM high alarms and taking a correction bolus, it was very annoying to have those alarms continue so frequently. Knowing the length of time it takes for Novolog to actively work, the alarms should be spaced further apart. The response from my endo was to set the high alarm at 225.

      4 years ago Log in to Reply
    8. Jim Cobbe

      Did you mean midnight? 12 p.m. is midnight, p.m. stands for past noon when translated from the Latin. 12 noon is 12 noon, neither a.m. or p.m. Apologies for being a pedant.

      1
      4 years ago Log in to Reply
      1. Ahh Life

        Jim Cobbe — Power to the pedants! ☜(ˆ▿ˆc)

        2
        4 years ago Log in to Reply
      2. JuJuB

        Not accurate Jim. In fact, quite the opposite. A.M. means “ante-meridian” or before midday and, hence, 12 midnight. P.M. means “post-meridian” or after midday and, hence, 12 noon.
        https://www.dictionary.com/e/what-do-am-and-pm-stand-for/

        1
        4 years ago Log in to Reply
      3. Wanacure

        Noon is neither AM nor PM. Midnight is neither AM nor PM.
        So specify, “12 Noon” or “12 Midnight.” Or, use 0:00 to 24:00. In my humble opinion.

        4 years ago Log in to Reply
    9. Patricia Dalrymple

      70-180. Don’t use a CGM yet but I correct for anything over 120. After 21 years they cannot find any health issues so I must be doing something right. I go to 2 eye doctors, one for vision, one for glaucoma, etc. and I’m told they find no issues related to the T1D.

      1
      4 years ago Log in to Reply
    10. M C

      The range I have set is between 90 and 180, and generally I fall between these amounts. FYI – I do not have a different setting for various times of the day – the range remains the same throughout the 24 hour period.

      4 years ago Log in to Reply
    11. LizB

      I have my high set for 160 but my pump/CGM uses 180. So even though I consider myself to be too high at 160 my pump thinks it’s just fine.

      4 years ago Log in to Reply
    12. Chris Deutsch

      Oops. I erroneously answered 200-209. My high range is actually 180-189.

      4 years ago Log in to Reply

    If you use time in range reports, what BG level is set as your High range? If you have different target range settings depending on time of day, please answer with the High setting at 12 p.m. in your time zone. Cancel reply

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