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    • 2 hours, 33 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 2 hours, 33 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 3 hours, 2 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 11 hours, 24 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 57 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 20 hours, 58 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 20 hours, 58 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 20 hours, 58 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 1 hour ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 7 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 11 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 11 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 9 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 10 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 10 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    How many times in 2021 did you have an appointment with your main T1D health care provider?

    Home > LC Polls > How many times in 2021 did you have an appointment with your main T1D health care provider?
    Previous

    If you use time in range reports, what BG level is set as your High range? If you have different target range settings depending on time of day, please answer with the High setting at 12 p.m. in your time zone.

    Next

    If you have met your health insurance prescription deductible for the year, how much is your co-pay for one month’s supply of insulin?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    15 Comments

    1. Wanacure

      When younger, I used to see specialists in diabetes care. A primary care physician has been my main doctor for past 20 or 30 years. If I want a specialist (e.g., endocrinologist) I must get a referral from him. Or volunteer for medical research which usually pays a token amount but also can be VERY informative. I was prescribed a CGM without actually seeing a specialist in person in 2021. But next month in 2022 I’ll go over the two week printout from my CGM with an endocrinologist specializing in diabetes. She’s an excellent doctor, but very cynical (as revealed in a leaked email) about ability of diabetics to follow recommended regimens. I really can’t blame her, after having met some newly diagnosed diabetics who are in denial. They ignore Bernstein, ignore low carb diets, ignore insulin or dietary changes. On the other hand I’ve met in person TIDs and pre-diabetics who successfully are very conscientious.

      4 years ago Log in to Reply
      1. gary rind

        I will ignore Bernstein till the day I die! not going to live my life like that!

        6
        4 years ago Log in to Reply
    2. Joan McGinnis

      I see my endo every 6 mo and if insurance dictates being seen every 3 mo I see NP in between endo visits

      4 years ago Log in to Reply
    3. Kathleen Juzenas

      Twice with the doctor and once with the nurse practitioner. My next visit is Jan 3, 2022. The doctor and nurse alternate visits.

      4 years ago Log in to Reply
    4. Lawrence S.

      Medicare requires me to see a “doctor” every 90 days to pay for my insulin pump and durable medical equipment (DME) supplies. I see an Endo nurse every three months. All of my appointments were telemed in 2021.

      4 years ago Log in to Reply
    5. Mark Schweim

      I’ve been seeing my Endo every 6 months, but last time a scheduling conflict left me seeing hi CDENP assistant and based on that appointment, I think I’d rather continue dealing with her than with him. She also uses an Insulin Pump and seems much more willing to discuss possibly needed dosage adjustments than my Endo himself is willing to look into.

      3
      4 years ago Log in to Reply
    6. KSannie

      Medicare requires me to see my endo every 3 months or they will not pay for pump supplies. Otherwise I would only need to go every 6 months. This is a waste of health insurance money.

      6
      4 years ago Log in to Reply
    7. Todd Thedell

      I suppose since I am considered ¨Controlled¨, they leave me alone. I just looked and it was March 2020 since I last had a phone visit. No news is good news?

      4 years ago Log in to Reply
    8. TEH

      In addition to the 4 in person visits, I had to call 3 times an extra blood test to prove I was T1D to medicare.

      1
      4 years ago Log in to Reply
    9. Janis Senungetuk

      I saw her 3 times and had 1 appointment with the CDE. My endo is so overloaded with patients I’m now scheduled to alternate 90 day appointments between her and the Diabetes Educator.

      4 years ago Log in to Reply
    10. Carol Meares

      One was telehealth

      4 years ago Log in to Reply
    11. LizB

      Had to get a new endo this year due to insurance and I saw him in January, April & July. In July he recommended 6 months for the next appointment as I don’t really have any concerns that warrant a visit every 3 months. He sent me a lab order in October to do some follow up tests.

      4 years ago Log in to Reply
    12. Bea Anderson

      Medicare controls this. Once or twice a year would be fine.

      4 years ago Log in to Reply
    13. Molly Jones

      My Endo says to see me every 3 months, but they are booked to the brink and I have no major concerns that cannot be dealt with over messaging and time can be made if necessary. I see her about every 4 months, with this last year having only 2 appointments as 2020’s last appt was on Dec 28.

      4 years ago Log in to Reply
    14. Lenora Ventura

      Every 3 months for 36+ years

      4 years ago Log in to Reply

    How many times in 2021 did you have an appointment with your main T1D health care provider? Cancel reply

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