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    • 1 hour, 51 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 15 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 38 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 35 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?

    Home > LC Polls > If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    46 Comments

    1. LizB

      I have old pumps as a backup instead of long acting insulin.

      2
      3 years ago Log in to Reply
    2. Jordan Harshman

      I’m on MDI

      3 years ago Log in to Reply
    3. Lawrence S.

      No. I had long-acting backup insulin in my refrigerator for many years. I reordered backup insulin when my backup insulin expired. However, because of the cost of ordering backup insulin, I have decided to wait until I need it, and order it at that time. Otherwise, I could see if any of my old pumps still function, and use them for a short while.

      3 years ago Log in to Reply
    4. Franklin Rios

      I do not use an insuline pump.

      1
      3 years ago Log in to Reply
    5. Philip Clark

      I have both, an older model insulin pump and long acting insulin. I’ve used the back up pump before but not the insulin yet

      1
      3 years ago Log in to Reply
    6. Robin Melen

      I do have long-acting in my fridge, but wonder what happens when it expires… do I order more just in case?? Is it worth it?

      2
      3 years ago Log in to Reply
    7. lis be

      sounds like an expensive hobby

      2
      3 years ago Log in to Reply
    8. stillarobyn

      It is…definitely expired lol

      2
      3 years ago Log in to Reply
    9. Lindsey Whitnell

      Just got her on the pump a few months ago so long-acting hasn’t expired just yet. I’ll probably order more back-up long-acting insulin once the max out of pocket is met.

      3 years ago Log in to Reply
    10. Patricia Kilwein

      I do not have long acting insulin as a backup, I do however have Humalog and syringes just in case.

      3 years ago Log in to Reply
    11. Yerachmiel Altman

      Educator at Endo’s office gave me a lantus pen (and pen needles)) “just in case) last visit

      1
      3 years ago Log in to Reply
    12. Abigail Elias

      When I’ve had pump failures my endocrinologist has been ready to send an immediate Rx for long-acting insulin to my pharmacy.

      3 years ago Log in to Reply
    13. Mig Vascos

      Since I started
      On a pump 12 years ago I have always have unexpired lantus in my fridge.
      As it gets closer to expiration date I start giving it away to other people that may use it and order a new Bo’s of lantus pen. My doctor always make sure that I do that.
      When I travel I always bring it with me.

      3 years ago Log in to Reply
    14. JAZ-CO

      Currently I do have an unexpaired backup insulin. This is only because I remember to ask about it when I was at the doctor a couple of weeks. If you asked this a month ago the answer would be no.

      3 years ago Log in to Reply
    15. Lmiller

      I have a prescription for insulin I haven’t filled yet.

      3 years ago Log in to Reply
    16. Donna Condi

      My backup Lantus pen expired in 2020 as did my Humalog pen which I continue to use when I need a “belly shot”.—and it still works! I plan on requesting new backups when I visit my doctor in two weeks.

      3 years ago Log in to Reply
    17. Georgina Sokol

      If I need it, my doctor prescribes the pens immediately for me. Only happened once in 25 years.

      3 years ago Log in to Reply
    18. Janice Bohn

      Always have levemir in frig as backup. Never know when you have to be off pump – medical tests etc.

      3 years ago Log in to Reply
    19. kcatalino

      I do have a script for some that I can pick up if needed

      3 years ago Log in to Reply
    20. Henry Renn

      In the last 3 years, due to pump problems I’ve had 2x of needing to test bg every 4 hrs & take humalog for meal bolus & correction bolus. Inconvenient but not end of world. On call Endo did dosing calculations for me.

      3 years ago Log in to Reply
    21. AimmcG

      I try to keep it around but I never use it and it goes to waste. I was in Europe years ago and my pump broke two days before I was leaving. I couldn’t get a replacement before I left so for 48 hours I ate very little, pricked my fingers, and used the quick acting insulin. I now make sure I have long acting when I travel.

      3 years ago Log in to Reply
      1. KSannie

        You can also request a vacation pump to have as spare when traveling. If you do not use it, you return it unopened to the manufacturer. If you use it, they may need you to return the faulty pump to them. That is what I do for travel abroad.

        3 years ago Log in to Reply
    22. KSannie

      Insurance will not pay for backup lantus while using a pump (at least mine never would). And I have only once had a problem with a pump, which was not the actual pump, but the infusion set, and I always bring many spare infusion sets when traveling.

      3 years ago Log in to Reply
    23. Bob Durstenfeld

      Thank the Lord, in 20 plus years of pumping, have never needed long acting insulin as a replacement. I came close last year when my baggage was lost for 5 days on a trip to Madagascar.

      3 years ago Log in to Reply
    24. Janis Senungetuk

      No, my pen of backup long-acting insulin expired and since my insurance will no longer cover it, I didn’t get a replacement. I may ask for a new prescription at my next appointment in August.

      3 years ago Log in to Reply
    25. Thomas Brady

      1. When I travel, I order a “travel loaner” from Tandem for my X2. hey, it’s free! Only issue was at both Schiphol and Dublin they had a fit over the sealed Tandem box and insisted on opening it. I talked the Dutch out of it but the Irish insisted “either you do not board, you leave the box here for us to destroy or we open it. I came up with a solution, i.e you open the box but you sign on the box as opening it, the reason and your badge number. The agreed and Tandem was fine when I returned the opened box with an explanation letter and did not charge me.

      2. I also carry my older pre X2 pump fully charged, which still functions, as a back-up. This means exert strips, but it will give my basal so I do not have to deal with the hassle of long term insulin conversion and having it expire. My endo will give me a vial. but the backup pump iOS better since Medicare lives in an alternate reality where no spares are allowed and we are in a universe where everything goes 100% as it should.

      3. When I go through Paris, I go to a pharmacy and get a bottle of long duration insulin as a Rx is not required in France. It costs in the $20’s the last time I did it. CBP and TSA never care as my end’s letter covers a list of what I am prescribed to carry and what they cannot X-ray or scan. I carry so much for a month away in my backpack they are gold to get rid of me as they have to go through it all.

      4. When all else fails, I can go the 4 hour shot routine with Humalog and finger sticks if I have to.

      1
      3 years ago Log in to Reply
    26. Kim Davis

      No, my endocrinologist never prescribed it. In an emergency situation, I could use a new Lantus & new pen cap from my husband. He is a type 2 diabetic of 25 years& we go to same clinic, but, different MD. I am calling my endocrinologist now!

      3 years ago Log in to Reply
    27. Yaffa Steubinger

      You forgot the ‘I don’t use a pump’ response which would be mine.

      3 years ago Log in to Reply
    28. HMW

      Yes, but only because my pump failed in the middle of the night this past weekend and I had to have my endocrinologist paged on-call for a prescription.

      3 years ago Log in to Reply
    29. William Bennett

      I mean, I *think* it’s unexpired….

      2
      3 years ago Log in to Reply
    30. KCR

      I will put getting a new RX for basal insulin on my list for my next appointment. 😊

      1
      3 years ago Log in to Reply
    31. ConnieT1D62

      Yes. My endo provider gives me extra sample supplies of both short and long acting pens to use when off pump.

      3 years ago Log in to Reply
    32. Milly Bassett

      I do not use an insulin pump.

      3 years ago Log in to Reply
    33. Jneticdiabetic

      I do not have a long-acting insulin prescription. If my pump fails or my supply order is delayed, I cover with multiple daily injections of my normal Humalog fast acting insulin every few hours. A real pain overnight.

      3 years ago Log in to Reply
    34. GiGi

      I have long acting that is expired, but I also have two backup pumps!

      3 years ago Log in to Reply
    35. Joan Fray

      I don’t use long acting insulin. I do have 5 bottles of Humalog insulin in the fridge.

      3 years ago Log in to Reply
    36. Patricia Maddix

      I answered a definite, yes. I would be terrified not to have it on hand. I have had a pump stop working on at least three occasions, and had to switch to MDI for a day or two until my replacement pump could arrive. This has never happened while traveling, but I also take my back up supplies while traveling. I feel the same way about always having glucagon on hand.

      3 years ago Log in to Reply
    37. Jenny Richardson

      MDI for 39 yrs. No pump for me.

      3 years ago Log in to Reply
    38. Steven Gill

      Not using a pump but using Novalog pens expired last year.

      3 years ago Log in to Reply
    39. George Lovelace

      No, Pump only for 25 years, early in Pumping 20+ years ago I did use long-acting insulin but none in the 20+ years since

      3 years ago Log in to Reply
    40. mbulzomi@optonline.net

      It’s not easy to convert your insulin intake if you don’t use long-Acting Insulin. However, I believe you add up all your Basel numbers and add 20%. That should cover the Long-Acting dose.
      But I would just continue using my NovoLog U100 and a syringe.
      This is not a long-term condition and dose after testing.

      3 years ago Log in to Reply
    41. Bonnie Lundblom

      No but I’ll be asking for sample or Rx for one when I see my endocrinologist in August and the thought of having only Novolog to control my blood sugar is scary! I had one in the refrigerator which now is expired but if I had to I’d try it.

      3 years ago Log in to Reply
    42. T1D4LongTime

      I have an expired long-acting pen. Since we don’t travel at all anymore and I’m very seldom out of town due to caregiving, I’ve not seen the need for the long-acting insulin (never had it for 20+ years). My endo is here in town, so if my pump failed and I couldn’t get a replacement in 24 hours, my endo could call in long-acting.

      3 years ago Log in to Reply
    43. PamK

      I have 3 expired pens in the fridge from the last time I asked my endo about having some long-acting insulin on hand. I decided that the cost just isn’t worth it. If there comes a time when i need some long-acting, I can call my endo and have a script sent in.

      Back when I was on MDI, I ran out of my long-acting and just used my short-acting insulin for 24 hours. I took a small dose before I went to bed. Then got up @ midnight to check my blood sugar and took another small dose. One more small dose at @ 3 am got me through the night with no problems. So, I know that I could do this again, if needed.

      3 years ago Log in to Reply
    44. Savanna Vance

      I have lantus in case of pump malfunction, but it expired. As long as it’s not cloudy, I’ll use it.

      3 years ago Log in to Reply
    45. C B

      I take pump breaks often so I always have long acting on hand

      2 years ago Log in to Reply

    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home? Cancel reply

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