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    • 14 hours, 53 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 55 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 5 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 57 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 58 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 2 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 48 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration?

    Home > LC Polls > If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. LizB

      I have never called for replacement infusion sets because I get 4 boxes every 90 days and have enough for when a site is not good. I also have very good luck with the Medtronic Guardian sensors and don’t often need a replacement. When I do, I can request it online and it’s very fast & easy. It can take several weeks before the replacement arrives but since I get 3 boxes/15 sensors every 90 days I have built up a supply of extras so I can wait.

      4 years ago Log in to Reply
    2. Ahh Life

      (~‾⌣‾)~ A rare, but gladly willingly acceptable, success story in the myriad maze and miasma of the multiple moving parts of the American medical system. This part actually works.

      The vendors, insurance, the medical establishment: they all seem to replace sensors reliably and responsibly. Or am I overlooking some obtuse vendor or bureaucrat here?

      4 years ago Log in to Reply
    3. mbulzomi@optonline.net

      Tandem and Dexcom have good replacement sites. Simple and Fast.

      1
      4 years ago Log in to Reply
      1. AnitaS

        I totally agree

        4 years ago Log in to Reply
    4. Sherolyn Newell

      I haven’t used the web sites for replacement, I always call. Omnipod is great. Dexcom, I will give a good. They replace sensors reliably, but last time I called, they asked lots of questions. I thought it would be a five-minute call, it was closer to 15.

      2
      4 years ago Log in to Reply
    5. Nevin Bowman

      I am satisfied, but I would rather they went the full duration and I didn’t have to deal with those issues. I have more issues getting supplies reordered than I do when they fail.

      1
      4 years ago Log in to Reply
    6. Mike S

      Wish Omnipod had a replacement site vs. having to call (which generally takes about 20 mins) Dexcom sensors I don’t worry about since I have a bit of a cushion with them, but they were good with replacing the transmitter the one time it failed early. (though that was a couple years ago, in the before times)

      4 years ago Log in to Reply
    7. Lawrence S.

      My biggest problem over the years has been with sensors and transmitters. Sometimes I get confused whether to go to Dexcom or Tandem for replacements, and am still not sure. I sometimes get into one company transferring me to the other. Once, both companies transferred me to the other. The other issue is the length of time it takes. It seems that the questions go on and on for lengthy periods. I keep myself very busy and don’t have time for long phone calls (especially when my cell phone drops calls mid-phone call, and I have to start all over). I never tried to replace supplies online. I’ll have to try it sometime.

      4 years ago Log in to Reply
    8. John Williamson

      For my dexcom very satisfied with U S Med. With infusion sets for my Tandem t slim VERY DISSATISFIED!

      4 years ago Log in to Reply
    9. Kim Rehtus

      I have occasionally needed replacement sensors for my Dexcom but have had others on hand that I could use while I waited for the replacement. The BIG issue was when my transmitter died 6 weeks early and I had to order a replacement. It took repeated phone calls, I had to ask to get expedited shipping, and I was without a CGM for almost a week. Since I wear my CGM 24/7, this was a very frustrating experience. I was very surprised by the lack of urgency from customer support!

      4 years ago Log in to Reply
    10. KCR

      Dexcom’s online form to report sensor problems makes it very easy!

      1
      4 years ago Log in to Reply
    11. Hieromonk Alexis

      Dexcom is always very responsive whenever a sensor needs replacement for whatever reason because they don’t deal with Medicare — they simply send a replacement free of charge, while the suppliers go strictly by the expiration dates and all the paperwork that Medicare requires.

      2
      4 years ago Log in to Reply
    12. Tom Caesar

      Deacom replacements are quick and easy, great customer support

      2
      4 years ago Log in to Reply
      1. Sue Martin

        I have found that too. DexCom has good customer service and has replaced a couple of sensors and a transmitter that stopped working.

        4 years ago Log in to Reply
    13. Hope Severa

      Abbott was not helpful at all in replacing freestyle libre monitors that didn’t last their stated duration.

      1
      4 years ago Log in to Reply
    14. TEH

      Ordering replacement sensors is easy on Medtronic’s Diabetes store. Open the app on the computer, click replacement, click where it was positioned and provide lot number. I usually get the replacement(s) in a week. Now about the need for replacements, at one point I was having a sensor fail one per box of 5. Thats 20%.
      Lately it has been like 1 per 2 or 3 boxes.

      4 years ago Log in to Reply
    15. Ken Raiche

      Admittedly I’m truly impressed with both Tandem and dexcom to resolve issues in a manner that’s somewhat stress free. The key to these positive experiences is two fold, be properly prepared with backup and provide as much information as possible.

      1
      4 years ago Log in to Reply
    16. Liz Avery

      I have issues with Medtronic sensors. Blood at site, and complete fails, Medtronic has throttled their on-line replacements to 3 for 90 days. This makes me dissatisfied as their product quality sucks. I answered “a little dissatisfied”

      2
      4 years ago Log in to Reply
    17. connie ker

      I got exhausted from calling the customer service at Abbott, so just change the sensor as needed from the supplies that come by mail from US Medical Supply.

      4 years ago Log in to Reply
    18. Bob Durstenfeld

      I would prefer to order directly from the manufacturer and have them fill the after-market role. I do not like having to order CGM and pump supplies from third parties that really do not understand living with diabetes and the fact that their late shipments are life threatening.

      2
      4 years ago Log in to Reply
    19. Trish Seidle

      I am using the Freestyle Libre 2 and the OmniPod DASH and although I usually have to specify that they need to send it priority, I have gotten them right away. However, when my Omnipod insurance claim was denied because of a mix up, they could not send me a couple of extras because I am on Medicare.

      4 years ago Log in to Reply
      1. Louise Robinson

        Medicare regulations are a nightmare for those of us just trying to stay healthy!

        1
        4 years ago Log in to Reply
    20. Louise Robinson

      I answered “Neither” because, although I have been very SATISFIED with Dexcom replacing any sensor if it hasn’t lasted the full ten days, I am extremely DISSATISFIED with my ability to obtain a sufficient number of insulin pump supplies (infusion sets and cartridges) to manage my diabetes properly. I have been Type 1 since 1976 and am on Medicare. Last June, I began to have site absorption issues on day 3 of each site and approached my endo in July to change my RX to 40 infusion sets and 40 cartridges each 90 days rather than the 30 of each I had been receiving. Over 6 months later, I still am only getting 30 of each and have prolonged each site beyond its efficiently controlling my glucose levels so that I do not run out. That has meant supplementing my pumped basal and bolus insulin with insulin administered on Day 3 via syringe to keep my glucose in range. The Day 3 absorption issue doesn’t happen with every site but it is not related to any specific site location. I have always used multiple body sites (thighs, abdomen, hip/butt) and rotated them to avoid the development of scar tissue but 46 years with diabetes takes it’s toll. My endo’s case notes of 2 office visits haven’t been sufficient to obtain Medicare approval. I am in the process of changing endo in the hope of finding a practice with more expertise in dealing with Medicare. It’s very frustrating being held hostage by Medicare bureaucrats and bean-counters. I’m only trying to stay “healthy”.

      1
      4 years ago Log in to Reply
    21. Edward Geary

      Very satisfied, as of late, it took changing DME providers. Previously, vendors would routinely delay renewing authorization until the last minute resulting in my running out of supplies. Very frustrating and unnecessary and relative to CGM supplies potentially dangerous and patently reckless.

      1
      4 years ago Log in to Reply
    22. Natalie Daley

      This is a complex question that asks two things that may not have the same answer. Ordering CGM replacement supplies from the. Insurance-required distributor is automated, but wasn’t easy to set up. I had to have a sensor replaced twice because they got knocked off. The company took care of both fails immediately. Skin-tac does a good job of adherence, but the Libre 2 sensors can only be placed in a limited area in the back of the upper arm. This is un comfortable to sleep in and often in the way.

      4 years ago Log in to Reply
    23. Amanda Barras

      That’s a mixed bag!
      Medtronic – Very Satisfied
      Byram – Satisfied
      Edgepark – Very Dissatisfied

      1
      4 years ago Log in to Reply
    24. cynthia jaworski

      It rarely happens with my libe, unless I ram my shoulder into a doorway. Replacement has always been quick and pleasant

      4 years ago Log in to Reply
    25. George Lovelace

      Can’t remember the last Dexcom Sensor, sometime between 2009 and now but more than 2 years ago. To those having issues with Medicare, it’s probably the DME supplier (Edgypark or other)

      4 years ago Log in to Reply
    26. M C

      Reading the comments… I had no idea I could get the sensors that fall off prematurely replaced! I recently had one that had the craziest readings, and after 5 days of hoping it would fix itself, gave up and took it off. When I called Freestyle Libre they said they’d send a replacement and that I needed to send them back all parts of the packaging (sensor, cartridge, etc.). The replacement came fairly quickly, but the return envelope didn’t arrive until over 3 weeks later – Packaged the few parts I had kept to send back, only to receive that same day a nagging email message to send back the items. If they’d sent the return envelope with the new sensor, they would have had it 3 weeks ago. Just annoying to be nagged unnecessarily!
      Medtronic, over the years, has been good about replacing items, the few times it has been necessary, without the complications of ‘returning all parts’.

      4 years ago Log in to Reply
    27. Mary Halverson

      Dexcom Reps. are always helpful and fast.

      4 years ago Log in to Reply
    28. Janis Senungetuk

      Calling Dexcom to replace a transmitter that quit two weeks early resulted in a long phone call, answering many questions and eventually being told that there would be no replacement. Over the past year I’ve called both Tandem tech support and Dexcom for sensor replacement. Tandem support has been a better experience with Dexcom really depending on the knowledge of the tech answering my call.

      1
      4 years ago Log in to Reply
      1. Tracy Jean

        I have found the same. After arguing with a few bad reps, I now know to hang up and speak with someone else.

        4 years ago Log in to Reply
    29. Henry Renn

      In last year CCS has repeatedly confused reorder dates for G6 Sensors & reorder dates for Tandem infusion sets. They apply Medicare rules to the wrong dates. Creates hell for me. Even though I keep enclosed paperwork from all supplies received it has done little good until recently. Before that it didn’t seem that Type of supply, dates of shipping & logic applied. My medical provider states that she hears complaints & frustrations of others using other mail order/online med supply providers.

      4 years ago Log in to Reply
      1. ConnieT1D62

        See of you can switch to Byram as your supplier. I “fired” CCS as my supplier after I had similar issues of disorganized and inconvenient incompetence with CCS. I have not had any negative issues with Byram delivering supplies on a Medicare schedule since I switched.

        1
        4 years ago Log in to Reply
    30. Larry Martin

      Medtronic is good but after 3 online requests you have to talk to someone and they will grant it, but sometimes the wait is hours. Also the online requests take 6 weeks to be receive whereas it you talk to a rep on the phone it is frequently next day if you live near a UPS warehouse where they store them.

      4 years ago Log in to Reply
    31. Sherrie Johnson

      I deal directly with Dexcom as CCS medical supply does not do replacements Dexcom always right on nice people and fast

      4 years ago Log in to Reply
    32. Carol Meares

      Although I have found companies to be mostly reasonable about replacing supplies, the wait times on phone calls to initiate replacement can be extremely time consuming.

      1
      4 years ago Log in to Reply
    33. Kim Murphy

      I am satisfied with getting replacements. I only wish I could get my regular supplies it has been since January that I have been trying to get my Dexcom and my omnipod pod. They cost me $2200 with insurance and it is a huge undertaking. I wish the companies still sold them directly they were a little cheaper and it was one phone call not hours and hours on the phone with one person after another taking two months to get them.

      4 years ago Log in to Reply
    34. Bonnie Lundblom

      Very satisfied with Dexcom, whenever I’ve called them with problems they’ve had me talk to the “tech” department who each and every time have ended up sending me a replacement sensor.

      1
      4 years ago Log in to Reply
    35. Wanacure

      I was supposed to get 3 replacement sensors from Dexcom, but only received 2. Still, I rate them good and Byram Healthcare excellent. I’m on cheapest KP Medicare Advantage plan so I think I must co-pay additional $30 to $50 per month for Dexcom 6 supplies. But it’s worth it.

      4 years ago Log in to Reply
    36. Cheryl Seibert

      Very satisfied. Dexcom Live Chat Support is FANTASTIC, so sensor replacement is quick and reliable. I seldom have issues with infusion sets or cartridges, so I’ve only experienced Tandem’s replacement process a couple of times over the past 2 years. Still it was not time-consuming nor frustrating.

      4 years ago Log in to Reply
    37. Nicholas Argento

      I don’t run into this w pump, because a failure for me has been rare, and a have a little extra on those. For Dexcom, I now use the online replacement if they don’t last and the need is not urgent, because I don’t have to wait on the call line. They should replace anything that does not last at least 90% of the advertised time, because otherwise the person is off the device, which is dangerous and irritating. I have rarely gotten problems if I go through the process, but the phone is time consuming. Important to understand that the supplier generally will not replace defective products, because that should be the manufacturer, because it is a product defect, and not the fault of the supplier (Edgepark, CCS, Walgreens, ETC)

      4 years ago Log in to Reply

    If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration? Cancel reply

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