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    • 14 hours, 54 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 57 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 58 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 58 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 6 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 2 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 2 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 4 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 50 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Wanacure

      I only use CGM and MDI (glargine & lispro). “High” alert of Dexcom is 130 mg/dL. My doctors want me to change it to 150.

      4 years ago Log in to Reply
    2. mbulzomi@optonline.net

      Day time settings with my Tandem X2 is 90-160mgdl. Nighttime 90-180mgdl.

      1
      4 years ago Log in to Reply
    3. HMW

      My alert is set to 250 because I use the Medtronic 770G in auto mode, which should bring me back to target range. If it doesn’t then I would need to take a correction bolus when I get an above 250 alert.

      1
      4 years ago Log in to Reply
    4. Ernie Richmann

      Although 200 is my high alert, my Tandem pump will give a correction before that point.

      2
      4 years ago Log in to Reply
    5. karolinamalecki7@gmail.com

      Day is 140. I used to have 140 for both, now that I’m closed loop, I know it’ll take care of it so I moved it to 180 at night. If I get that high at night I know something is wrong, possibly a bad site before it gets worse.

      3
      4 years ago Log in to Reply
      1. ELYSSE HELLER

        Thanks for your comment. I just started on Dexcom and am anxiously awaiting Insulet’s Omnipod 5 release to the general public. Might I ask what closed loop pump that you use?

        4 years ago Log in to Reply
    6. Lawrence S.

      I’ve been set for a high alert of 180 for as long as I can remember.

      4 years ago Log in to Reply
    7. Jane Cerullo

      To me a number of 150 is high and I would get up and correct.

      1
      4 years ago Log in to Reply
    8. Karington Johnston

      I prefer to stay below 180, but I have my alert set at 200 so that it doesn’t wake me up at 181

      1
      4 years ago Log in to Reply
    9. Amy Jo

      I have my high alert off, but if I did have it, would be set at 160. I find the “rising quickly” alarms more useful and less annoying. Can definitely get “alert fatigue” if every alert available on the G6 is on.

      2
      4 years ago Log in to Reply
    10. Kristine Warmecke

      I had it at 180 however my endocrinologist and educator made me up it to 200. Some how I am in TIR greater than before without the ‘high’s’. I suppose they were correct. lol

      4 years ago Log in to Reply
      1. AnitaS

        Wow, I have no idea why that would work.

        4 years ago Log in to Reply
    11. AnitaS

      I use 150. Even though though I don’t actually want to get that high, it is not the end of the world. I can then decide if I need a correction, depending on insulin-on-board, or if I am ready to exercise or not.

      1
      4 years ago Log in to Reply
    12. Russell Buckbee

      I use 190 so. I can catch it before 200. However, I know that that my Dexcom G6 will begin to add a little before that. I can’t understand why I have to get an alert and add more. The system could do that or not as my CGM reports the BG level.

      4 years ago Log in to Reply
    13. LizB

      I have mine set at 160 so I can hopefully catch it before it hits the standard 180. I used to have it set for 140 but moved it to decrease any alarms. I don’t run high often so 160 is fine.

      4 years ago Log in to Reply
    14. Tod Herman

      While not recommended, I turn off ALL the alarms I can. I find I check my CGM readings very regularly, especially after I have eaten or had to guesstimate the carbs in some meal I didn’t cook. My CGM and pump both have way too many alarms and they go off constantly. It’s embarrassing and annoying for me when I am with others.

      1
      4 years ago Log in to Reply
    15. Hieromonk Alexis

      I keep a close watch over my readings, so I don’t really need an alarm to tell me that i’m going into the 200 range. I actually have mine set at 300 just to be on the safe side, but like Tod, I find them to be annoying and embarrassing, since they keep going even if measures have been taken. The situation is different with the low alarm, which is a life saver, especially at night.

      1
      4 years ago Log in to Reply
    16. Mig Vascos

      Usually at 180, but sometimes i set it for 160 to make sure i catch any rising blood sugars ahead of time.
      If it’s already high and I’ve treated I might move it to 200 hundreds as to avoid the annoing alarms.

      4 years ago Log in to Reply
    17. Lisa Miller

      My high glucose level is set at 130

      4 years ago Log in to Reply
    18. Lucia Maya

      I keep mine set to 150 all the time, but it’s only set as a “vibrate” setting on my pump so it’s not as loud, but I notice it! I almost always will do a correction if I’m at 150, and prefer to not get that high even.
      I use the sleep setting on my Tandem CIQ, and do manual correction boluses. More work but better numbers, and after 46 years with T1d, that feels worth it.

      1
      4 years ago Log in to Reply
    19. Juha Kankaanpaa

      I have my high alarm at 117

      4 years ago Log in to Reply
    20. JuJuB

      My daytime high is 120. If I could set it to 100 I would, but my understanding is that the FDA will not allow that (which makes me all kinds of mad). Nighttime is set to 150.

      4 years ago Log in to Reply
    21. Molly Jones

      I use control IQ with tandem and dexcom, so I assume my high alert is 180 all day.

      4 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone. Cancel reply

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