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    • 1 hour, 28 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!

    Home > LC Polls > If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!
    Previous

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    Do you ever purchase candy labeled “sugar-free”?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Gerald Oefelein

      I share my data with my diabetologist but he does not check it outside of office visits.

      4 years ago Log in to Reply
    2. Kevin McCue

      Although I share with my doc I do not believe they review the data until appointments

      1
      4 years ago Log in to Reply
    3. Lawrence S.

      I do not share “real-time” CGM date with anyone. My Endo gets the info for my appointments after I have downloaded the data onto TConnect.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    4. Jim Cobbe

      Plus my niece (only relative who lives close by) and a friend who is a trusted neighbor, both since my wife died.

      4 years ago Log in to Reply
    5. Laurel M

      I share it to the Sugarmate app. I find it gives me better trend alerts than Dexcom.

      4 years ago Log in to Reply
    6. Ernie Richmann

      Nobody I know wants my cgm data.

      4 years ago Log in to Reply
    7. Ahh Life

      Endocrinologist only. Or mostly.

      Except I may occasionally print out fancy colorful graphs & pie charts to educate other physicians such as the GP.

      4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I follow my children and my dad but no one follows me. I do not follow my 16 yr old consistently though, only at school.

      4 years ago Log in to Reply
    9. persevereT1D52

      At 68 long term T1 52yrs I live alone. Even though my daughter is across the country from me it gives her and I peace of mind. If I don’t respond she can call for help.

      1
      4 years ago Log in to Reply
    10. LizB

      Some years ago my istser asked me if she would be able to see my CGM data but at the time it wasn’t possible (Medtronic). Now I would be able to share with her but I don’t because I know she wouldn’t share her Dexcom data with me if I asked. It’s probably for the best as she likes to run high (afraid of lows) and I like to run lower. We’d probably just make each other anxious looking at the other’s numbers.

      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Getting a CGM soon. But find out my phone isn’t compatible, which means no sharing. Dang! So, I have to decide to purchase a new phone at some point.

      1
      4 years ago Log in to Reply
      1. Kathy Morison

        I came across the same problem but didnt consider buying a new phone… too expensive a venture. With the Freestyle Libre 2 system, you just get the reader that goes along with the the sensors you’re buying.

        4 years ago Log in to Reply
      2. AnitaS

        You can get the receiver from dexcom also if you don’t have a phone to receive the data.

        4 years ago Log in to Reply
    12. Russell Buckbee

      I haven’t found anyone who wants my data. They may care but don’t want to wade thru all of it. Not even my Dr. wants all of that. They want just their down load at the office.

      2
      4 years ago Log in to Reply
    13. Kathy Morison

      I share my CGM results verbally with my husband and my daughters, but I don’t share real time data/monitering with anybody else

      4 years ago Log in to Reply
    14. Sue Martin

      My doctor does have access to the data and we discuss it during appointments. I don’t think they follow me in real time.

      4 years ago Log in to Reply
    15. Missy Kirchem

      I share it with my Fitbit watch so I can see it easier.

      4 years ago Log in to Reply
    16. Gustavo Avitabile

      I upload my data to Nightscout, and anybody can visit my site and see it in real time. My wife, children, and occasionally other people, do.

      4 years ago Log in to Reply
    17. George Lovelace

      My Endo because no one else would really understand it the way she does. She’s very pleased with the Numbers and so am I, they’re the Best since 1963

      4 years ago Log in to Reply
    18. Molly Jones

      Currently my husband and my Endocrinologist. Previously with my neurologist for some completed research, but they still have access.

      4 years ago Log in to Reply
    19. PamK

      I share with my husband, and with my doctor’s office.

      4 years ago Log in to Reply
    20. AnitaS

      I answered that I don’t share my real time data. The only time anyone other than me sees my data is when I am at my endocrinology appointments.

      4 years ago Log in to Reply

    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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