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    • 7 hours, 28 minutes ago
      ChrisW likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      Still twice a year. It carries much less weight than time in range and the GMI.
    • 18 hours, 36 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 19 hours, 16 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 17 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 18 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 19 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 14 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 18 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 15 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 18 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 4 days, 7 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 4 days, 7 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 15 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 18 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
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    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!

    Home > LC Polls > If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!
    Previous

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    Do you ever purchase candy labeled “sugar-free”?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Gerald Oefelein

      I share my data with my diabetologist but he does not check it outside of office visits.

      4 years ago Log in to Reply
    2. Kevin McCue

      Although I share with my doc I do not believe they review the data until appointments

      1
      4 years ago Log in to Reply
    3. Lawrence S.

      I do not share “real-time” CGM date with anyone. My Endo gets the info for my appointments after I have downloaded the data onto TConnect.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    4. Jim Cobbe

      Plus my niece (only relative who lives close by) and a friend who is a trusted neighbor, both since my wife died.

      4 years ago Log in to Reply
    5. Laurel M

      I share it to the Sugarmate app. I find it gives me better trend alerts than Dexcom.

      4 years ago Log in to Reply
    6. Ernie Richmann

      Nobody I know wants my cgm data.

      4 years ago Log in to Reply
    7. Ahh Life

      Endocrinologist only. Or mostly.

      Except I may occasionally print out fancy colorful graphs & pie charts to educate other physicians such as the GP.

      4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I follow my children and my dad but no one follows me. I do not follow my 16 yr old consistently though, only at school.

      4 years ago Log in to Reply
    9. persevereT1D52

      At 68 long term T1 52yrs I live alone. Even though my daughter is across the country from me it gives her and I peace of mind. If I don’t respond she can call for help.

      1
      4 years ago Log in to Reply
    10. LizB

      Some years ago my istser asked me if she would be able to see my CGM data but at the time it wasn’t possible (Medtronic). Now I would be able to share with her but I don’t because I know she wouldn’t share her Dexcom data with me if I asked. It’s probably for the best as she likes to run high (afraid of lows) and I like to run lower. We’d probably just make each other anxious looking at the other’s numbers.

      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Getting a CGM soon. But find out my phone isn’t compatible, which means no sharing. Dang! So, I have to decide to purchase a new phone at some point.

      1
      4 years ago Log in to Reply
      1. Kathy Morison

        I came across the same problem but didnt consider buying a new phone… too expensive a venture. With the Freestyle Libre 2 system, you just get the reader that goes along with the the sensors you’re buying.

        4 years ago Log in to Reply
      2. AnitaS

        You can get the receiver from dexcom also if you don’t have a phone to receive the data.

        4 years ago Log in to Reply
    12. Russell Buckbee

      I haven’t found anyone who wants my data. They may care but don’t want to wade thru all of it. Not even my Dr. wants all of that. They want just their down load at the office.

      2
      4 years ago Log in to Reply
    13. Kathy Morison

      I share my CGM results verbally with my husband and my daughters, but I don’t share real time data/monitering with anybody else

      4 years ago Log in to Reply
    14. Sue Martin

      My doctor does have access to the data and we discuss it during appointments. I don’t think they follow me in real time.

      4 years ago Log in to Reply
    15. Missy Kirchem

      I share it with my Fitbit watch so I can see it easier.

      4 years ago Log in to Reply
    16. Gustavo Avitabile

      I upload my data to Nightscout, and anybody can visit my site and see it in real time. My wife, children, and occasionally other people, do.

      4 years ago Log in to Reply
    17. George Lovelace

      My Endo because no one else would really understand it the way she does. She’s very pleased with the Numbers and so am I, they’re the Best since 1963

      4 years ago Log in to Reply
    18. Molly Jones

      Currently my husband and my Endocrinologist. Previously with my neurologist for some completed research, but they still have access.

      4 years ago Log in to Reply
    19. PamK

      I share with my husband, and with my doctor’s office.

      4 years ago Log in to Reply
    20. AnitaS

      I answered that I don’t share my real time data. The only time anyone other than me sees my data is when I am at my endocrinology appointments.

      4 years ago Log in to Reply

    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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