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    • 16 hours, 4 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 16 hours, 4 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 16 hours, 7 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 18 hours, 11 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 18 hours, 11 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 18 hours, 53 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 19 hours, 56 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 19 hours, 57 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 21 hours, 36 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 21 hours, 37 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 17 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!

    Home > LC Polls > If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!
    Previous

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    Do you ever purchase candy labeled “sugar-free”?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Gerald Oefelein

      I share my data with my diabetologist but he does not check it outside of office visits.

      4 years ago Log in to Reply
    2. Kevin McCue

      Although I share with my doc I do not believe they review the data until appointments

      1
      4 years ago Log in to Reply
    3. Lawrence S.

      I do not share “real-time” CGM date with anyone. My Endo gets the info for my appointments after I have downloaded the data onto TConnect.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    4. Jim Cobbe

      Plus my niece (only relative who lives close by) and a friend who is a trusted neighbor, both since my wife died.

      4 years ago Log in to Reply
    5. Laurel M

      I share it to the Sugarmate app. I find it gives me better trend alerts than Dexcom.

      4 years ago Log in to Reply
    6. Ernie Richmann

      Nobody I know wants my cgm data.

      4 years ago Log in to Reply
    7. Ahh Life

      Endocrinologist only. Or mostly.

      Except I may occasionally print out fancy colorful graphs & pie charts to educate other physicians such as the GP.

      4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I follow my children and my dad but no one follows me. I do not follow my 16 yr old consistently though, only at school.

      4 years ago Log in to Reply
    9. persevereT1D52

      At 68 long term T1 52yrs I live alone. Even though my daughter is across the country from me it gives her and I peace of mind. If I don’t respond she can call for help.

      1
      4 years ago Log in to Reply
    10. LizB

      Some years ago my istser asked me if she would be able to see my CGM data but at the time it wasn’t possible (Medtronic). Now I would be able to share with her but I don’t because I know she wouldn’t share her Dexcom data with me if I asked. It’s probably for the best as she likes to run high (afraid of lows) and I like to run lower. We’d probably just make each other anxious looking at the other’s numbers.

      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Getting a CGM soon. But find out my phone isn’t compatible, which means no sharing. Dang! So, I have to decide to purchase a new phone at some point.

      1
      4 years ago Log in to Reply
      1. Kathy Morison

        I came across the same problem but didnt consider buying a new phone… too expensive a venture. With the Freestyle Libre 2 system, you just get the reader that goes along with the the sensors you’re buying.

        4 years ago Log in to Reply
      2. AnitaS

        You can get the receiver from dexcom also if you don’t have a phone to receive the data.

        4 years ago Log in to Reply
    12. Russell Buckbee

      I haven’t found anyone who wants my data. They may care but don’t want to wade thru all of it. Not even my Dr. wants all of that. They want just their down load at the office.

      2
      4 years ago Log in to Reply
    13. Kathy Morison

      I share my CGM results verbally with my husband and my daughters, but I don’t share real time data/monitering with anybody else

      4 years ago Log in to Reply
    14. Sue Martin

      My doctor does have access to the data and we discuss it during appointments. I don’t think they follow me in real time.

      4 years ago Log in to Reply
    15. Missy Kirchem

      I share it with my Fitbit watch so I can see it easier.

      4 years ago Log in to Reply
    16. Gustavo Avitabile

      I upload my data to Nightscout, and anybody can visit my site and see it in real time. My wife, children, and occasionally other people, do.

      4 years ago Log in to Reply
    17. George Lovelace

      My Endo because no one else would really understand it the way she does. She’s very pleased with the Numbers and so am I, they’re the Best since 1963

      4 years ago Log in to Reply
    18. Molly Jones

      Currently my husband and my Endocrinologist. Previously with my neurologist for some completed research, but they still have access.

      4 years ago Log in to Reply
    19. PamK

      I share with my husband, and with my doctor’s office.

      4 years ago Log in to Reply
    20. AnitaS

      I answered that I don’t share my real time data. The only time anyone other than me sees my data is when I am at my endocrinology appointments.

      4 years ago Log in to Reply

    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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