Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 26 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 26 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 41 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 42 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 3 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 12 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 12 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 9 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
      • Leadership
      • Committees
      • Clinics
      • Portal
      • HEAL
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
    • Join / Login
    • Donate

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?

    Home > LC Polls > If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?
    Previous

    Do you currently use any of the following CGM systems?

    Next

    If you use a CGM, do you ever experience ā€œcompression lowsā€? These are inaccurate CGM readings that occur when there is pressure placed on the CGM transmitter and sensor. They typically look like a sudden and drastic drop on a CGM graph, and often occur when a person is lying on their sensor.

    Sarah Howard

    Related Stories

    Medications

    Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes 

    Ginger Vieira, 2 days ago 15 min read  
    Questions of the Day

    Do You Ever Change Your Lancet? 

    Samantha Robinson, 2 days ago 4 min read  
    Devices & Technology

    Tidepool Loop FDA Clearance: Chatting with CEO Howard Look 

    Ginger Vieira, 4 days ago 7 min read  
    Insulin

    Mark Cuban’s Cost Plus Drugs Tests New Insulin Program 

    Ginger Vieira, 2 weeks ago 4 min read  
    Devices & Technology

    Connected Insulin Delivery Devices 

    Hope Warshaw, 2 weeks ago 7 min read  
    Devices & Technology

    Automated Insulin Delivery Systems 

    Hope Warshaw, 2 weeks ago 11 min read  

    29 Comments

    1. Ahh Life

      I have always believed in getting a head start on everything. I went to the starting blocks in 1951 at age 4 and have been racing ever since. Uhh . . . when do I get a break in this race?

      8
      6 months ago Log in to Reply
      1. Amanda Barras

        Same, I had just barely turned 4. It’s easier now, but no break in sight. 😢

        2
        6 months ago Log in to Reply
    2. Mary Dexter

      https://diabetesjournals.org/care/article/44/11/2449/138477/Adult-Onset-Type-1-Diabetes-Current-Understanding

      1
      6 months ago Log in to Reply
      1. Wanacure

        Wow. Thank you, Mary! This is really an interesting article. As it points out there is insufficient research on South American and African inhabitants. And there are so many different indigenous and ethnic groups and clans on those two continents! I suspect there are as many types and causes of diabetes mellitus as there are types and causes of cancer, another autoimmune disease. In both diseases there are some behaviors that can increase risks and behaviors that may decrease risks. And sometimes behavior makes no difference, because of environmental exposures and/or genetics. Should people reading this have picked different great great grandparents? Or just different grandparents? Could our mothers have picked different zip codes to give birth to us to avoid certain detrimental environmental effects?

        6 months ago Log in to Reply
      2. Mary Dexter

        I was 48, initially misdiagnosed as T2. For those unwilling to read the article, it says that after nations around the world crunched their data, they discovered that the majority (over 60%) of people newly diagnosed with autoimmune diabetes (T1 and LADA) were adults, not children and that 40% had been initially misdiagnosed.
        10 years ago when I wrote The Sweet Lowdown for Diabetes Hands, the research I was reading said nearly 50% and 20%, respectively. As those misdiagnosed are correctly diagnosed, the percentages have shifted.
        The other thing I learned from producing Sweet Lowdown, is how vehemently people will fight against any disturbance in their misperceptions. One lady said after a performance, “I learned a lot of things I didn’t want to know. ” Segments of the show are on YouTube under my name.

        6 months ago Log in to Reply
    3. Amanda Barras

      I had just barely turned 4.

      6 months ago Log in to Reply
    4. Kathy Morison

      Age wise I was 20 years old but it was considered a juvenile onset diagnosis.

      6 months ago Log in to Reply
    5. Louise Robinson

      I was in my late 20’s when diagnosed. In 2 weeks time, I went from weighing 120 lbs to 107 lbs and had the excessive thirst and frequent urination symptoms during that time. Because my Dad had been diagnosed in the early 1950’s, I grew up watching him try to manage his diabetes, test his urine and give himself insulin (the only medication available for diabetes back then was insulin-U40 Protomine Zinc/Beef-Pork derivative- and no differentiation was made between different “Types”.) Because Dad had always had literature about the warning signs of diabetes, when I discovered I had those symptoms and sought medical help, I wasn’t surprised by my diagnosis. I began using insulin in 1976 shortly after a GTT confirmed the diagnosis. Watching my Dad deal with his diabetes made it easier for me to accept my diagnosis. I am grateful I did not have to cope with my diabetes as a child. I am also thankful for the strides in technology and improved tools and knowledge we have to better manage our condition.

      1
      6 months ago Log in to Reply
    6. Joan Benedetto

      My son was diagnosed at 18mos of age.

      6 months ago Log in to Reply
    7. Lawrence S.

      Age 23

      6 months ago Log in to Reply
    8. mbulzomi@optonline.net

      I made it to my 23rd Birthday, two years out of the USN, that’s when the T1D Adventure began.

      6 months ago Log in to Reply
    9. CandyM

      I was diagnosed in 1970 at 23 months old. I have lived with T1D for 52 years. The change in what is available to help manage this disease over those years is amazing!

      5
      6 months ago Log in to Reply
    10. Mark Schweim

      Diagnosed September 1991 at 24 years young but based on how much time I was sick and weak that year I’m guessing I probably actually got it at least 6 months to a year before it was properly diagnosed.

      6 months ago Log in to Reply
    11. Kristine Warmecke

      I was 11 on Jan. 5, 1982 when my Mom finally took me to our GP, who confirmed I was T1D, we had known all of Christmas/New Year trip.
      My brother was diagnosed at 7 months old 1972.

      6 months ago Log in to Reply
    12. Lynn Smith

      In May of 1965, I had a severe case of the mumps. I was 10 years old at the time. That was when my body attacked my islet cells. It wasn’t until October of 1967, a week after I turned 12, that my T1D was finally diagnosed. Between the mumps and my diagnosis I just kept getting thinner and thinner, with more and more bouts of vomiting. So…I probably should have been diagnosed when I was in my eleventh year, but I had just turned 12 when I was hospitalized.

      6 months ago Log in to Reply
    13. Sue Martin

      But I would like to say I was diagnosed at 18, so I guess technically an adult. My doctor put me on oral meds but thought it odd since I was so young, not to be on insulin. I needed to take insulin about 9 months later.

      6 months ago Log in to Reply
    14. Sue Martin

      When I was 19 (diagnosed at 18) I was in Europe. There were some terrorist bombings in the city I was in. My dad told me if I was ever taken to tell them I had an incurable disease and maybe they would let me go or at least not mess with me too much.
      It seems there may be a cure in sight now.

      6 months ago Log in to Reply
    15. Douglas Holt

      I got type 1 diabetes for my tenth birthday!
      Diagnosis when I was 9 in the hospital that afternoon. Woke up in the hospital with a cup of beef broth and some adhesive tape with Happy Birthday scribbled on it in red ink.. My two year old sister was diagnosed a month later..

      6 months ago Log in to Reply
    16. Bob Durstenfeld

      My dad was Dx”ed at 18 months of age, I was Dx’ed at 18 months of age, my eldest of three sons was Dx’ed at 8 months of age and his eldest of two daughters was dx’ed at 18 months of age. Welcome to monogenic diabetes.

      1
      6 months ago Log in to Reply
    17. Nicholas Argento

      1968 was a bad year for the US and me but 54 years later I am thriving…

      6 months ago Log in to Reply
    18. Sasha Wooldridge

      2007, about a month before I turned 21. Then was mismanaged by my primary care doctor because they assumed I had T2 because I wasn’t a child. Finally got to see an endocrinologist after over a year on the waitlist and they straightened things out so I didn’t wish I was dead all the time. The constant swings in BG until then were horrible and a simple trip to the store would wear me out to the point I’d basically pass out when I got home. Shocking that even medical professionals don’t understand diabetes enough to know the difference between T1 and T2.

      6 months ago Log in to Reply
    19. Wanacure

      My elder cousin was diagnosed as T1D and I know it was before she was 17, and I think it was after she was 12. After measles, mumps and chickenpox I developed T1D at age 15. Three years later my younger brother was diagnosed at same age. He had measles, mumps and chicken pox at same times I did. We were both under emotional stress before developing TID. My younger cousin has never developed diabetes. The age difference between her and her T1D sister was at least 6 years. It might be interesting to compare our 4 DNA samples.

      6 months ago Log in to Reply
    20. Rose Lentzke

      Still living the life after 66 years withT1 as my best friend;)

      2
      6 months ago Log in to Reply
      1. Anna Kiff

        Lol on .. best friend. Never looked at it that way .. but sometimes my friendship with them .. can drive me bonky wonky. I’ve always wondered what not having T1D would be like. Do you ever wonder that too? Especially if diagnosed as in childhood like you and I obviously were. I help adults that get diagnosed and feel for them since it’s like their freedom has been snatched away ..and I totally get that (I also dabble in mental health which goes along side of any long term health condition).

        5 months ago Log in to Reply
    21. M C

      Diagnosed at 16 years, 5 months, back in mid-1970’s…. Would have probably been diagnosed sooner, but despite ‘knowing’ something was seriously ‘not right’, I didn’t dare share this with my parents, as I was signed up for a school trip over the March school break, and knew, if something was wrong they wouldn’t let me go….. The weird thinking of a teenager!!! When we got back from overseas, I was told that the level my BG had reached often causes people to go into a coma! Luckily, it didn’t, and I was home safe and sound – A day and a half after landing back home, I found myself in the hospital! First family member, for both parents’ sides of large families, to ever be diagnosed with Diabetes. And, save for my Dad, who at 81 developed T1D (never had been a T2D) after cancer treatments and the shock of losing my Mom, we’re the only two.

      1
      6 months ago Log in to Reply
    22. Michael Andrews

      I was 38, it was during the first few months of my first daughter’s life, and I had no idea what was going on with me until I realized I’d lost 35 lbs in 3 months. Went to the Dr.; my sugar was 300+, and I was on the verge of hospitalization (thankfully, it didn’t go that far). Six years and 2 sets of twins later (5 girls under 7), all is well, and life is good; it super stressful, but it’s still good!

      1
      6 months ago Log in to Reply
    23. C T

      1996. I had just turned 2 in December and was diagnosed in February. My grandparents spent the better part of a year bringing me to the pediatrician because I was repeatedly soaking my diaper and had gotten very thin and sickly. Was told over and over that it was “just a virus”. Was eventually rushed to Boston Children’s with a BG of over 900. I was there for a very long time.

      1
      6 months ago Log in to Reply
    24. PamK

      I was 2 1/2 years old.

      6 months ago Log in to Reply
    25. Cheryl Seibert

      I was diagnosed at age 6, about 18 months after I had German measles (the 14-day ones). I also had double-sided mumps just before the measles. My paternal grandmother had Type 2 and was on injections.

      5 months ago Log in to Reply

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed? Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    Ā© 2022 T1D Exchange.
    All Rights Reserved.

    Ā© 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    6 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Adult

    0 Stories Related

    Adults & T1D

    38 Stories Related

    Advocacy

    11 Stories Related

    ATTD

    10 Stories Related

    Blood Sugar

    2 Stories Related

    Blood sugar management

    29 Stories Related

    Challenges & Complications

    30 Stories Related

    Continuous Glucose Monitor

    6 Stories Related

    COVID-19

    18 Stories Related

    Devices & Technology

    29 Stories Related

    DiabeteSpeaks

    20 Stories Related

    EASD

    0 Stories Related

    En EspaƱol

    0 Stories Related

    Exercise

    3 Stories Related

    General Publications

    74 Stories Related

    Get Involved

    39 Stories Related

    Glu Guide

    9 Stories Related

    Glu Insights

    16 Stories Related

    Health Equity

    0 Stories Related

    Healthcare & Insurance

    11 Stories Related

    Hypoglycemia

    4 Stories Related

    In Depth

    1 Stories Related

    Inspiration & Advocacy

    24 Stories Related

    Insulin

    6 Stories Related

    Insulin & Meds

    0 Stories Related

    Insulins & Non-insulins

    11 Stories Related

    ISPAD

    0 Stories Related

    Journal of Diabetes

    21 Stories Related

    Learning Session

    0 Stories Related

    Medications

    2 Stories Related

    Meet the Expert

    9 Stories Related

    Mental Health

    9 Stories Related

    New & Newsworthy

    52 Stories Related

    News

    26 Stories Related

    Nutrition & Exercise

    4 Stories Related

    Other

    0 Stories Related

    Our team

    32 Stories Related

    Parenting & Families

    3 Stories Related

    Partner Content

    10 Stories Related

    Pediatric

    0 Stories Related

    Personal Stories

    16 Stories Related

    Press Release

    6 Stories Related

    Prevention

    11 Stories Related

    Questions of the Day

    18 Stories Related

    Research & Studies

    54 Stories Related

    Review

    0 Stories Related

    T1D Exchange & Glu

    16 Stories Related

    T1D Exchange News

    5 Stories Related

    Tech

    25 Stories Related

    Test Category

    0 Stories Related

    Therapies & Management

    0 Stories Related

    Type 1 Diabetes

    0 Stories Related

    Type 2 Diabetes

    0 Stories Related

    Uncategorized

    43 Stories Related

    You Told Glu

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category