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    • 3 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 3 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 3 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 4 hours, 44 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 4 hours, 54 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 4 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 4 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 4 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 4 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 5 hours, 16 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 37 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 46 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 5 hours, 46 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 46 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 46 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 5 hours, 46 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    If you have at least one diabetes-related complication, for how many years had you been living with T1D when you were diagnosed with the first complication?

    Home > LC Polls > If you have at least one diabetes-related complication, for how many years had you been living with T1D when you were diagnosed with the first complication?
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    Have you ever used expired glucose strips? If so, share in the comments whether you noticed any differences from unexpired strips.

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    How important is the standard deviation (SD) measurement to you? (SD is a measure of a person’s variation in glucose readings)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    21 Comments

    1. Stephen Woodward

      Hypothyroid, not exactly a complication.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      Rx’d in 1951. Proliferative diabetic retinopathy (PDR) in 1975. Proliferative diabetic neuropathy (PDN) in 2019, gastroparesis in 2020. Life’s been that Forrest Gump box of chocolates — you never know what you’re going to get. Life is good and modern technology gives you a much better chance of getting some really, really good chocolates, however. ≧◠ᴥ◠≦✊

      11
      2 years ago Log in to Reply
    3. Sahran Holiday

      Some retinopathy right eye treated with laser and left eye with drops. Right eye it’s not there, left eye barely there.

      2
      2 years ago Log in to Reply
    4. Mary Dexter

      Doctors avoid diagnosing complications because it causes their ratings to drop. Doctors and HMOs receive ratings based on patients A1C, number of cancer screenings, and number of patients with complications. So my shoulder may be frozen, my feet numb, but no diagnosis or even mention will appear in my medical records.

      2
      2 years ago Log in to Reply
    5. Mick Martin

      About 7 years after diagnosis I was informed that I’d developed diabetic retinopathy, which was ‘picked up’ at a routine examination to see my opthalmologist. I began receiving laser therapy just over one week later, and this has been ongoing now for more than 30 years.

      Within two years of that original diagnosis, I started feeling ‘stabbing sensations’ within both of my feet and lower legs. I reported this to my diabetes support team and they arranged for me to undergo testing to determine whether I’d developed peripheral neuropathy I had. For about the last 25 years I haven’t been able to feel my feet or lower legs.

      I’ve subsequently gone on to develop of other diabetes-related complications, such as autonomic neuropathy, and severe cataract formations which have resulted in me requiring to have my own lens removed, and replacement plastic lenses inserted.

      1
      2 years ago Log in to Reply
    6. connie ker

      It was so encouraging to see the graph of no complications being the highest percentage on the bar line. Happy 100th birthday to insulin this year!

      4
      2 years ago Log in to Reply
    7. GLORIA MILLER

      I marked N/A by mistake. I should have marked no complications to date after 64 years. I am a healthy individual who happens to have diabetes.

      6
      2 years ago Log in to Reply
    8. Daniel Bestvater

      I marked other. I have hypothyroidism and adhesive capsulitis of all of my large joints. The joint issues have been a bit of a problem, difficult to move the arms and legs some days. It is not RA and has been described as though cement has been poured in and around my joints. I have had several surgeries to loosen up the joints but this is only a temporary fix that lasts about 6 months. These are all autoimmune disorders, so technically not complications. I have had T1D for approximately 45 years.

      2 years ago Log in to Reply
    9. Shannon Barnaby

      31 years and no complications yet.

      1
      2 years ago Log in to Reply
    10. Natalie Daley

      Hashimoto’s Syndrome and early cataract replacements

      2 years ago Log in to Reply
    11. Jeanne McMillan-Olson

      I started getting hypersensitivity in my big toes when I was about 32 years old. I had had diabetes for about 23 years. I wasn’t diagnosed as most physicians didn’t know much about T1D or the complications. I have had T1D now for 66 years.

      1
      2 years ago Log in to Reply
    12. Andrew Stewart

      T1D for 31 years and no complications. I agree with and support Gloria Miller’s comment “I am a healthy individual who happens to have diabetes”.

      I did recently listen to the Juicebox Podcast episode #531, After Dark: Diabetes Complications and it scared the (insert your favorite swear word) out of me. I don’t think I’ll listen to the remaining 42 minutes as I got the point, complications are real and they’re devastating and we should always try our best to stay in range to prevent, delay, minimize them. The thing is perfection doesn’t exist, so don’t beat yourself up, stay positive and keep learning this crazy game of T1D.

      1
      2 years ago Log in to Reply
    13. Amanda Barras

      Hypothyroidism 13 years in
      hypertension 17 years in.

      2 years ago Log in to Reply
    14. Janis Senungetuk

      Dx T1D in 1955. Proliferative diabetic retinopathy in 1979.

      1
      2 years ago Log in to Reply
    15. Cheryl Seibert

      I was diagnosed with a diabetic ‘snowflake’ cataract this past year after 55 years of T1D. Cataracts also run in my family with both my mother and father requiring them to be removed (neither parent was diabetic). Not sure the cataract is diabetic-related but I did develop it 10 years sooner than my parents. Some of it could be genetic and environment (working in an extremely hot office resulting in my eyes drying out to the point of inflammation). A1C has always been below 7 although my BGs wildly rise and fall (brittle diabetic used to be the term).

      2 years ago Log in to Reply
    16. Karen Milton

      Had adhesive capsulitis (frozen shoulder) after 20 years, cataract surgery in both eyes after about 35 years, and coronary artery disease after 55 years.

      2 years ago Log in to Reply
    17. Nicholas Argento

      10-19, but that was in 1980, retinopathy and proteinuria (early kidney injury) present after 12 years – but that was prior to fingersticks. First A1c I ever had was around 10 in 1979 or so. Since early 1982, A1c’s have been averaging around 6.5, last 5 years 6.2. And the retinopathy (background, minimal not vision threatening) never progressed, and the protein in the urine went away.—————– Punchline- good BG control WORKS. It is work, but it works. It saves lives and preserves health.

      1
      2 years ago Log in to Reply
    18. Molly Jones

      After ten years I developed frozen shoulder, but it improved greatly then resolved after physical therapy. It was quite interesting to use your non dominant hand for things requiring dexterity. I didn’t think brushing my teeth would be so difficult at first.
      Two years after that I had my first DKA, most likely due to neurosurgery. ‘Just had a short hospital stay.
      I have had life long problems with digestion that I never saw a doctor for, but after being diagnosed with T1D it is now listed as gastroparesis due to T1D. ?!

      2 years ago Log in to Reply
    19. ConnieT1D62

      Had my first dilated eye exam in 1981 – almost 20 years after being diagnosed at age 9 and a life time of inaccurate urine testing and an inconsistent course of one or two shots of NPH or Lente insulin a day. I had background retinopathy that was edging toward being proliferative, and since I wanted to get pregnant, the endo team I was seeing advised me to get my eyes treated NOW (then) and work toward getting my BG stabilized using CHO counting, MDI and home BG monitoring. In 1981-82 had a series of lasers in both eyes, and was sent to The Diabetes Self-Care Program in NYC where I really learned to live with my diabetes by counting carbs, monitoring my BGs and doing my best to avoid rollercoaster episodes of hypo/hyperglycemia. It was the early days home glucose monitoring with an Ames glucometer. Up to that point I had no idea what my BG were doing.

      My eyes stabilized with the laser treatments in 1982 and have been quiet ever since with no further retinopathy. Eventually over the course of time, I developed frozen shoulder in my mid-30s, overt symptoms of peripheral neuropathy in my hands and feet in my mid-40s, and pronounced osteopenia leading to stress fractures and Charcot osteo-arthropathy changes in my feet in my early 50s.

      Nobody ever mentioned or talked about any of these subtle or progressive neuropathic changes in my hands and feet until they were quite advanced and had been mislabeled and misdiagnosed by several MDs that I consulted. Finally an astute orthopedic physician performed an MRI and determined that I had early stages of Charcot osteo-arthropathy in my R foot and I was able to receive appropriate treatment to keep it from progressing. His excuse for the months of misdiagnosis on behalf of his colleagues was, “We aren’t used to seeing it this early”, and he relayed that usually they see a Charcot foot that looks like a swollen football with collapsed boney deformities and open ulcers. That was not what my foot looked like – originally I was diagnosed with sprain/strain injury and tendonitis, and over a period of four months my foot was not healing the way it needed to heal. Long story short, once the problem was properly diagnosed for what it was, appropriate treatment and preventive care was initiated and my foot healed, albeit with some residual deformity. I now wear sensible shoes with custom inserts and my feet are healthy and functional.

      The comorbid conditions that can happen over a lifetime with T1D are insidious and progressive. They can occur at any time and are often missed or mistaken for something else. For example, it’s not about getting a gangrene infected toe or foot from a blister – more likely the ligaments and boney structure in the foot of a fairly active person (like a runner, or a mailman, or a nurse, an athlete, dancer, truck driver, etc) with advanced duration diabetes has sustained a stress fracture injury and because of neuropathy does not feel the warning sign pain signals and continues to walk, run, climb stairs, do whatever they do on a daily basis.

      We must all learn to pay attention to the subtle physical change warning signals in our bodies – and face the fact that we are vulnerable to challenging comorbid conditions (I hate using the word “complications” to refer to these conditions that can occur due to diabetes – I prefer to call them “comorbid challenges”).

      Face it PWDs – they happen. We all live in challenged bodies. It doesn’t make you less of a person or “a bad diabetic” to have retinopathy, or neuropathy, or progressive kidney changes, or Charcot feet. You have not failed and it is not the end of the world. Our bodies age and fall apart the more fully we live life – and we all know that living life with T1D makes us more more prone to up and down outcomes and is a super challenge for all of us. I joyfully celebrate the fact that several us have made it into our senior years having lived with T1D for 30, 40, 50, 60 plus years – and we keep on truckin’.

      Thank you for taking the time to read this “diatribe”. Hopefully these words will serve to help someone facing comorbid challenges.

      1
      2 years ago Log in to Reply
    20. Marie Seymour-Green

      Trigger finger and frozen shoulder – not something like major organ damage.

      2 years ago Log in to Reply
    21. Jneticdiabetic

      I was developed frozen shoulder a few years ago, about 23 yrs post my T1D diagnosis. I actually didn’t know that was considered a diabetes complication until seeing related questions in this forum!
      I was diagnosed with Hashimoto’s and had other joint issues in the years following the birth of my kids (~15 yrs post T1D). Diagnosed with dry eyes this year. Other autoimmune/feisty immune system challenges, rather than complications?
      I’m current 26 yrs post diagnosis. Luckily, none of the classic complications yet.
      Nice to hear everyone’s experiences, successes and perseverance!

      2 years ago Log in to Reply

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