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    • 2 hours, 17 minutes ago
      John Henninger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 2 hours, 32 minutes ago
      ChrisW likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was recruited by the CIA when I graduated from college and was well into the process when somebody asked me why my draft status was 4F. I was out the door about an hour later.
    • 2 hours, 33 minutes ago
      ChrisW likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was diagnosed with t1 41 years ago. I was told to NOT have children. But I did not listen and had two healthy children.
    • 3 hours, 2 minutes ago
      ChrisW likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 3 hours, 35 minutes ago
      ChrisW likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 3 hours, 38 minutes ago
      ChrisW likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 3 hours, 46 minutes ago
      ChrisW likes your comment at
      Has your cost of insulin changed in 2025?
      Price is OK. But the bureaucratic migraine is amplified a hundred fold. ᕙ( •̀ ᗜ •́ )ᕗ
    • 8 hours, 2 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 8 hours, 3 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 8 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 8 hours, 56 minutes ago
      Bill Williams likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 9 hours, 3 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 9 hours, 3 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 9 hours, 12 minutes ago
      John Barbuto likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 1 day ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 7 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 day, 7 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 day, 7 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 day, 7 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 day, 7 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 1 day, 8 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 1 day, 8 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 1 day, 11 hours ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 14 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 2 days, 1 hour ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
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    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?

    Home > LC Polls > If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?
    Previous

    If you use a continuous glucose monitor (CGM), have you ever been asked to remove it for a medical procedure? Share more about your experiences and what procedures you had to remove it for in the comments!

    Next

    What advice would you give to a caregiver of a teenager with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. Molly Jones

      I chose other.
      I take potassium citrate and Crystal light to control kidney stones that recur due to my anti-seizure medication, topiramate.
      I have not been diagnosed with anything other than this side effect of a necessary medication.

      2 years ago Log in to Reply
    2. Lawrence S.

      No, thank Goodness. Kidney Disease runs in my family. But, I keep a close watch on my kidney functions.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      No I haven’t

      2 years ago Log in to Reply
    4. Donna Condi

      Not so far but my mother who did not have diabetes did have kidney issues so I wouldn’t be surprised if I end up with some.

      2 years ago Log in to Reply
    5. Don P

      where does one draw the line on ” disease ” or long term diabetic causes of minor concerns ?? ie, ……protein in urine

      2 years ago Log in to Reply
    6. GLORIA MILLER

      Almost 67 years with diabetes and no CKD to date. My husband, who is non-diabetic, has 14% kidney function and he is not overweight. You never know.

      1
      2 years ago Log in to Reply
    7. Bruce Schnitzler

      Urine protein level is occasionally above the threshold, but not consistently.

      2 years ago Log in to Reply
      1. Jennifer Otto

        Same!

        2 years ago Log in to Reply
    8. JOAN ULMER

      No, thank you my lord!

      2 years ago Log in to Reply
      1. Jennifer Otto

        Amen!

        2 years ago Log in to Reply
    9. Tina Roberts

      Not yet, but they are doing some testing right now.

      2 years ago Log in to Reply
    10. Mark Wedel

      Living unrelated donor kidney transplant 14 years ago…

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I received a kidney transplant two years ago.

      2 years ago Log in to Reply
    12. Patrick Burner

      Not yet but small traces of protein in urine labs.

      2 years ago Log in to Reply
    13. David Hedeen

      It would b informative to hear years of diabetes b4 kidney issue

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      I said no, but I also know that my kidneys leak some protein after 67 years with T1D.

      2 years ago Log in to Reply
    15. Trina Blake

      I chose “other” since my kidney disease is unrelated to my T1D. I was born with “less than stellar” kidney function (reaching stage 2 kidney disease at 15 years old). At 30 I was Dx’d with rapid-onset T1D. My kidney function has worsened, but it could be the 40+ years with T1D or the congenital disease. Don’t know, but don’t sweat over it either.

      2 years ago Log in to Reply
    16. Jen Woolman

      Kidney function watch your sugar closely drink lots of water so your stay updated instead of pop or coffee or alcohol because we know those are not good on your kidneys function

      2 years ago Log in to Reply
    17. Jen Woolman

      No

      2 years ago Log in to Reply

    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease? Cancel reply

    You must be logged in to post a comment.




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