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    • 1 hour, 10 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 hour, 48 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 hour, 48 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 31 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 2 hours, 53 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 17 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 17 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 18 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 33 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 4 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 34 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 19 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 19 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 2 hours ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
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    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?

    Home > LC Polls > If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?
    Previous

    If you use a continuous glucose monitor (CGM), have you ever been asked to remove it for a medical procedure? Share more about your experiences and what procedures you had to remove it for in the comments!

    Next

    What advice would you give to a caregiver of a teenager with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. Molly Jones

      I chose other.
      I take potassium citrate and Crystal light to control kidney stones that recur due to my anti-seizure medication, topiramate.
      I have not been diagnosed with anything other than this side effect of a necessary medication.

      2 years ago Log in to Reply
    2. Lawrence S.

      No, thank Goodness. Kidney Disease runs in my family. But, I keep a close watch on my kidney functions.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      No I haven’t

      2 years ago Log in to Reply
    4. Donna Condi

      Not so far but my mother who did not have diabetes did have kidney issues so I wouldn’t be surprised if I end up with some.

      2 years ago Log in to Reply
    5. Don P

      where does one draw the line on ” disease ” or long term diabetic causes of minor concerns ?? ie, ……protein in urine

      2 years ago Log in to Reply
    6. GLORIA MILLER

      Almost 67 years with diabetes and no CKD to date. My husband, who is non-diabetic, has 14% kidney function and he is not overweight. You never know.

      1
      2 years ago Log in to Reply
    7. Bruce Schnitzler

      Urine protein level is occasionally above the threshold, but not consistently.

      2 years ago Log in to Reply
      1. Jennifer Otto

        Same!

        2 years ago Log in to Reply
    8. JOAN ULMER

      No, thank you my lord!

      2 years ago Log in to Reply
      1. Jennifer Otto

        Amen!

        2 years ago Log in to Reply
    9. Tina Roberts

      Not yet, but they are doing some testing right now.

      2 years ago Log in to Reply
    10. Mark Wedel

      Living unrelated donor kidney transplant 14 years ago…

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I received a kidney transplant two years ago.

      2 years ago Log in to Reply
    12. Patrick Burner

      Not yet but small traces of protein in urine labs.

      2 years ago Log in to Reply
    13. David Hedeen

      It would b informative to hear years of diabetes b4 kidney issue

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      I said no, but I also know that my kidneys leak some protein after 67 years with T1D.

      2 years ago Log in to Reply
    15. Trina Blake

      I chose “other” since my kidney disease is unrelated to my T1D. I was born with “less than stellar” kidney function (reaching stage 2 kidney disease at 15 years old). At 30 I was Dx’d with rapid-onset T1D. My kidney function has worsened, but it could be the 40+ years with T1D or the congenital disease. Don’t know, but don’t sweat over it either.

      2 years ago Log in to Reply
    16. Jen Woolman

      Kidney function watch your sugar closely drink lots of water so your stay updated instead of pop or coffee or alcohol because we know those are not good on your kidneys function

      2 years ago Log in to Reply
    17. Jen Woolman

      No

      2 years ago Log in to Reply

    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease? Cancel reply

    You must be logged in to post a comment.




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