Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 19 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I really think it just depends on the person who needs help. Some people may find it extremely useful and others may not find them of much help.
    • 3 hours, 19 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I said helpful because unless they actually have first hand knowledge of your health condition they can't really know.
    • 3 hours, 24 minutes ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      Back in the 80's I was in an NIH study. But I think now my age (72) ages me out) and my A1C's (5.4-5.8 for the past 20 years or so) exclude me.
    • 3 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I am the only one in my household who has T1D, but both husband and I live with it.
    • 3 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I always find questions like this one intriguing. I am the one and only T1D in my family, both sides, going up, down, and wide on my family tree. Then there are T1D warriors in this group (and others on social media) where the T1D with whom I'm interacting has children with T1D, parents, and aunts and uncles as well. In a sense, the data like this are suggesting more than one cause for T1D, possibly multiple conditions that result in T1D.
    • 4 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      ALL of them are forced, given a seat at my T1D "table" whether they wish to be or not. They endure my experiences, their after-effects, the events themselves. Living with us, they are unwilling voyeurs/particip[ents This appears to be a badly worded question. If you meant, does anybody living with you ALSO have the disease T1D as well, you should have asked it that way. The question you kids wrote asks a far different question, by semantic accident it appears....?
    • 4 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 19 minutes ago
      KCR likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 38 minutes ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 21 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 59 minutes ago
      KarenM6 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 23 hours, 20 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 23 hours, 21 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 1 hour ago
      Deborah Wright likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 2 hours ago
      Alyne Branson likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 4 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 20 hours ago
      eherban1 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      No opinion.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I have never felt the need to see a mental health professional who has an understanding of lifelong health conditions. I've been T1D for 55 years, but no significant additional diabetic related issues, and have suffered no mental health issues.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 1 day, 23 hours ago
      Pam Hamilton likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How would you rate your overall health?
      My first thought is always Excellent. My A1C hovers around 6.2, TIR around 85%. I do yoga, walk an hour at least 3 times per week, garden, keep my own house very clean, eat pretty healthy, weight is below average, BP excellent. Doctors say my eyes and feet deny I have diabetes. But then, I am insulin dependent, so I always bring it down one notch. Oh! To be able to eat gelato everyday. But even with insulin, there are too many other factors that keep me on the straight and narrow. I will get vertigo if I up my sugar/sweets intake.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.

    Home > LC Polls > If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
    Previous

    On average, how many adjustment boluses would you estimate you manually give yourself in a day? For the purposes of this question, these “adjustment boluses” do not include insulin automatically dosed by an algorithm without user input, and exclude doses given when also bolusing for food.

    Next

    If you have had surgery while wearing a T1D device, did you keep your devices on during the procedure? If you have had surgery multiple times, please answer for your most recent procedure.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    2025 ADA

    T1D Exchange Announces 13 Real-World Data Presentations and Posters at the American Diabetes Association (ADA) 85th Scientific Sessions 

    T1D Exchange, 2 weeks ago 4 min read  
    Mental Health

    What is the Emotional Impact of Screening for T1D? 

    Hannah Doskicz, 3 weeks ago 5 min read  
    Meet the Expert

    Meet the Expert: Advancing Research To Treat, Delay, and Prevent the Development of T1D 

    Jewels Doskicz, 1 month ago 7 min read  
    Advocacy

    Sam Scott, PhD: The Science of Exercise with T1D 

    Jewels Doskicz, 1 month ago 9 min read  
    Research

    The T1D Exchange Fear of Hypoglycemia Screening Project 

    Sarah Howard, 1 month ago 6 min read  
    Lifestyle

    Menopause and T1D: Answers To Your Top Questions 

    Diana Isaacs, PharmD, BCPS, BCACP, CDCES, BC-ADM, FADCES, FCCP, 2 months ago 6 min read  

    28 Comments

    1. MARIE

      Endo doc recommended on first visit in September, and immediately submitted the Rx, but it took until December to go through all the nonsense of approvals and actually get it.

      3 years ago Log in to Reply
    2. Sasha Wooldridge

      It took over a year for me to see an endocrinologist, so it started out that I didn’t know such a thing existed. Then when I got to see an endo, they jumped through all the necessary hoops with my insurance company to get me one, which took a while. This was around 2006-2007.

      3 years ago Log in to Reply
    3. Karen DeVeaux

      I had to pay $800 for diabetes education that my insurance wouldn’t cover, but then I switched to an endocrinologist that provided an educator that was covered and I got a CGM.

      1
      3 years ago Log in to Reply
    4. Lori Lehnen

      When my endo called to tell me my antibody test came back positive (taken at hospital when I went in with DKA), she offered me a free-trial CGM from the stock she keeps at her office. I went in, got it right away and by the time the sensor needed replacement, insurance had approved my use of a CGM. The was one year ago.

      2
      3 years ago Log in to Reply
    5. eherban1

      Clinitest urine analysis (reagent tablets/test tubes) was the state of the art.

      4
      3 years ago Log in to Reply
    6. Liz Avery

      I answered No in error. CGM was not available in 1966.

      3 years ago Log in to Reply
    7. KCR

      I learned about CGMs in an online forum a few months after diagnosis and requested one. I had to provide a log of fingerstick BG data documenting highs and lows in order to get it. Fortunately I had been keeping a log and had it ready to submit. No training other than printed documents and a short video but I did have a very informative chat with a Dexcom rep who used it himself.

      3 years ago Log in to Reply
    8. John Zipper

      I had to send in an appeal to my insurer. They kept delaying an answer, took me close to a year to get coverage for CGM. This was 8 yrs ago or so.

      1
      3 years ago Log in to Reply
    9. Henry Renn

      Whoops! Answered incorrectly. Missed the part that said “when you were diagnosed “. CGMs did not exist when I was diagnosed 66 yrs ago.

      3 years ago Log in to Reply
    10. Lawrence S.

      CGM’s did not exist for many years when I was diagnosed in 1977. However, there is a story to tell here.
      I drove an hour and 15 minutes to work each morning. One morning, approximately 2008, upon arrival at work, I started my usual routine, went to the men’s room, and collapsed from a low blood sugar. Consequently, I broke my right ankle.
      At the time, CGM’s were just coming out ( or I just became aware of them). They were not yet approved by my health insurance company, so I could not get a CGM. While out of work, sitting at home with my broken ankle, I telephoned the insurance company and told them that if I had a CGM, I probably would not have had the low blood sugar, broken my ankle, and be sitting at home losing time at work and costing the insurance company the expense of my medical care. Very soon afterward, the insurance company approved my CGM. I may have been the first approved by my insurance company.

      9
      3 years ago Log in to Reply
      1. Patricia Dalrymple

        Yes. You have to hit them where it hurts, and it isn’t always in the pocket book. They didn’t want to cover the amount of my test strips until I told the pharmacist: OK but it means when I go low, I won’t always test because I don’t want to run out is strips. The pharmacist said, hold on a minute. When they came back in, I had slow the strips I needed.

        1
        3 years ago Log in to Reply
    11. Anne Blayney

      CGMs existed but were not widely in use when I was diagnosed. I had to wait about 15 years (until around 2015) for them to be covered by insurance.

      3 years ago Log in to Reply
    12. Jeff Balbirnie

      1969

      A whole lot of “maintenance tech”did not exist and IMV/IMHE as a culture we were all less terrified because of it….. IMHV

      1
      3 years ago Log in to Reply
    13. Nicholas Argento

      They did not exist in 1968. Fingersticks were also not available. I started on a home CGM as soon as they becoem availble commercially in my area, in Aug 2006. At first I had to pay out of pocket due to not being covered. I was fortunate I could afford to pay out of pocket but I felt like my life was in danger without one. I don’t know if I would be alive today if I had not- it has kept me from having any severe low blood reactions where I was not able to correct detect or intervene. I had 40 + in 38 years prior to CGM. None in 16 years since. Fortunately, they re now regarded as standard of care for T1D, even by Medicare.

      2
      3 years ago Log in to Reply
      1. Sherrie Johnson

        I am with you similar journey 1961 for me.

        3 years ago Log in to Reply
    14. Bob Durstenfeld

      I was part of a trial for platinum glucose sensors in 1978. It took almost 30 years for it to be commercialized.

      3 years ago Log in to Reply
    15. Cindy DeLano

      Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!

      4
      3 years ago Log in to Reply
    16. Mary Dexter

      My insurance company automatically rejected my first request for a CGM and appealing that decision was arduous. I still must continuously prove that I am worthy. My doctors’ offices are happy to have Medtronic deal with maintaining authorization for their CGM, but discourage use of Dexcom: paperwork doesn’t get filed and they barely glance at the data. One CDE told me I would never get a Dexcom, as I was told I would never get an endocrinologist, because I wasn’t one of the Chosen. As someone diagnosed well after childhood, I continually battle for my right to insulin and CGM against doctors who can’t accept that an adult can develop autoimmune diabetes.

      2
      3 years ago Log in to Reply
      1. Amanda Barras

        I am so sorry to hear that. It should have nothing to do with you age and everything to do with labs results and medical necessity. Frustrating!

        2
        3 years ago Log in to Reply
      2. Lawrence S.

        Are you seeing an Endocrinologist? I would think and Endocrinologist would be happy to do the necessary paperwork. Insurance companies, and supply companies can just be difficult. I would think that Dexcom would be easier to get because it is currently the gold standard for CGM’s.

        3 years ago Log in to Reply
    17. Amanda Barras

      Mine was a 2 fold answer. Dx in 1988 CGM didn’t exist. But, even when pumps and CGM became available I was still restricted due to affordability due to Insurance companies not covering these therapies right away.

      3
      3 years ago Log in to Reply
    18. cynthia jaworski

      I have typically used physicians who are “out of network” for my health plan. In my case, this means the in;insurance will pay some of the costs but a much lower amount. However, these endocrinologists are not hampered by the insurance companies in their choice of treatments. So, I had been offered a cgm long before I decided to go for it. The reason for my initial reluctance was that the early dexcom required 2 calibrations daily. At the time I was only using 5 finge3rsticks a day (yes, the test strips were limit4dd then), so it didn’t seem to be worth all the bother to eliminate 2 fingersticks. I had not anticipated how frequently I would be getting readings and making good use of the cgm readings. I am very glad that I was not pushed, but I really wish I had seen the light sooner.

      3 years ago Log in to Reply
    19. Stephen Woodward

      Took two years to get one at Kaiser because I had no ER visits and A1C was to low.

      3 years ago Log in to Reply
    20. Lyndsey Escobar

      We received a CGM 2 weeks after diagnosis so we knew how to count carbs and dose in the event that the CGM failed or waiting for a delivery, etc.

      3 years ago Log in to Reply
    21. Joan Benedetto

      Our son was diagnosed at 18 mos of age, and Endo prescribed pump/Cgm immediately. He started pumping two mos post dx, but insurance would not cover Cgm due to our son’s age. Shortly after he turned two, we sent proof (with help from Dex rep) that cgm was FDA approved for kiddos two and up. Took a few months, but we won our appeal!

      2
      3 years ago Log in to Reply
    22. Melinda Lipe

      Complicated – In 1966 at diagnosis they did not exist. When they became commonly available, there were criteria (hypoglycemia unawareness) for them. 2008 – 43 years in, 10 years after I began pump therapy.

      1
      3 years ago Log in to Reply
    23. StPetie

      I coose Other. I waited about about a year mostly due to a number of medical issues that came along with the t1d diagnosis.

      3 years ago Log in to Reply
    24. Randell Cole

      Did not exist

      3 years ago Log in to Reply

    If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]