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    • 3 hours, 42 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 3 hours, 43 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 3 hours, 44 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 3 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.

    Home > LC Polls > If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
    Previous

    On average, how many adjustment boluses would you estimate you manually give yourself in a day? For the purposes of this question, these “adjustment boluses” do not include insulin automatically dosed by an algorithm without user input, and exclude doses given when also bolusing for food.

    Next

    If you have had surgery while wearing a T1D device, did you keep your devices on during the procedure? If you have had surgery multiple times, please answer for your most recent procedure.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    28 Comments

    1. MARIE

      Endo doc recommended on first visit in September, and immediately submitted the Rx, but it took until December to go through all the nonsense of approvals and actually get it.

      1 year ago Log in to Reply
    2. Sasha Wooldridge

      It took over a year for me to see an endocrinologist, so it started out that I didn’t know such a thing existed. Then when I got to see an endo, they jumped through all the necessary hoops with my insurance company to get me one, which took a while. This was around 2006-2007.

      1 year ago Log in to Reply
    3. Karen DeVeaux

      I had to pay $800 for diabetes education that my insurance wouldn’t cover, but then I switched to an endocrinologist that provided an educator that was covered and I got a CGM.

      1
      1 year ago Log in to Reply
    4. Lori Lehnen

      When my endo called to tell me my antibody test came back positive (taken at hospital when I went in with DKA), she offered me a free-trial CGM from the stock she keeps at her office. I went in, got it right away and by the time the sensor needed replacement, insurance had approved my use of a CGM. The was one year ago.

      2
      1 year ago Log in to Reply
    5. eherban1

      Clinitest urine analysis (reagent tablets/test tubes) was the state of the art.

      4
      1 year ago Log in to Reply
    6. Liz Avery

      I answered No in error. CGM was not available in 1966.

      1 year ago Log in to Reply
    7. KCR

      I learned about CGMs in an online forum a few months after diagnosis and requested one. I had to provide a log of fingerstick BG data documenting highs and lows in order to get it. Fortunately I had been keeping a log and had it ready to submit. No training other than printed documents and a short video but I did have a very informative chat with a Dexcom rep who used it himself.

      1 year ago Log in to Reply
    8. John Zipper

      I had to send in an appeal to my insurer. They kept delaying an answer, took me close to a year to get coverage for CGM. This was 8 yrs ago or so.

      1
      1 year ago Log in to Reply
    9. Henry Renn

      Whoops! Answered incorrectly. Missed the part that said “when you were diagnosed “. CGMs did not exist when I was diagnosed 66 yrs ago.

      1 year ago Log in to Reply
    10. Lawrence S.

      CGM’s did not exist for many years when I was diagnosed in 1977. However, there is a story to tell here.
      I drove an hour and 15 minutes to work each morning. One morning, approximately 2008, upon arrival at work, I started my usual routine, went to the men’s room, and collapsed from a low blood sugar. Consequently, I broke my right ankle.
      At the time, CGM’s were just coming out ( or I just became aware of them). They were not yet approved by my health insurance company, so I could not get a CGM. While out of work, sitting at home with my broken ankle, I telephoned the insurance company and told them that if I had a CGM, I probably would not have had the low blood sugar, broken my ankle, and be sitting at home losing time at work and costing the insurance company the expense of my medical care. Very soon afterward, the insurance company approved my CGM. I may have been the first approved by my insurance company.

      9
      1 year ago Log in to Reply
      1. Patricia Dalrymple

        Yes. You have to hit them where it hurts, and it isn’t always in the pocket book. They didn’t want to cover the amount of my test strips until I told the pharmacist: OK but it means when I go low, I won’t always test because I don’t want to run out is strips. The pharmacist said, hold on a minute. When they came back in, I had slow the strips I needed.

        1
        1 year ago Log in to Reply
    11. Anne Blayney

      CGMs existed but were not widely in use when I was diagnosed. I had to wait about 15 years (until around 2015) for them to be covered by insurance.

      1 year ago Log in to Reply
    12. Jeff Balbirnie

      1969

      A whole lot of “maintenance tech”did not exist and IMV/IMHE as a culture we were all less terrified because of it….. IMHV

      1
      1 year ago Log in to Reply
    13. Nicholas Argento

      They did not exist in 1968. Fingersticks were also not available. I started on a home CGM as soon as they becoem availble commercially in my area, in Aug 2006. At first I had to pay out of pocket due to not being covered. I was fortunate I could afford to pay out of pocket but I felt like my life was in danger without one. I don’t know if I would be alive today if I had not- it has kept me from having any severe low blood reactions where I was not able to correct detect or intervene. I had 40 + in 38 years prior to CGM. None in 16 years since. Fortunately, they re now regarded as standard of care for T1D, even by Medicare.

      2
      1 year ago Log in to Reply
      1. Sherrie Johnson

        I am with you similar journey 1961 for me.

        1 year ago Log in to Reply
    14. Bob Durstenfeld

      I was part of a trial for platinum glucose sensors in 1978. It took almost 30 years for it to be commercialized.

      1 year ago Log in to Reply
    15. Cindy DeLano

      Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!

      4
      1 year ago Log in to Reply
    16. Mary Dexter

      My insurance company automatically rejected my first request for a CGM and appealing that decision was arduous. I still must continuously prove that I am worthy. My doctors’ offices are happy to have Medtronic deal with maintaining authorization for their CGM, but discourage use of Dexcom: paperwork doesn’t get filed and they barely glance at the data. One CDE told me I would never get a Dexcom, as I was told I would never get an endocrinologist, because I wasn’t one of the Chosen. As someone diagnosed well after childhood, I continually battle for my right to insulin and CGM against doctors who can’t accept that an adult can develop autoimmune diabetes.

      2
      1 year ago Log in to Reply
      1. Amanda Barras

        I am so sorry to hear that. It should have nothing to do with you age and everything to do with labs results and medical necessity. Frustrating!

        2
        1 year ago Log in to Reply
      2. Lawrence S.

        Are you seeing an Endocrinologist? I would think and Endocrinologist would be happy to do the necessary paperwork. Insurance companies, and supply companies can just be difficult. I would think that Dexcom would be easier to get because it is currently the gold standard for CGM’s.

        1 year ago Log in to Reply
    17. Amanda Barras

      Mine was a 2 fold answer. Dx in 1988 CGM didn’t exist. But, even when pumps and CGM became available I was still restricted due to affordability due to Insurance companies not covering these therapies right away.

      3
      1 year ago Log in to Reply
    18. cynthia jaworski

      I have typically used physicians who are “out of network” for my health plan. In my case, this means the in;insurance will pay some of the costs but a much lower amount. However, these endocrinologists are not hampered by the insurance companies in their choice of treatments. So, I had been offered a cgm long before I decided to go for it. The reason for my initial reluctance was that the early dexcom required 2 calibrations daily. At the time I was only using 5 finge3rsticks a day (yes, the test strips were limit4dd then), so it didn’t seem to be worth all the bother to eliminate 2 fingersticks. I had not anticipated how frequently I would be getting readings and making good use of the cgm readings. I am very glad that I was not pushed, but I really wish I had seen the light sooner.

      1 year ago Log in to Reply
    19. Stephen Woodward

      Took two years to get one at Kaiser because I had no ER visits and A1C was to low.

      1 year ago Log in to Reply
    20. Lyndsey Escobar

      We received a CGM 2 weeks after diagnosis so we knew how to count carbs and dose in the event that the CGM failed or waiting for a delivery, etc.

      1 year ago Log in to Reply
    21. Joan Benedetto

      Our son was diagnosed at 18 mos of age, and Endo prescribed pump/Cgm immediately. He started pumping two mos post dx, but insurance would not cover Cgm due to our son’s age. Shortly after he turned two, we sent proof (with help from Dex rep) that cgm was FDA approved for kiddos two and up. Took a few months, but we won our appeal!

      2
      1 year ago Log in to Reply
    22. Melinda Lipe

      Complicated – In 1966 at diagnosis they did not exist. When they became commonly available, there were criteria (hypoglycemia unawareness) for them. 2008 – 43 years in, 10 years after I began pump therapy.

      1
      1 year ago Log in to Reply
    23. StPetie

      I coose Other. I waited about about a year mostly due to a number of medical issues that came along with the t1d diagnosis.

      1 year ago Log in to Reply
    24. Randell Cole

      Did not exist

      1 year ago Log in to Reply

    If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you. Cancel reply

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