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    • 7 hours, 55 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 8 hours, 1 minute ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 8 hours, 8 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 2 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 2 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 2 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 4 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 8 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 10 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 11 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 5 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 5 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 7 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 8 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 8 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    How would you go about finding a new T1D healthcare provider if you moved to a new location?

    Home > LC Polls > How would you go about finding a new T1D healthcare provider if you moved to a new location?
    Previous

    During which of the following life transitions did you find it most difficult to manage T1D? Select all that apply to you.

    Next

    Have you ever experienced elevated body temperatures as a side effect of high blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. ConnieT1D62

      For diabetes care I would seek out other T1Ds in the community and see what they have to say. And of course would have to check out who is covered by insurance particulars.

      5 years ago Log in to Reply
    2. Steven Gill

      When my last doctor moved his practise further than I preferred I use the telephone and just called. She’s the one that got me into the pump (although the last one mentioned it but I was afraid of damaging it, she stressed the 4 year warranty).

      Just moved this past summer, spoke to neighbors and just called and got this GP. Ironically he initially said he knows nothing about the pump nor handles TYPE 1 but after seeing my a1C said if I was okay he’d follow up (he’d said few of his diabetics seeing a specialists had their levels below 7’s).

      Seemed happy to got the booklets for my old pump/CGM

      5 years ago Log in to Reply
    3. Sjoymex

      Unfortunately I don’t know any other t1ds in the area so I’ve always done an internet search looking at reviews, then of course what my insurance covers.

      5 years ago Log in to Reply
    4. connie ker

      I checked all of the above because finding an endo practice is difficult, or the practice is not taking any new patients. Endocrinology is a speciality that medical students tend to avoid. It is vital and requires more education than a GP, but requires a lot of homework to find what fits best for you. I see a NP in the field of endocrinology who travels to my hometown.

      5 years ago Log in to Reply
    5. Sahran Holiday

      Provider directory often inaccurate. Use ZocDoc let’s you filter location, insurance, language. Either way, then Google.

      2
      5 years ago Log in to Reply
      1. lis be

        i agree with this, I recently found out many doctors hire an agency to “clean up” their bad reviews.

        5 years ago Log in to Reply
    6. Joan McGinnis

      I would check out the ones covered by my insurance online diligently reading every review. I would ask other TIDs in the community, maybe call ADA and ask for whom the might be. I would also ask for referral from current endo even if in a different city. You can also look at list of endos in your city online. I would try one out that looks the best to me.

      5 years ago Log in to Reply
    7. Larry Martin

      I live in the USA. It is not about patient preference, it is what insurance will cover.

      4
      5 years ago Log in to Reply
    8. TEH

      When I moved 8 years ago I didn’t have the T1D exchange, so I asked my GP then searched the practice he referred me to on the internet. There are many more capabilities that can be used now, reviews, insurance search ratings, and even google…

      5 years ago Log in to Reply
    9. Derek West

      Whenever I have moved I looked for an Endo associated with a teaching hospital figuring they would be the most up to date.

      1
      5 years ago Log in to Reply
    10. Tod Herman

      I have multiple options. First and foremost would be who was covered by my insurance. Then, if there were more than one choice, I’d try and get the opinions of other T1D folks in that area.

      1
      5 years ago Log in to Reply
    11. Sue Martin

      I’ve been connected with a group called Healthcare map through my Endo. I’ve really connected with the nurse I’ve been assigned. They live in a city I’m considering moving to so I would ask their advice.

      5 years ago Log in to Reply
    12. lis be

      all of the above.

      1
      5 years ago Log in to Reply
    13. Christina Trudo

      I did that recently, researched the advanced training of local endocrinologists and chose one who did a fellowship at Joslin. In past times I got an endo I did not get along with and to change within the same system, I asked a sympatico nurse and my educator who they see, ended up with a gem.

      2
      5 years ago Log in to Reply
    14. GLORIA MILLER

      I have moved several times without knowing anyone in the community so I had to do my own research on doctors. I live in the US and with my insurance I can use whatever doctor I want. The first criteria for me is that the endo be female.

      5 years ago Log in to Reply
    15. TomH

      You can try an internet search, but it doesn’t mean a good fit. Perhaps In can mob with recommendations from other T1s it would be better.

      5 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      I currently have a provider but I am not entirely pleased . What would I do to find a new reliable provider? I am considering asking my insurance person since they would know the most reliable person for someone with Type 1 Diabetes.

      5 years ago Log in to Reply
    17. Jillmarie61

      All of the above would be a good answer.

      1
      5 years ago Log in to Reply
    18. Molly Jones

      All of the choices were chosen. I also like to see if what papers they have been currently involved in. I like my doctors to be involved in research or in a University hospital to know they are up to date.

      1
      5 years ago Log in to Reply
    19. Jeff Perzan

      I have always selected a doctor who is involved in academic medicine as they tend to be more up on the latest and greatest.

      5 years ago Log in to Reply
    20. LizB

      I have only ever had 2 endos and I found both by calling a local, well respected teaching hospital and choosing from their practice. I made sure that the endo I chose specialized in diabetes, and not something like reproductive medicine or another disease I don’t have.

      5 years ago Log in to Reply
    21. Nicholas Argento

      I would contact the local Dexcom and tandem representatives and find out who in their area prescribed a lot of them and had a good reputation- because if someone were not tech savvy, they would not be a good fit for me.

      5 years ago Log in to Reply
      1. PamK

        I like that idea!

        5 years ago Log in to Reply
    22. PamK

      All of the above! I moved across the country over 25 years ago and am still looking for a doctor who is a “good fit” for me. I’ve found two or three who are okay, but no one that is great. So far, none of the docs I’ve gone to have been close to the level of treatment my old doctor gave me. Alas, he was one in a million!

      5 years ago Log in to Reply
    23. NAK Marshall

      I’d been T1 since age 9 and when my daughter was diagnosed at age 24, I immediately called my endo (who I love) who is also a researcher in Denver and asked, “Who do you know in Portland, Oregon?” He knew endo’s at a large patient & research clinic there and except for getting the initial appointment which took several days of me calling and sometimes being mom and sometimes pretending to be her, it has been wonderful since! If either of us ever moved, I would research like crazy and then go interview THEM, as would she.

      5 years ago Log in to Reply

    How would you go about finding a new T1D healthcare provider if you moved to a new location? Cancel reply

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